duke0929

a illness like this(i wont say the C word i hate it)or any illness makes you wonder if anyone is really up there and is listening..you start to doubt your faith and say why,why is HE doing this…you pray and pray and it seems like no one is listening…people say that HE works in strange ways and i say to myself why would HE do this to some one who never harmed anyone or anything… and i still wonder…but stories like the humming bird and the dragonfly make me realize that HE is listening and HE has a plan, so i just keep on praying..my heart felt sorrows for your loses….ron

hi michelle
we are all to familiar with the feelings you are going through and its horrible, but you must keep pushing forward for your dads sake and yours..normal is something in the past ….dad hasnt gone anywhere so make everyday special as hard as it is and keep fighting, always keep fighting ……never quit and never take no for an amswer……ron

sorry jennifer my heart and prays go out to you …ron

i dont know how to express this but here goes..today we will have been married 40 years and i love her today more than ever …even after 40 years of marriage we were still very intimate, when this monster came into our lives things changed somewhat…everything seemed to evolve around doctors, hospitals and treatments ,as it should be….when treatments began she was very debilitated not being able to get out of bed 4 days out of seven…i have not left her side since that day one a year ago…so needless to say our intimacy has taken a back seat…but just to still have her with me and to be able to hold her hand, have a conversation,give her a hug and a kiss, well im thankful for that..iknow the intimacy will come…when people say to me what do you want ron, i answer my wife back, because she is here but she is not really here if you kmow what i mean…i wanted to say more but being from the old school i will just let it be for now……ron

hi jill, im a relatively new member to this site also and im glad i found it….the people here are wonderful …its a place where you can share your experiences with people who are fighting the same monster and get a good feed back about procedures and what to expect …i was brought here when my wife was diagnosed with cholangiocarcinoma (I HATE THE WORD) last march…since then she has had 6 months of chemo(gemzar) which has contained itand then a stent….most recently she was a candidate for the sir-spheres procedure this was done on feb.5…as of last night after the blood test results her oncologist thinks that her condition is stable (and i thank god an the doctors for that )..but wont really know until until a pet is done in the coming weeks…but we are very hopeful…what i have learned over the past months is that you must be your advocate…take the bull by the horns and refuse to hear the word no…keep researhing looking for answers ask questions..if one doctor says no find another..never stop trying…i am sorry if im rambling on its been a year full of frustration…what im really trying to say is that i wish you and your family continued good news and as everyone else here i will pray for them ….welcome ron

dear ehebeler, welcome to a great site here you can get some answers…im sorry to hear about moms condition…but right now you have to be your moms advocate, the questions suggested by marion are the ones i would ask…be insistent dont take no for an answer…i have found out that some doctors will do what others wont….keep seeking out help and be sure you keep all of your moms records..i wish i could add more but but im sure you will find the doctors and i will pray you your mom and you ….ron

very well put JeffG, i agree completely, good or bad we are human beings brought together by a common tread…our loved ones and friends are suffering from a disease that strikes terror in your heart…reaching out to the people on this site has brought my wife and i a sort of comfort…if you can call it that…..reading about their fight and never quit attitude is inspiring and i applaud them and their families…GOD BLESS YOU ALL….i mean no disrespect Magic because i know this disease strikes every one and the way they feel (and they have every right to feel what they want) differently….many times it is not the person talking but the disease itself if you know what i mean….GOD BLESS AND BE WELL….RON