adam
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Hello,
My wonderful Father passed away on March 9th. Truly a beautiful man. Thank you for your support. I , as many of you, will never be the same again.Adam
Hello, I have not been on site in long time. My father had multiple bile duct stents and then in past 2 months two duodenal stents. They are now clogged and we are told they can’t put another one in. A drainage tube/bag for bile had been put in. They offered another “procedure” to eliminate bag with internal external drain. It didn’t work. He has been throwing up bile in hospital and had not slept in a week. They put a ng (nasal gastric?) tube into his nose into his stomach to have the bile sucked out so he wouldn’t throw up. He had pulled it out in sleep last night. they said they can poke a hole in his stomach and add a bag for the food backed up in his stomach. Then they said cardiologist say its high risk due to his age and other conditions. He will no longer get nutrition. we now have decisions to make. He was first diagnosed with bile duct cancer and then later they changed it to pancreatic cancer. He is my best friend and greatest ally in this world. He had chemo and radiation and has been off it a long time due to weakness. He has suvived a long time and is fighting now.
Doc said nutrition via shots/iv is dangerous
doc said he can’t handle chemo
doc said 2nd radiation dose can’t be done.In my mind, if he gets radiation tumor may shrink a tiny bit and unblock duodenum which is still parially open. they won’t do it.
felt obligated to document this on this site for some reason.
My father is being treated at Memorial Sloan Kettering in New York by Dr. Eileen O’Reilly The most caring and professional folks I’ve ever encountered.
HI Sharonlee. It sounds like you mother is in good,capable medical hands. I am praying her tumor shrinks.
Adam
Low platelet counts are preventing chemo treatment. I heard that sesame oil may help. Has anyone tried this?
Gavin, I think they said that Gemcitibine works better than 5-FU. I read that Tarceva has better results but who knows? I will search this site as you and Lainy mentioned.
Thank you
It seems cancer in my father has not metastasized but spread close to an important blood vessel so whipple is not an option now. They will give him gemcitabine to try to kill some of it and re asses in 2 months. Starts tuesday. RWJ said it was CC but Sloan says pancreatic. Treatment the same. They said the 5fu wouldn’t help with this type of cancer. I don’t even know what it is but I asked. has gemcatabine alone helped anyone with this?
yes scan with contrast. Surgeon says its stage 1 or 2. suggests chemo and says no rush. Says not candidate for whipple now. this makes no sense to me. No word on cyberknife either. A consultation with Dr. Oreily will hopefully answer more questions. God Bless.
Hello,
We finally went to Sloan. RWJ said he needed bypass surgery no matter what but we found out from Dr. Oreily about a test that shows much more than a pet scan. At RWJ it felt like we were bothering everyone and they were cold. Sloan is better. Test includes dye I think but I can’t remember the name of it. He’ll go next week. If it shows cancer spread to important blood vessels then whipple is out for sure. He probably will not have this even if possible. They told him it was probably cancer 2 years ago. Nothing showed for all this time but last stent change a 3.5CM tumor. My dad is acting differently and it is a little tough. I am trying to be strong as you all appear to be.I think incurable because of his health. Diabetes, 2 of 3 arteries fully blocked and other things. Only thing is whipple which would probably be too much as he is 84 also. We shall see what petscan shows.
Hello, I have been off this site a while. My father’s unseen tumor is now about 3 cm. They found it last week when inserting metal b-duct stent. We are told it’s incurable. He has petscan apt. next Thursday and we will try to get him into sloan k asap. I heard they are caring there. Bypass surgery has been mentioned. He also has a lump on his leg that makes me fearful this has spread. He is so loving, caring , funny and great. You would love him if you met him. Sorry to be so wordy.
Marrions, thank you for the info and links. Lainy, thanks for the info as well. I am glad your Teddy had success with cyberknife. Regarding my dad, It could be scar tissue causing blockage but ca-ca19 level was high. I guess they need to know exactly what is causing it and where it is for cyberknife. They can’t see it on these cat/petscan machines. Thanks again!
AdamHi Marie,
Thanks for sharing your great news. My father is 83 years old and it is encouraging to hear a glass half full story of someone his age. God bless!
Adam
