brookerp
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brookerpSpectator
Welcome Katie – so glad you found us – even under these circumstances. I have found so much friendship, research, comfort on this site! My dad had CC, and went through the same chemo regime as you will. Good luck and keep that perky attitude!! Keep us up to date with what is going on!!
Smiles through tears,
PatsybrookerpSpectatorBarbara – as I read your post, it is as if you are telling my story. There is a special bond between a father and his daughter. I am not saying that other bonds are less important, please everyone, don’t interpret that way – there is just something special about being a Daddy’s girl. I think that was the hardest for my Daddy. He, like your Dad Barbara, was always a strong man, (at his funeral the preacher said Daddy was his John Wayne) he was always taking care of me – never failing. Then when this horrible disease took that from him and diminished his frame of 230 pounds to 175 pounds and unable to feed himself, it was hard for my Daddy to have his little girl take care of him. He would always tell me he didn’t know what he would do without me – all the while I am thinking, what am I going to do without you! When I called Hospice for Daddy, I felt like I was giving up on him. But the burden had become to much for me to bear alone…..they were such a huge, positive support. I also felt like you Barbara, and didn’t want Daddy to stay medicated so that he could talk to us while at Hospice in those last hours…..but bless his heart, the pain was unbearable, so they kept him medicated until he passed. Daddy passed away peacefully January 14 of this year with my brother, my husband and myself by his side. When Daddy took his last breath, there was a smile on his face and I know at that moment he saw Jesus and his mother, who he had missed so much since she had passed away……that is the comfort I have Barbara, no more pain for Daddy, no more dreaded chemo treatments, no more dreaded news from the oncologist……..just peace.
I hope my words have not made you sadder than you are – I just want you to know I am sending love and peace to you and your family during this precious time and it is so comforting to know that other people have felt the same pain as I have as this horrible cancer took away my one and only Daddy. Like someone said before, it is awful that this cancer brought us together, I wish I never had to post on this site…..but I am so thankful for each of you – your friendship has kept me going these last 6 weeks since losing my Daddy…..every kind word and prayer…..Smiling through tears,
PatsybrookerpSpectatorI agree Lainy – we live in Florida and the VA that my daddy went to was in Gainesville which is affiliated with Shands at the University of Florida. Daddy’s oncologist worked at the VA and Shands – I was always certain that whatever treatment Daddy received was on the “cutting edge” because of the affiliation with Shands. BUT this is very interesting with the number to VETS and CC……..I am going to contact my Daddy’s oncologist and be nosy to see how many cases he has seen.
brookerpSpectatorTess – thanks so much for the info and the research. My dad was in the Korean Conflict and developed CC 8/07 and passed away January 14 of this year. Very, very interesting……..
And Joyce – I was like you before Daddy passed away, I was obsessed with reading/researching about CC – it was my way of contributing to help find a cure or REASON why my Daddy had this dreadful cancer.Smiles through tears,
PatsybrookerpSpectatorJoyce – bless your heart – I know exactly what you mean about your husband’s golf clubs. We have been packing up some of my Daddy’s things and I am taking great care to make my 3 nieces a keepsake of their Papa. My Daddy was a very simple man, a pair of Levi’s, snap denim shirt, New Balance tennis shoes and his beloved Florida Gator’s caps. So I am putting together a memory box for each of my nieces with things of their Papa. He kept every card, paper clipping and drawing his beloved Granddaughter’s ever made him – so I put all of those in their designated box – along with one of Papa’s outfits. I came across the cap Daddy wore the last time I took him for a paracentesis. It was full of strands of Daddy’s hair and I was oh so careful to put it in a ziplock bag for safe keeping. I just sat, held it, cried and felt so close to my Daddy. Even as I type this I cry, thinking about that day, taking him to the hospital and he was so weak, he couldn’t even walk. With each paracentesis they would remove between 11 to 15 liters, yes liters of fluid…..he was so miserable. I knew it was close to the end from the research I had done and the postings on this site, but I didn’t want to face it. Those memories I hold very dear and remind myself that Daddy is truly better off. He was not going to get better from this dreaded, uncaring cancer and now he is not suffering………see how I ramble – and yes that would bring anybody down.
I live in northern Florida where today we will have temps up to 80, severe thunderstorms and highs tomorrow in the low 50’s (which for us is a cold front) We did, however, mow this week, weeds not grass!!! Janet to live close to a rainforest WOW what an experience. I am a teacher and my students love it when we learn about the rainforest!!!! How lucky you are!!!
Thanks so much Darla, Joyce and Janet for letting me vent and understanding the emptiness we all share. It does help so much to have others to talk to and I do wish we could meet over a cup of coffe and cry!!!
Sending hugs, peace and days filled with happy memories to each of you.
Love –
Smiles through tears,
PatsybrookerpSpectatorJoyce, Janet and Darla – I hope you don’t mind if I jump in here too. I have been reading your posts all week and wanted to jump in and talk. A lot of times I also feel that if I post when others are talking about their symptoms, I will be a downer. A lot of the things I read about are things that happen to my Daddy during his battle. I want to comment on things that happened to him during paracentesis, his last days or his Hospice stay, but I don’t want to bring others down. One thing I have learned about CC is that it is different with everyone, with a common threads. I have also started hanging out on the grief management posts because I feel comfortable here.
My Daddy passed away on January 14 and last Thursday, I took my mom for a thyroid biopsy – I have just about lost it every day waiting for the results. Today, we found out it is benign and they will check the nodules again in 3 months.
Janet, I know how overwhelming this all is, especially with your sister’s diagnosis. I am so sorry you have such a heavy burden right now. Please know my prayers go out to you for comfort and peace……thanks for letting me vent on your post. Somedays coming to this site is the only peace I have – even when I cry the whole time, it is a good cry to know others feel the same emptiness and sadness I do.
Take care.
Smiles through tears,
PatsyFebruary 25, 2009 at 11:21 pm in reply to: the journey continues……….this post will be a long one. #26612brookerpSpectatorPam – thank you for sharing your most initimate thoughts during this journey. I am with Lainy as tears flow and I think back to the process of Hospice, alertness and hulicinations with my dad just 6 weeks ago. What a precious time for you, take it all in, these memories, the sad ones and the sweet ones will be precious, very precious. My heart goes out to you during this time. Prayers and hugs to you and your family during this time.
Smiles through tears,
PatsybrookerpSpectatorSteph – I am so sorry….everyone before me is right – this is the place to come and vent. Heather said it perfectly – I come here daily, also, like an addict, because I know there are others – we are connected by this horrible disease that treats everyone differently. The days after my Daddy’s funeral were a blur – he passed away January 14 of this year. We buried him on a Saturday and I went back to work that Thursday. I told myself it was because I needed to think of something else besides thank you notes and finalizing everything. But sometimes now I wish I had taken more time to just deal with the hurt and the grief. I say this to you because we all grieve differently – take time to cry, sob and scream if you need to. You are a wonderful daughter and your dad is lucky to have you, but remember to take care of the caregiver – yourself!!!! Let your mind be flooded with the wonderful memories of your mother!!!
Sending hugs your way to help you through this time.Smiles through Tears,
PatsybrookerpSpectatorValerie – I am so sorry….when my Daddy was in Hospice, I would count the second between his breaths. When it got to be 45 seconds, my niece and I would look at each other – is this it? then Daddy would gasp for air. I know exactly what you are saying Teresa – my Daddy passed away January 14, he was only at Hospice 2 nights and it does hurt more than you can ever tell anyone. Stay strong Valerie and cherish every, every moment you have with Jeff, as I know you do.
My thoughts and prayers are with you as you go through this part of the journey. JeffG has helped me so much during my Daddy’s battle for the last 18 months, through Jeff’s posts and comments. I pray for peace and comfort for both of you.
Smiles through tears,
PatsybrookerpSpectatorStephanie – I am so sorry for your loss. I lost my dad January 14 of this year and he also was in a coma like state toward the end for about 10 hours. It was very hard to watch, even though the medications made him “peaceful” he was gasping for air the whole time. The only comfort that I have is that he does not have to live with this terrible cancer anymore. He fought a courageous battle for 18 months. My heart goes out to you! Hold on to the wonderful memories of your mom~ we can do this!
Smiles through tears,
PatsybrookerpSpectatorRalf – I ditto what Darla and Pam said. My Daddy was diagnosed in 8/07 and passed away 1/14/09. I found this site in September 07 and there is a wealth of information here. I just clicked on everything, read and researched. This horrible cancer is not predictable at all, however, you have found a wonderful place to come for comfort and friendship!
Good luck – and I send warm wishes to you and Fiona.
Smiles through tears,
PatsybrookerpSpectatorPam – bless your heart, my heart is full of emotion as I read your post. My dad developed ascites the end of November and we began paracentesis the first week of December. This really helped a lot……I also called Hospice the last week of December. The day I made that decision was filled with mixed emotion. The first emotion was, I felt like I was giving up on my Daddy. The second emotion was, relief….I knew I didn’t have to do it by myself anymore. I have an older brother, but he was an emotional wreck when it came to caring for my Dad. My dad passed away peacefully on January 14 at Hospice – I’m so glad I called them ahead of time to make all the arrangements so the transition was easy. YES, it is hard to be the parent and make the decisions….hugs to you and prayers for strength as you go through this time. Know that you are doing the best for both your parents – and yourself. Please keep us posted and let us know how you are.
Smiles through tears,
PatsybrookerpSpectatorI wanted to add this poem. The day Daddy died, I searched and searched for the perfect poem to put in the obituary for Daddy. I came to this site and found many comforting words. I am not sure if I found this particular poem on this site or not. If I did, THANK YOU to the person who originally posted. It has given my family great comfort, it is just like my Daddy is saying these words to us every time we read it. This is exactly what my Daddy would say to us to comfort us while we grieve and miss him dearly. I pray it touches your heart and comforts you as it comforts me.
He is Gone
You can shed tears that he is gone,
Or you can smile because he lived,
You can close your eyes and pray that he will come back,
Or you can open your eyes and see all that he has left.Your heart can be empty because you can’t see him
Or you can be full of the love that you shared,
You can turn your back on tomorrow and live yesterday,
Or you can be happy for tomorrow because of yesterday.You can remember him and only that he is gone
Or you can cherish his memory and let it live on,
You can cry and close your mind, be empty and turn your back,
Or you can do what he would want:
Smile, open your eyes, love and go on.brookerpSpectatorYesterday was a month since my sweet Daddy took his last breath. He was also in care of Hospice and I echo what Hopeandgrace wrote. They made him so comfortable through the last moments of this terrible cancer. Wednesday morning, January 14 around 11:00, the dr came in and told us the end was near. Daddy’s was only breathing 4 breaths per minute, but was comfortable to not gasping for air as he has been the night before. This ugly, violent cancer had moved into both his lungs and he fought for air before we moved him to Hospice Monday night. At 11:20, Daddy breathed 3 breaths about 75 seconds apart, I was counting with each breath. My brother, my husband and myself were standing by Daddy’s bedside, holding his hands and with his last breath, my Daddy smiled and he was gone. I know that Daddy had just seen the most beautiful sight, His Savior and His Mother were waiting for him. They took his hand and guided him into Heaven’s Gates. We cried selfish tears at that moment, but knowing, we did not want him to come back and go through the battle he had gone through for the last 15 months.
Thank you HopeandGrace and everyone else, for your touching posts and for reminding me of the Peace that only God can give during this time of missing my Daddy. It was not goodbye, just see you in a little while. Every day I feel my Daddy’s loving arms around me, guiding me through the rest of this earthly journey. I miss him dearly, but I know he is in a far better place than this, smiling down as I type this, comforting me not to cry, but SMILE, OPEN YOUR EYES, LOVE AND GO ON.Smiling through tears,
PatsybrookerpSpectatorThank you Marion – I can feel the warmth in your words. I googled up at the top and found some info. I am going to ask the dr tomorrow if they have found cancer cells in previous taps – this has not been mentioned. Our hospice nurse says from what she has seen, my dad could have about a month. I guess I’m just grasping at everything and anything. My husband tells me not to try and put a calendar on it, but enjoy what we have and that is what I need to do.
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