willow
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Go Susie!
Here’s to a great 34th year and a clean bill of health. Your vacations sounded wonderful as do you. Keep up the fancy blended smoothies and soups and perhaps share a fave recipe…
Cheers and Salud!
WillowBridget,
Your words even now are uplifting in how you honor your husband. You both are beautiful examples of humanity and positivity in the face of dire circumstances.
Please add my sincere condolences to the many you have received.
WillowKris,
You are a brave pioneer for all who dream of stopping CC in its tracks. God definitely has special plans for you! Congratulations on yet another fabulous update:)Wordman,
Hoping people on this site can bring you more hope, support and information as CC can be a lonely and confusing journey. You sound strong and have a great community there though this one is unique in that many here have a real insight as to what you’ve been through and maybe provide answers to some if your questions.
God bless,
WillowPFox,
That is WONDERFUL NEWS!!!!! Thats great about your blood counts staying up as this really seems to be a good cocktail for your particular CC ! Thanks for sharing and keep the faith.
WillowI agree, Jason is a GREAT advocate not only for his wife but for those on this board like Pat who are too overwhelmed to do all that research for themselves.
Thank you for sharing your observations and opinions, Jason!
Healthy blessings to All of you,
WillowShellina,
The confusion causing bizzare behavior alone is difficult to deal with aside from Al’s physical needs. sometimes I had to hire private people to sit with my father even though he was in assisted living dementia facility. It takes a village! He was so confused that he repeatedly pulled out his urinary catheter (no small feat since its inflated at the end). It became a medical emergency every time. I was relieved to have hospice after so many hospital ER trips but was surprised that they only come for quick visits, not to sit with patients. In Al’s case, I agree with Lainey that it seems like you need more help and he needs more supervision so please look into a hospice facility or skilled nursing. I’m glad we can be a sounding board during this extremely stressful time.I am so sorry, Shellina. I empathize with what you are both enduring, though I can not imagine going through it with my spouse. I helped my elderly father pass from Alzheimer’s in late April and he was very confused and agitated at the end as well. It was wrenching to see him upset and uncomfortable. With the help of hospice, family and friends and strength from God, you will get through it. This is a very emotional and precious time and I certainly can understand why Al feels ready to go. He deserves to find his peace. May you find peace and comfort as well.
Sincerely, Willow
