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  • in reply to: Treatment Centers/Physicians #29892
    dianne
    Participant

    My treatment center in Tampa, FL, is H. Lee Moffitt Cancer Center & Research Institute (aka Moffitt).

    My surgeon is Mokenge (Mo) Malafa, Division Chief, Gastrointestinal Malignancies

    My oncologist is Jonathan Strosberg

    My radiologists are Sarah Hoffe and Michael Yu

    http://www.moffitt.org/

    in reply to: New to everything! #29746
    dianne
    Participant

    Elizabeth, you’re lucky to have found this site so early after your diagnosis and resection. It took me 2-1/2 years to find it. My procedure was very similar to yours so to a large degree, I know what you’ve been through and possibly what’s ahead for you. My surgeon warned me not spend time on the internet researching cc because most of what you read isn’t good. Other cancers have their support groups and websites, but our type is so rare, very few have heard of it. However, I’ve found this site extremely helpful by providing such positive support and information. I also told my surgeon about this site in hopes he’ll share with other patients so they, too, will know they’re not alone in this battle.

    Please know you’re not alone on this journey. I look forward to reading more about your successful venture into the world of cc. God bless.

    Dianne

    in reply to: Thank God I finally found a site for my type of cancer #30380
    dianne
    Participant

    I’ve spent the past hour or so familiarizing myself with the posts on this site. I’ve begun to understand the magnitude of this rare little disease, and was shocked to learn this was Walter Peyton’s cancer — who knew?

    Although I’ve had several surgeries (3) and rediagnoses, I will conquer this critter. On 7/30/09 I will learn the results of my latest PET/CT scans & blood work to see if the tiny malignant lymph node outside my aorta has grown or stagnated. Moffitt Cancer Center’s GI tumor board will discuss my scans to determine my next course of action. Dr. Mo Malafa is my GI surgeon and Dr. Jonathan Strosberg is my oncologist; both are in the GI clinic at H. Lee Moffitt Cancer Center & Research Institute in Tampa, FL.

    Gemzar and 5-FU, which were well tolerated, had little effect on my tumors. Radiation was more effective, but didn’t obliterate the little rascal. Possibly the chemo kept it from spreading. This site has provided some treatment options for discussion with my doctors.

    Thanks to all who take the time to give hope and guidance to those of us living with this disease. I especially like all the positive phrases emphasizing good attitudes and outlooks.

    Dianne

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