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  • in reply to: Difficult subject, sorry… #14286
    woodybcox-net
    Participant

    I have been collecting case studies of people with gall bladder and bile duct cancers. Several have passed away, but their loved ones have expressed interest in sharing their experiences. Send me an email and ask any questions you have, and I will forward it to them.

    Woodyb@cox.net

    in reply to: Any experience with Xeloda, Oxaliplatin & Avastin? #14958
    woodybcox-net
    Participant

    Jerry and Jeff – I make 3 with infusion problems. At the end of a clinical trial, my porta-cath wasn’t properly flushd, and 4 months later, after the nurses had difficulty clearing my porta-cath, they forced saline through which ruptured the catheter (which no one realized at the time). I got some pre-meds and then the oxalyplatin was started. After a while I complained about a sore chest and they realized that I was being infused into my chest through the ruptured porta-cath. They stopped, and sent me home. The good news is that I didn’t have any of the cold sensitivity until after my next infusion.

    I have been collecting case studies for gall bladder and bile duct cancer. For a copy, send me an email at woodyb@cox.net. If you cannot open Excel spreadsheets, let me know and I can send you a pdf document.

    Woody B

    in reply to: Stacie and others: a review of the treatment options #14505
    woodybcox-net
    Participant

    Alison-
    For the phase 3 XL119 study, you had to be treatment free for 6 months, plus additional criteria. The study is detailed at
    http://www.clinicaltrials.gov/ct/show/NCT00090025?order=1
    If they are opening the XL119 to all participants (as I was told), they may also change the eligibiity requirements.
    I will post any information I learn.

    I am trying to develop a comprehensive data base of treatments and individual responses. If you are willing to share your experiences, please email me at
    woodyb @ cox.net
    and I will forward the suvey form and send you periodic updates of everything I learn.
    Woody Beckman

    in reply to: XL119 #13777
    woodybcox-net
    Participant

    I was in the XL119 phase 3 clinical study and dropped out because I was assigned to the control group rather than the XL119.
    However, I just learned that the study is being changed to open status, and that all participants will get XL119.
    This sounds like very good news.
    Woody

    in reply to: Stacie and others: a review of the treatment options #14498
    woodybcox-net
    Participant

    I was in the XL119 phase 3 clinical study and dropped out because I was assigned to the control group rather than the XL119.
    However, I just learned that the study is being changed to open status, and that all participants will get XL119.
    This sounds like very good news.
    Woody

Viewing 5 posts - 1 through 5 (of 5 total)