darla

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Viewing 15 posts - 1,951 through 1,965 (of 2,618 total)
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  • in reply to: what are the known survival rates of CC at five years? #30436
    darla
    Spectator

    Barb, You are certainly dealing with a lot. I admire your strength and attitude. I can see why you can’t get here often, but know that we are all here ready & willing to lend an ear when you need us. Even if it is just to vent a bit.

    Heather, I can’t add much to all of the great advice the others have already given, so I just want you to know that I am thinking of you and your sister & hoping for the best.

    Love & Hugs to All,
    Darla

    in reply to: Anthony died on 30th July in a London Hospice #22013
    darla
    Spectator

    Janet,

    The cider is pure fresh apple cider. Tastes great. I do think the weather and length of days have an affect on us. I think we are all still fragile and more sensitive to all of these things. Let’s face it. What we are going through is probably the hardest thing we have ever had to face or will go through in our lifetime. Add in all of the other things we are facing and variables in day to day life and I am amazed that we are all doing as well as we are. For me the help & support I get from all of you here has made a big difference.

    Janet, you have almost made it through your winter and I am already looking at the coming fall and another winter here. Hopefully this one won’t be as bad as the past two years have been. None of that seemed to matter so much before. It was all so much easier when we had our husbands here to share it all with, wasn’t it?

    Everyone try to have a nice weekend. Keep busy and stay in touch. I am thinking of all of you and hoping you are all doing OK.

    Love & Hugs,
    Darla

    in reply to: Anthony died on 30th July in a London Hospice #22011
    darla
    Spectator

    Hi All,

    Joyce, the skunk thing sounds like more excitement than I would wish on anyone! A diversion I guess, but a messy one that you could have done without. I hope Flash is back to normal and getting over the trauma of it all!

    Janet, I like you have a lot of mixed feelings about going places & getting away, both good & bad. I have done a few little things on my own. Gone for coffee or breakfast, but it is very hard, as I see all these couples my age and wonder why I am here alone & what is the point. We did everything together. It is hard to imagine going away alone and doing everything for yourself, so much of it was done by our husbands and shared with them. Even shopping alone is sometimes difficult. I guess none of us paid much attention before, but now it seems like all you see is the older couples enjoying the life you used to have & now have lost. This is strange, but simple. Yesterday I went out to an orchard & bought some fresh cider and then to a farmer’s market where I purchased a beautiful bouqet of flowers (and a piece of baklava :) ). Also a trip to the beautician for a cut & color. It filled the day and gave me a small lift atleast for a moment or two.

    I am glad that your winter is coming to an end. That did seem to be the hardest time of the year for me. With the short days & cold and snow. Atleast snow is one thing you can be glad you don’t have to deal with! Our summer here has not been too great. The past few days have finally warmed up, but now it is almost over. I am hoping it may last a bit into the Fall since it started so late.

    Pauline, I hope things are going OK in Rome.

    Everyone take care. I am thinking of all of you.

    Love to All,
    Darla

    in reply to: Feeling Alone #30621
    darla
    Spectator

    Dear Amy,

    I know how you are feeling & what you are going through. I have gone through all of the same things you described since losing my husband to this awful disease. Unfortunately, I guess it is all normal and part of the grieving process that we are being forced to endure. So many of us have experienced the same things as you are now.

    My husband was only ill for a short time also and I think it is so much harder to accept that a person can go from healthy to dying in such a short time. It all seems so surreal. We can just be greatful that they did not have to suffer for a long time and that now they are at peace & no longer in pain.

    I have to believe that there is something else beyond this life and that our loved ones are still with us in spirit and we will be with them again one day.

    Please continue to come here and share your feelings. We all understand as no one who has not lost a loved one to this horrible disease can. We are all here to help & support one another. Come back often, even if it is just to vent your feelings.

    Now you need to take care of yourself. You will get through this. We all will, together, one day at a time.

    Love & Hugs,
    Darla

    in reply to: Anthony died on 30th July in a London Hospice #22008
    darla
    Spectator

    Dear Pauline,

    I know exactly how you are feeling. Right now with the shop & all the health issues with my parents it really isn’t easy for me to get away, but even so, going places we have been is really not so comforting. It is sad & lonely and as you said, everyone seems to have someone. Unfortunately, staying home in bed is not the answer either. I too wonder if life will ever be worth living again, but we can only hope that in time it will become a bit easier. All we can do is keep busy & keep trying our best to get by.

    Lots of Love & Hugs,
    Darla

    in reply to: new and need advice #30615
    darla
    Spectator

    Beth,

    I too want to welcome you and assure you that you are in good hands. You will find the most loving, caring & knowledgable people here to help and support you in any way we can. We all know & understand what you are going through.

    I am thinking of you and hoping for the best results for your husband.

    Love & Hugs,
    Darla

    in reply to: Anthony died on 30th July in a London Hospice #22006
    darla
    Spectator

    Hi All,

    I hope everyone is doing OK. I think of all of you & how things are going for everyone. It is such a hard time for all of us, isn’t it? I am struggling with the memories of the last weeks before Jim passed on. I too am just trying to get by one day at a time. I try to keep busy and to remember the good times we had, but all the rest keeps pushing in.

    Janet, how are things going for your sister? It is so hard to have to face all of these things along with dealing with the grief of having lost our life partner and no longer having them here to lean on for strength, comfort & support.

    Atleast we have this site and all the wonderful people here to share our thoughts and feelings with. Knowing there are others out there sharing our pain & sorrow that truely understand what we are all going through is comforting.

    Everyone take care & keep on trying to get by as best you can. For now that is about all we can do.

    Love & Hugs,
    Darla

    in reply to: Treatment Centers/Physicians #29900
    darla
    Spectator

    I have not had personal experience with these but after some research, these two come up often as highly recommended when dealing with CC:

    Barnes Jewish Hospital
    Washington University
    St. Louis, MO
    http://www.barnesjewish.org/

    Mayo Clinic
    Rocheter, MN
    http://www.mayoclinic.org

    Darla

    in reply to: New member with an old story :) #30529
    darla
    Spectator

    Hi,

    I really don’t have much to add as Marion has said it all so well, but I do want to thank you for sharing your story and welcome you to the site. I too am very greatful to those of you that created it & everyone here that contributes so much to keep it going.

    Darla

    in reply to: Elevated CA 19-9 in setting of PSC #30551
    darla
    Spectator

    Rick,

    Welcome to the site. I don’t have the answers for you, but you have come to the right place and I am sure someone will be here soon that can give you some good advice. I am so sorry that you have a need to be here, but this is the best place to be for advice & support concerning this awful, relatively rare type of cancer. There are a lot of wonderful people here all willing to help when & where they can.

    Please let us know how things are going for you. I can only suggest being cautiously optimistic. As one of the great people on here always says, “attitude is everything”. You have so much to live for.

    I will be hoping for the best for you & your family.

    Darla

    in reply to: 11/2 yrs later #29821
    darla
    Spectator

    Marilyn,

    I know just how you feel. I am the same age as you and it will be one year for me next month. We were togther 45 years and married almost 42. I just can’t see myself every being with anyone but Jim. I miss him more every day. Some days it feels like it all just happened and other days it seems like I have been alone for so long. It is a sad & lonely life. I do try to keep busy, but that doesn’t always work. He is always on my mind.

    I am thinking of you & all the others here who have lost their loved ones to this horrible disease. We all know what it is like and how it feels. I think that the strength & support we can give to each other is invaluable. Together we can get through this one day at a time.

    With Love & Hugs,
    Darla

    in reply to: Ryan #30524
    darla
    Spectator

    What a sad story. This horrific disease is just unrelenting. You just have to wonder why. It is all so unfair. My sympathy, thoughts & prayers are with the entire family.

    Darla

    in reply to: Almost the end now #30500
    darla
    Spectator

    Dear Deb,

    You & your family have my deepest sympathy. Try to take comfort in knowing that your Dad is no longer in pain or suffering from this awful disease. He is now at peace. He will always be with you in your heart & memories. I will keep you & your family in my thoughts & prayers during this sad & trying time.

    Love & Hugs,
    Darla

    in reply to: wanted to update everyone #30519
    darla
    Spectator

    Dear Carol,

    I too am so sorry to hear of Dennie’s passing. You have my deepest sympathy. It sounds as if his passing was peaceful, with you by his side. Take comfort in knowing that he is now in a better place & no longer suffering. He will be with you forever in your heart & memories. As Janet said, there is a lot of love & support on this site. Know that we are here for you. The help & support of the others on this site is remarkable & has helped me to stay strong & get by one day at a time. My thoughts & prayers are with you & your family.

    Love & Hugs,
    Darla

    in reply to: Stage 4 extrahepatic CC #30491
    darla
    Spectator

    Dear Nancy,

    I am so sorry for your loss. You were so lucky to have atleast had that last month to spend together. We often hear that life is too short, but no one ever believes anything like this will happen to them. I too wish I could have back the moments I was too busy doing other things. I can only hope that others will take your message to heart.

    Love & Hugs,

    Darla

Viewing 15 posts - 1,951 through 1,965 (of 2,618 total)