darla
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Margaret,
Yes, it is all so very hard. Many of us have felt as you do. It is hard not to.
Hang in there Margaret. We are all here to give you strength & support. My thoughts & prayers are with you & TomLove & Hugs,
DarlaWelcome Kate,
Glad you decided to post. I don’t know the answer to your questions but there are several UK members and I am sure you will be hearing from some of them shortly. None of us want to be here, but all of us are happy to be part of this wonderful community. Yes, it is comforting. Keep coming back.
Darla
Hello and welcome to both you & Kelly. I am sorry you have a need to be here, but glad you found us. You have found the best place for help & support for CC. I don’t have the answers you need, but I am sure others will be posting soon. Try searching the site, as there are some positive things happening and some success stories. This is a rare cancer that seems to treat everyone differently. Mayo in Rochester is a good place to start. I am sure many on here would recommend getting an opinion from there. Staying positive and keeping a good attitude will help you in fighting this disease. This is a great site with great people all ready and willing to do what they can to help and support you.
Hang in there & keep posting. We are all here for you.
Darla
Tiffany,
I agree, write down all of your questions and concerns. Then write down the answers. It is so overwhelming you may not remember everything that is said. You appear to be a strong person and great advocate for your Mom, but help and support is always good. Remember too that you now have a second family right here willing to help and support you all the way.
Take care and keep us posted.
Darla
TJ,
I agree with everything Pam has said and yes, controlling her pain is most important. She deserves to be comfortable. There is no excuse for this.
I am hoping you can advocate for her and get things in order.We are all here for you. Take care of yourself, too. Keep in touch and let us know how things are progressing.
You and your Mom are in my thoughts & prayers.
Love & Hugs,
DarlaDebby,
My most sincere sympathies go out to you and your family. No words can ease the pain. Take comfort knowing that he is now in a better place and no longer suffering. He will be in your heart and memories forever. He will always be near you.
My thoughts and prayers are with you and your family.
Love & Hugs,
Darla
Hi Susanne,
My husband was 62 and healthy, or so we thought. He died less Than 2 months after his first symptoms. Unfortunately, this disease sneaks up on you and is often too far advanced by the time it is diagnoised. There are many on this site with similar experiences. There are also many who are successfully fighting and doing well. CC is not fair and treats everyone differently. What works for one doesn’t for another.
I am so sorry for your loss and I truely understand what you are going through. It comes out of no where and just turns your worls up side down. Try to take comfort in the fact that your Dad is no longer suffering and is now in a better place and at peace. He will be with you forever in your heart and memories.
Darla
Lainy,
That sounds like a plan! I think you should go for it!
If Jim were still here, I would consider going with you, but then again, if Jim were still with me I probably would never have met all of you wonderful people. I guess there is some good to be found in even the hardest of times.Jeff,
We tried condos, all inclusives, etc. but cruising was the best. A cruise to benefit the CC foundation is also a good plan! Tell Marc to take it easy and that goes for you too!Darla
WOW! A cruise expert and a travel consultant. I’m impressed.
Jim and I went on our first cruise in the 80’s as was suggested to us by our travel agent at the time. We were not sure about it, but loved it and went on several more through the years. The ones we enjoyed the most were the Caribbean ones. Our favorites were a 2 week Royal Caribbean one and a one week Windjammer Barefoot Cruise. I am so glad that we did all those things as I now have a lot of great memories.So anyway, back to business. I also think that sounds like a good plan. I think you two are handling things just fine. I will be hoping for the best results with the chemo. Take care both of you and keep on doing what you are doing. As Lainy says “Attitude is Everything” and it sure does seem to be working for her and Teddy.
Keep us posted as to how things are going.
Darla
Hi ejhern,
Yes, many have reported itching as a symptom of CC. If you use the search function you should find many posts on this. Although my welcome is a little late coming, it is sincere. I am sorry you have to be part of this group, but glad you have found it as it is the best place to get answers and also support and encouragement.
Good luck with the scan in March. I will be hoping for the best results. Keep coming back and let us know how you are doing.
Darla
Hi Jeff,
I have to agree with what everyone else has said. I think what each of you are feeling and how you are acting and reacting are all normal under the circumstances. Just take it one day at a time. You will get by and we are all here to lean on when you need us.
My best to you both.
Darla
Hi Jeff,
You are so right, it is a great day. Glad to hear that things are starting to come together for you & Marc. Just remember the caregiver’s bill of rights and take care of yourself too so that you can be a strong, supportive advocate for Marc.
My best wishes to both of you.
Darla
Dear Jeff,
I am glad you found this site, but sorry you needed to. Everyone here knows exactly what you two are going through and how you are feeling as we have all been there. You have come to the right place for help, support, advice and anything else you need. The people here are all so helpful and caring. It is like having another family. All here for each other. Please keep coming back and let us know how Marc is doing. This is the best site for getting help and information on CC. Do some searching and reading and ask whatever you want. There is always someone who can answer your concerns. And sometimes you just need to vent. We are here to listen, too.
Take care Jeff and try to be cautiously optimistic. I will be thinking of you and Marc and hoping for the best.
Darla
Oh Debby,
I am so sorry for what you are all going through right now.
My post above to Carol (#4) would be the same to you. As you said, you are now where she was then. I too know what it is like and yes, it is so very hard no matter if it is fast or slow. No one but us who have walked this path can truely understand. We are all here for you. My heart goes out to you and your family. Know that I am thinking of you and wishing you strength and courage to carry on.
With Love & Hugs,
DarlaMargaret,
I too am sorry to hear what you and Tom have been expreriencing and can totally sympathize as Jim & had a lot of those same experiences. At the time I was only concerned for Jim’s well being, but did do my share of registering complaints where warranted after the fact. Yes, when it rains it pours, but come here & vent all you want. We all understand and are willing to listen. My thoughts & prayers are with the two of you. I will be hoping to hear better news from you soon.
Lots of hugs & love for both of you.
Darla
