Survival…Please tell us your latest milestone
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Dawn, my wife, had her resection done in January of 2006 at Rush University Hospital in Chicago. She recently had a CT scan, – 8 1/2 years still cancer free. We hit a millstone last summer, as our oldest daughter was married, recently received news that she and I will be grandparents early next year. We sincerely thank the Clements family all of you involved in the foundation and this web site then and today.
Catherine:
After eight rounds of cis/gem I went to gem only in March. Started my fifth round today. Had a CT scan in April, liver tumor still decreasing slowly, next one will be end of June. Alk-phos is steady between 130-140 and CA 19-9 runs from 50-70. Platelets are steadier too, >100,000 since mid-April. Neuropathy is markedly decreased, some toes are free of it.
Duke
John Thomas and Patti from Illinois,
Thank you for sharing your wonderful stories! Great to hear you’re staying busy living and loving!I finished IMRT in Early November, then returned to MD Anderson in January for a PET scan. It was clear and my CA 19-9 was 10.2. Dr. Javle said I was clear to go three months with NO treatment. I came home and felt the best ever in a very long time. I just returned for a checkup after that (3 months later) and scan are still clear….no lymph nodes are bothersome to them or any concern. Tumor is mostly necrotic and inactive. My CA 19-9 at now at 11. The dr said it was the best report ever since coming to MD Anderson. I was diagnosed in Feb of 2011 and started seeing Dr. Javle in April of 2011….after going to Mayo who gave no hope whatsoever….this wasted a few months but totally worth it with the expert care I receive from Dr. Malind Javle and MD Anderson. I am biking 10 miles on some days and walked in a 5K over the weekend. Feeling better and better every minute of each day. Feeling very blessed and thankful!!
John Thomas, Happy Easter to You and yours! I love it when I wake up to this kind of post. I am so over the moon for you and how you progressed! We so need these kind of HOPE posts! Best wishes and continued good luck.
Catherine, I stopped Cisplatin in mid-Sept. due to neuropathy. Once the platinum cleared out of my system (about 90 days) I felt much better. Less chemo-brain & fatigue. So far the Gencitabine is working on its own.
How are you doing?
I marvel that I am doing so well….going to NY Auto Show today with my adult daughters. FUN!
Good Friday is always special to me. Good Friday, 2009 I officially became a member of this small club. Today, five years later, I am still a member, although slightly inactive. I have been very busy living! Despite the statistics, some of us make it through. I am so grateful for the past five years, I can’t express it.
Eric-
So happy for you and thank you for sharing! It gives hope to others who are newer to this forum. Would you mind letting me know if you are still on the Gem/Cis or did they modify the chemo?
Wishing you a long, long time of continued stability.
Catherine
Dear EN, WOW and YIPPEE that is just the greatest news. Please keep on letting us know about your progress, you are amazing!
I just found this thread. I am a baby compared to most of you, only a little over eight months. But have great hopes to extend that indefinitely. We all beat the odds to join this club, so why shouldn’t we beat them again and shift the curve far to the right?
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