debnorcal
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Tony,
I am so sorry to hear that your wife Karen has passed. My thoughts and prayers are with you and your family at this difficult time.Debbie
Lorraine,
I am so very sorry for your loss. Right now I have no words to describe the
sadness I feel over Donnie’s life being cut short by this terrible disease. Please know he and you are in my thoughts.Debbie
Kris,
I am so sorry that you are back in the hospital. We experienced the same frustration when everything shut down for the weekend. Hopefully, your IR team will have a plan for you on Tuesday.
Hang in there
Debbie
A huge thank you to all of you for attending this conference and reporting the latest information to our group. Your generosity is so very much appreciated!
Debbie
Dear Dayghter,
I am also sorry to hear that your dad’s health is deteriorating and I understand how difficult it is for loved ones to know the end of life is near but not know the timing or what they will experience. We recently lost my aunt to a different cancer. Her body was showing definite signs of shutting down yet she lingered in and out of consciousness and had varying energy levels for four weeks! It was very stressful on her daughters. Even when patients are not lucid, I believe they can feel our presence in the room and holding hands and talking to them, even with no response, brings them comfort. I have heard many reports of dying pTients experiencing visits from deceased loved ones days or hours before they pass. A week before she passed, my aunt reported several visits from her husband and mom. This brought her great comfort. I’m sure not everyone experiences this – probably ties into individual belief systems, I hope this is helpful.
DebbieMatt, I am sorry to hear about your recent elevated LFT’s. Hopefully, just a temporary blip that will resolve quickly. Hope you are feeling well otherwise. Mike and I think of you often!
Debbie
Hi Julie,
Welcome to our amazing group of caring people from around the world. I’m so sorry that you have been dealing with your health issues for some time, but glad you joined us, as this group is comprised of many wonderfully caring and supportive people with a diverse range of cc experience. We are here to assist in guiding you through these rough waters.
You didn’t mention where you are being treated, but I would suggest that at a minimum, you work with a top center with much cc experience. Even if your current provider is in that category. I would suggest you get a second opinion from another top center. You mention reading of a number of patients defying the odds. I think some of that may be due to “lucky” tumor biology, but I would venture to guess that the majority of successful patients are those that refuse to accept their doctor’s palliative approach and they seek expert opinions until they find the one willing to treat aggressively. It can seem overwhelming, but as you know, this is your life and you have much to fight and live for. We are here to support you. All the best to you.
Debbie
Tiah,
So glad to hear that the procedure went well and your mom is feeling well and in good spirits. Hope she has a lovely time celebrating her upcoming milestone birthday!
Pat,
I am so sorry for you and your friend. It is never easy when this disease takes a bad turn. You will both be in my thoughts.
Debbie
Amy,
I am so very sorry for your loss. This disease struck your husband so hard an so fast, giving you very little time to process what was happening. I can’t even imagine how difficult losing your husband this way is for you. I hope that knowing your husband didn’t suffer much brings you some comfort. We are here to support you in any way we can.
In response to your question, I have never heard of these drugs being tied to risk factors for CC. Perhaps others can comment on this.
You have my deepest sympathy,
Debbie
Alejandro,
The decline in AFP is encouraging, good for you!
I have never heard of the supplement you mentioned. I would check it out carefully before taking anything though. Maybe others or your doctor have heard of it.
Debbie
Hello Lynn, and welcome to our group. Please don’t apologize for any negativity. You are confronted with a shocking, life altering medical situation and that is hard. We understand what you are going through and are here for you, so please, vent away whenever you need to.
I was in a very similar situation when my husband first became ill in early 2014. At first it was frightening to see his health deteriorate so quickly. Before diagnosis, he also bled out following an ERCP and almost didn’t pull through, then he had a stroke in the hospital. Then, after a diagnosis was made, it was just so incredibly sad. I don’t really have any special advice for you. I just tried to focus on the issue at hand and take each day and each medical issue one at a time, doing the best I could at that time. I refused to give up, tried to remain strong and positive for my husband, and tried to find the best doctors and treatments for him. We did find an amazing medical team and my husband was ultimately able to have a successful surgery (after an aborted first attempt by a different, less experienced surgeon). So far he is doing very well. It was heartbreaking to watch him go through all of this, and some days I went off for a drive and a good cry, but I tried to attend to all of my husband’s needs to make sure he felt loved and cared for. This is an incredibly difficult road, but we do get through it. Please let us know how we can support you.
Debbie
