dinawest
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Hi
Dianne I am sorry to hear about your husband. It is interesting that his doctors drain him, since the doc here said they wouldn’t – I will definitely mention the paracentesis when I see him today. But i think that the health system here tends to be less interventionist than in the states. perhaps I can push for having it done at least once so she is more comfortable for the journey home.
Marion I agree it seems daft to let her out no better than she got in. I have told them about her being from abroad, and they seemed to suggest that we should make that trip as soon as possible.
I hope I will be wiser after I meet with the doctor. Thanks for your responses they are really helpful.
DinaHi mark and Lainy
Thanks for your replies. I did take her to the hospital, and after 30 hours, 2 X-rays and a ct scan, they’ve turned around and said there is nothing they can do. They have explained that her very distended abdomen is caused by fluids which are the result of lesions in the small intestines. Additionally there are lesions throughout the peritoneal cavity. I only got a brief resume from the doctor about it, and am going to get the complete picture tomorrow morning. But he said if they drain the fluid it will only come back tomorrow, and they might introduce an infection. she was in so much misery when I brought her into the hospital (by ambulance) that the idea of bringing her back home in no better state, and then finding a way to fly her back to Israel, is daunting to say the least. I was so hoping they could at least relieve her immediate pain and discomfort.Is this kind of end a common one? I mean the horrible bowel problems and the pain and the obstruction and the distension? Is there anything palliative that we can do for her? How urgent is it for me to get her back home?
I realise this is clearly the beginning of the end, but if others have had the misfortune to see this kind of ending, it would be useful for me to know what the next few weeks have in store.
Thanks
DinaDear Amy
This is exactly what is happening to me today. In for op, very optimistic, only to be told one hour in that it is inoperable and that there are nodules all over abdomen
Did they not suggest chemo at all to you, to halt the progress of the disease and maybe buy some time?
Dina
Thanks Lainy. It’s obviously so disappointing and really a shock, we didn’t allow ourselves to go too far in considering this kind of scenario.
Does this even qualify as a CC?
I feel like I now need to learn about a whole new disease…
-dina
Thanks everyone for these wonderful replies. Gavin, I watched the webinar with dr Choti which was really instructive and interesting, and definitely gave me buckets of confidence in him.
I am curious about the mention of an epidural. Is that something they give pre-op, in addition to a general anasthaetic? Is it common practice or do we need to ask for it?
we are off to the hospital at 4:30 am tomorrow, so will let you all know how it goes during the day…
Dina
