wisdom
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Moderator, No treatment since 2011. Numbers that is my question? ONC referred each time a scan or numbers when up and they didn’t feel there was anything they could do. I finally change Dr. although in the same office. I like the new Md. They completely reviewed the fill and said not much left to offer. If I wanted to try anything else they would be open to supporting.Not turning him/her down just after coming to home didn’t feel I was ready or met the need. I have gone through this as I said since 2010 and it’s June original surgery. So I’m at the 4 year mark. I have ready from others that they have had low numbers but lots nets sp. and other metastasis. I have been already told stage 1V and growth. Very surprised and confusedd fearful about findings and don’t want to tell family for fear that the unclear situation is wrong. Sorry to be so vague but it is. I have an appointment with my Gp and will ask her hopefully have more clarity. I also have red that the ca19-9 isn’t an indicator but a number reflecting growth or more metatisis. thanks for reply and guestion I feel less confused and stupid with you also questioning the same as me yes I havve insurance but the co-pays and remaining balances are tough. the doctor who did the ovairan surgery didn’t hold off even with the 50.00 per mo went to collection. it’s tough.
Randi, brief association with the site and back for support and info to help me through this illness. I have no words to express the joy I feel about the news of life and journey towards wellness and a healthy life. I will keep you in my prayers for continued great news. Wisdom
Laurie, This illness is very tough and the emotional side as you and your husband have already experienced is all over the map. Since my original surgery 6/2009, 3 1/2 years what has helped is one mindfully and a moment at a time. Living each moment as a gift, I acknowledge this is time I would never have had. I relish in seeing the sky in the morning when I drive to work, listening to music, and working with kids. On the tough days, I cry and reach out to those available and we laugh and cry together. I feel less alone and scared. Take time for yourself and know you are not alone accept strength from you faith. and spend time together. I occasionally drink socially have not seen a difference, not sure what the standard is for CC and alcohol. accept peace from a moment that is special to you, blessings Wisdom
Thank you for the words of hope and encouragement. I live in another state and was lucky enough to go to UCFS where my resection was done, 16 hours of surgery. For a long time I emailed them and went back to see my team, they are great down there. I have returned home and the follow-up is really poor. Good to know others have had option like the B12, and need for silence at work. I have new insurance and will look to see if another option is available re changing MD when INS. chgs next week. I have asked for time off and was told no coverage. I decided to ask what is available and to receive that time for two weeks. So my reprieve is coming up 1/7/13 for two weeks. I also appreciate knowing another put on the “good face.” I’m sad that your sister had to do this. Happy New Year to all of you and your families, Wisdom
Hi I’m Wisdom. I was diagnosed last march “09.” I had resection surgery in June and my CA19-9 was inthe normal range. I attempted to do Chemo, but my labs tanked to ultimately the doctor suggested I stop. No new treatment since December. I have been watching my CA-19-9 and it continues to climb, now 333. no specific symptoms, very tired. I’m scared and feel pretty much alone. It’s good to find the site, sad to know either you or a family is ill with this disease. Glad to know I can come to site and chat. W.
