willow
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Niamh (Sheedy),
Please accept my sincere sympathy on the loss of your father. I was really sad to see your post after such a positive one in April. I now know why people say “may he rest in peace” and wish that for your father.
WillowCeci,
You seem like a great mother and advocate. Not sure if you till need help with this: To search for a user (it has to be their username), look at the menu bar at top of page and click on “User List”… then you can search for it from there. To search for a topic, say ‘constipation’, or even for a particular Dr, drug, hospital, treatment, etc, go to the ‘search’ icon at top of page and use that. It will pull up any posts with that word in it listing them from the most recent, but you can go way back in time if you just keep going to the ‘next page’.All the best to your daughter and baby grandchild. Being diagnosed with cancer is simply overwhelming in the beginning, but once she starts getting treatments, things seem to settle into a routine of sorts. Like Lainey often says “fright turns to fight”.
My sister was diagnosed 15 months ago and is on her 3rd type of chemo. Started w/ Gem-Cis but it knocked her blood cells and platelets too low so they moved on quickly to radioembolization with Yittrium-90 microspheres, which did seem to help control the tumors inside her liver, though mets appeared outside her liver. Se moved on to Xeloda chemo pills which stabilized her for 4 months or so and just this week started Taxotere. She too does not come on the site out because it can be too sad and scary at times. I find it comforting to know more about CC, to be able to ask questions, seek support and know what to expect in certain situations.
Tiffany (search username Tiff1496) is the patient at MD Anderson Houston who the Dr may have been referring to as the person who accepted a ‘tainted’ liver in a rare but successful domino transplant. Her story is amazing and she is a young mother doing well after a long road with CC. Transplants are not common, but it is a wonderful goal that has not been ruled out permanently in your daughter’s case.
Hang in there and God Bless you and your family. WillowThank you, Lainy. You’re so right about the close bond that can form under these incredible circumstances.
See if there’s a patient advocate or social worker at the hospital your mom is being treated by. They may have some training (or know who does) to help you choose the right plan and navigate the sign up system (which the government knows is a mess). My sister is signing up for a plan under affordable care act to try to reduce her huge premium of her Cobra insurance. She is 51 and no longer employed due to the CC (perm doc sec disability now).
I’m hoping you can find someone to help make sure your mom has absolutely no gap in coverage.
Sincerely,
WillowCris,
Please accept my sincere condolences on the loss of your dear husband, Terry. Peace, comfort and blessings to you as you grieve.
WillowLisa,
I’m sorry to hear you hAve any activity at all. Glad your MD is on the ball to pinpoint the cause and that you have several options. It is also relatively reassuring (well that’s a stretch) to hear this is a small isolated place probably related to an old tumor maybe and nothing new that’s distant. But really this is me trying to spin positive from a let down because I want remission for you! . Many loving thoughts and prayers for healing and health.
XO
WillowHi Gavin!
Has it been stormy in Scotland? News shows Northern Europe hit hard. Your roof nice and tight?Crisis,
That is wonderful news! Its true, stability for long periods is common and remission happens sometimes too, though CC is sneaky. Hope your Halloween is all treats and no tricks!
WillowI agree. Could be an abscess that could lead to sepsis.. The hospital can better evaluate and in meantime help manage symptoms.
Hang in there,
WillowPatti,
So sorry for the news that the chemo isn’t working. I’m glad you’re going to get another opinion for non-chemo treatments to keep you feeling good.
WillowSandie,
Your attitude and courage is inspiring! Here’s to a great response and few side effects from chemo.
I’m praying for the same thing for my sister who is starting Taxotere next week since Xeloda no longer doing enough. Overall, were grateful for the relatively stable spring and summer and the freedom that pill form of chemo allowed.
Salud,
Willow
