Treatment Centers/Physicians

I am currently being seen by my Mayo Rochester oncologist, Dr. Evideo Domingo, who I absolutely love and respect. However, he will be done with his fellowship right after my next scans in November this year, so we will be discussing a new Mayo oncologisty. I will report back then as to whom that will be. Meanwhile, I still see my local oncologist in between Mayo checkups for blood tests as a followup to my chemo and in general checking how I am feeling. That oncologist is Dr. Nabi, with Hall Perrine Cancer Center, a local center where I did my adjuvant chemo. My Mayo surgeon who did the resection was Dr. Kaye Reid Lombardo, who never hesitated to do surgery in my case and did it via laproscropic method.

Hello everyone , I’m so glad that I found this site it has helped me a lot reading what you have been through .

my dad was diagnosed with intrahepatic cholangiocarcinoma in august 2014, he is 53 he had scans after weight loss that made the doctor suspicious, then a liver biopsy of the mass .

he was not a candidate for surgery because the largest tumour size was in his left lobe of around 16 cms ( 6 inches ), and involvement of all other lobes of the liver with smaller lesions , his performance status was excellent so he was started on gemzar/cisplatin in his local hospital in saudi arabia which is the biggest and leading one in the middle east , king faisal specialist hospital and research centre , he received 6 cycles.

he had I would say remarkable improvement his weight started to come back to base line his ca 19-9 back to almost normal figures as well as .
his scans showed regression of that lesion to 6 cm from 16 cm (2.3 inches from 6.2)
he still had the smaller lesions in other lobes of liver and still wasn’t a resection candidate .

he wanted to be treated beside his family although I have prepared for him to be seen in experienced big centres like mayoclinic but his wish was that if they didn’t have anything significant to offer then I’d rather stay home, which was the case based on their replies ( mayoclinic, memorial sloan catering)
I also looked the option of liver transplant which he wasn’t a candidate because his tumour size is large and that it is intrahepatic and also involvement of local lymph nodes and compression on liver vessels .

after 4 months of chemo he had radiological progression and started on second line xeloda(capecitabine) and oxaliplatin , how ever it progressed regardless and exploded in like 2 months where it has not only come back to previous size but even worse and mets to the lungs .
he had received 5 cycles of his second line and the oncology team stopped it and decided for no further chemo .
he was clinically jaundiced and after ERCP and placement of plastic stent better and bilirubin started to come down .

he has an appointment scheduled in Cleveland clinic , how ever it is a long flight and I couldn’t speak to anyone there to have like a preliminary plan and I don’t want him going there in this condition without any benefit , like getting into a trial or something .

I also discussed with doctors local therapies to the tumour like TACE and RFA .. how ever they said it would do more harm than good at this stage .

I feel so sad and also think always like did they give up easy or is this the nature of this cancer .so what do you guys think ? any similar experience .

thank you guys so much again, this helps a lot

the medical oncologist : dr Ali aljubran
surgeon dr Tarik Amin

My surgeon that just did my liver resection was Dr Charles Pilgrim, at Frankston hospital, Victoria, Australia

I went to the Mayo Clinic in Rochester, MN for testing and in hope of having a liver transplant for my perihilar CC in Dec 2013. I saw Dr. Greg Gores and his fellow Dr. Sumera Rizvi. I was luck enough to be able to have a resection instead of a transplant. My surgeon at Mayo was Dr. David Nagourney. I choose not to pursue adjuvant chemotherapy because I wasn’t convinced the benefits outweighed the risks so I have no oncologist. I continue to travel from VA to MN regularly for “surveillance”.

My surgical oncologist was Dr. Kaye Reid Lombardo at the Mayo Clinic in Rochester, MN.
My medical oncologist is Dr. Domingo Musabay at the Mayo Clinic in Rochester, MN.

JulieT

Our surgeon was Dr Myron Schwartz at Mount Sinai Medical Center, NY
He is amazing. He did an outstanding surgery on my father n law.

Oncologist 1st round with Andrew Jennis at Hackensck in North Jerset

Met today with some guru Dr Steven Schreibman at Morristown Medical Center. He’s been in the field a long time and we are very exited to work with him. He is going to doIN-VITRO DIAGNOSTIC TO GUIDE CHEMOTHERAPY SELECTION For solid tumors. This is or treatment of my Farther n laws recurrence

Thanks for all the info, Lainy. From what I could find on the internet, Dr. Choi seemed to be the best fit for Ron, for our area of the valley. Dr. Choi practices at 2 locations – one in Glendale and one in Avondale. He also has patients at Banner Boswell in Glendale. He specializes in Hepatic cancer. So you don’t think a cancer center is a good place to go?

Ron’s diagnosis is Adenocarcinoma. Primary CC with meta to the liver. He has had 2 chemo treatments of Gem/Cis and has done very well. We were told that the large tumor shrunk quite a bit after the 1st treatment and isn’t as “spongy”. Last week was an off week. This week he sees his ONC and has another treatment.

My mom had her whipple surgery at the University of Alberta hospital in Edmonton, Alberta Canada

Her surgeon is Dr. Norman Kneteman