carol_a_b
Forum Replies Created
-
Posts
-
Hi Kris
I am based in Leeds I have been under Professor Lodge and he has told me he cannot/will not do any more surgery……He is referring me to someone in London at the Marsden called Professor Cunningham who is a specialist oncologist so see if he can offer me any treatment! I am not going to give up on this, it may take me in the end but I am going to and intend to get as much help as I can possibly get and I, don’t care what it costs our lives are to precious for it to beat us all!! I will always remain positive and I am going to do what I can to get better!
Hello
I am also on cisplatin and gemzar! I can’t really complain about the side effects there are patients far worse than myself……….??!! I am having chemo as a preventative measure as my surgeon prof Lodge was happy he took everything away by operation. I have have my first course of treatment and start again on Monday.
Really my only side effects are the metallic taste in my mouth that also makes me feel a little sick but I can cope with this. I suppose its a small price to pay?
I had a bad day where I could not go to the toilet as the anti sickness drugs affected my bowel movement but I am ok now thank god! lol
I wonder how many survivors of this disease there are out there???
My cc did spread to my lymph nodes this was a worrying time but I am extremely hopeful for the future? I am lucky to be in the position I am in right now.
I have the most amazing oncologist and liver surgeon I cannot praise them all enough for working together and getting me the best treatments available right now.
I wish you all the luck in the world. Stay positive.
xx
CarolLainy
I would also like to know the answer to the above as I have just been diagnosed with a growth on one of my lymph nodes. I am having it operated on in 3 weeks. I wont go on as I have left a post on my own question page…..I best wishes go out to you both… It is strange that there are so many different kinds of treatments from country to country???
x
carolLainy
I would also like to know the answer to the above as I have just been diagnosed with a growth on one of my lymph nodes. I am having it operated on in 3 weeks. I wont go on as I have left a post on my own question page…..I best wishes go out to you both… It is strange that there are so many different kinds of treatments from country to country???
x
carolI have just had confirmation through a pet ct scan that there is a growth on one of my lymph nodes I am having it removed on 14 April 2009. The surgery I am having is called paraaortic lymphadenectomy? I have been on the internet to find out more and its quite scary? I do not know what I wrong with me and I am not getting really scared? My surgeon has told me he is still not sure what it is so wants to remove it and do a biopsy but has told me if its cancerous I will need to have a course of chemo this time! There are so many things this could be? Why do we have to go through this? I am feeling a little sorry for myself this time around although normally I am very positive I am struggling at this time? I have never smoked or done drugs or abused my body! Oh well what will be will be – but one things for sure I am not going to let this beat me? Life is so unfair sometimes? I have also asked why me? But no-one can answer this question?
Hi Tom
My heart goes out to you and your family…………….I can only echo the thoughts of all the other messages sent to you?
I cannot recommend Prof Lodge enough at St James for any help or advice he can give you? He is my specialist and I have recently been to see him when they discovered a small growth on one of my lymph nodes?? I have a PET scan this Thursday to find out what it is.
Please keep smiling and stay strong! Please also let us know how you are?
Good luck.Carol
Hello Lainy
I appreciate your kind words! I have not mentioned the pain in my back yet as it is recent pain and I am due to see her in 2 weeks so I will do then……I am only about 7 months after my operation so I imagine a lot of the pain I am experiencing is due to my body gettin better again?
I will be discussing this with my consultant as well?
I am having trouble coping with the after effects more than the diagnosis itself? Strange but I think its the not knowing?????
You are the first person to contact me so far I am sure I will have others helping me out as well.
I also understand I am young to have had the disease 39???
thank you again Lainy………… by the way I do have a very positive attitude I just need a helping hand now and again!!
xx
