formydad

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Viewing 15 posts - 1 through 15 (of 21 total)
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  • in reply to: Prayers are answered #65285
    formydad
    Member

    Wonderful! Wonderful! Thanks for the positive post! I need this today. Enjoy every moment. You showed CC where to go and how to get there! Happy day!!!!!!

    Praying,

    Suzy

    in reply to: New Member #64995
    formydad
    Member

    Dear tlcassara,

    I am sorry you have joined us but you came to the right place. My father (65) was diagnosed back in May and it felt like someone took my heart out and cut it into pieces. He didn’t show any signs either, other than loss of appetite and an episode of extreme gas. It is in his liver too. He was stage four when first diagnosed.

    Now he is doing so well. He will finish his 8th round of chemo and we know due to last scan thinks have shrunk. Please don’t take it as a death sentence as I did. There is hope. We don’t know the outcome but every day we are thankful he is here and staying positive (SO IMPORTANT). Chemo hasn’t been the greatest (of course, because it is a change in their daily lives) but he deals. He is actually going hunting this weekend with my brothers and friends. He can’t shoot because of his port but he feels good enough to go along for the ride. WE ARE SO HAPPY FOR THAT!!!

    I know you need time to allow it to sink in but stay with us and ask away. This place is full of info and great people. Allow us to support you and answer any questions we can (not me though, I just try to give support, understanding and positive updates). I ask a lot of questions.

    If I can be of any help, let me know. Take it one day at a time. God bless you and your children.

    Praying,

    Suzy

    in reply to: Gas #64988
    formydad
    Member

    Thanks all! This place is filled with so much information. I copy and pasted the information in an email to my mom.

    @Notdoneyet- Hilarious! It fit so perfect in that spot considering our topic! No harm done.

    I appreciate all of your input. Thank you so much for your time, input and concern. I hope everyone has a great Wednesday!

    Praying,

    Suzy

    in reply to: It was a good day today! #64404
    formydad
    Member

    YES!!!!! So happy to hear. I’ve been thinking of you guys. We traveled back to MI in August to spend time with family. I went with my dad and mom to U of M for one of his chemo days. He had an appointment with the doctor first that I sat in on but left in tears. It was too real. I needed to experience that though.

    Things are good now. Dad is feeling well and has his 8th round of chemo in beginning of Oct. Dr. F. is happy with the results thus far. His current doctor is leaving in 6 weeks so his new doctor will be Mark M. Zalupski. Since our visit we have decided we are moving back home.

    It’s great about Lauren. She is such a strong lady. She has a wonderful mom too. Stay strong. We’ll be praying.

    in reply to: Always cold! #63908
    formydad
    Member

    Is it your thyroid? I have Hashimoto’s and Hypothyroidism. I was/am always cold, more so off my thyroid med. It could very well be the chemo but speaking from experience my chills come from one small gland not working. I hope you find warmth.

    :-))
    Suzy

    in reply to: New here #63866
    formydad
    Member

    Great post Joanna! I appreciate your story. My father was diagnosed in May. He is currently in a clinical trial at U of M. As of last scan cancer has reacted to chemo! YAY! We are in the process of getting other “plans” in place. We’re not giving up and will fight this disease with all of our might. I shared your story with my siblings. Thank you again for your positive and touching story. Praying for you!

    :-))
    Suzy

    in reply to: Hello new to the site, looking for answers #62794
    formydad
    Member

    Shel,

    My father (65 and healthy) is also seen at U of M. He was diagnosed in May 2012 and receives chemo every two weeks. As of now his cancer is reacting to the chemo (yesterday was his 6th session). We were told at his last appointment that he can’t be on chemo forever. After hearing that statement my siblings and I are getting a plan in place for him to be seen at another (bigger) facility where specialists available to work with us. Please use the lists Gavin has shared. They hold important information.

    I understand it’s overwhelming and frustrating. I’m still mad. It doesn’t make sense and is very unfair. Please know that this is a great place to share, release and gain info. Take care of yourself and keep your head up!

    :-)
    Suzy

    in reply to: Chemo #63712
    formydad
    Member

    My father’s chemo lasts up to almost 6 hours. The first hour or so is anti nausea medication and the rest is the actual chemo. They also see the doctor prior to chemo. When they travel to U of M for treatment it is an all day ordeal, 9am to almost 8/9pm. Keep in mind, my parents live almost 2 hours (4 hours are travel time) away from the facility where treatment is held. Hope this helps.

    in reply to: Newly diagnosed #62098
    formydad
    Member

    Hi all,

    It’s been awhile since I posted…needed a break, coming here often makes me too emotional. My dad had his third chemo treatment last week and is doing well. Dr. Fakih says liver is regressing, billrubin levels are down and blood work is good. He will go for his fourth treatment on Thursday then a scan to come in the next few weeks. My dad does okay with the chemo, kinda slow and tired but no nausea or other side effects :-)).

    He did end up in the hospital with a blood clot in his lung and is now on a blood thinner and will be for the rest of his life. He gives himself injections at home. He was in the hospital for 3 days.

    My daughter and I will be traveling home at the beginning of August for 2 weeks to spend time with my family. My husband will come on the last leg of our trip and spend a week with us. We plan on attending a chemo session with my mom and dad at U of M then going out to dinner after. Things seem to going okay. It’s just a waiting game and than what??? I just keep praying.

    in reply to: It has been the longest day, ever!! #62688
    formydad
    Member

    Strange for a procedure to begin at 9:40 in the evening…random. Hoping and praying for the best!

    Suzy

    in reply to: Not the news we were hoping for. #62514
    formydad
    Member

    Pam,

    So sorry to hear your news. I will be praying for the both of you. Stay strong and positive.

    Suzy

    in reply to: Newly diagnosed #62094
    formydad
    Member

    Pam,

    Glad to hear Lauren likes to eat. No worries about closing the curtain, it makes sense. I hope that maybe one day you could meet my parents. I sent your story about Lauren to my entire family and it seemed to uplift them. Thanks so much. If their schedule changes I will let you know. God bless, and I will be praying!

    PS- My parents names are Dennis and Sidni! Talk soon!

    in reply to: Newly diagnosed #62093
    formydad
    Member

    Mmking,

    It does suck! I agree we are lucky to have these experts here because I would be lost and sad without them. It is so difficult living far away and getting the filtered information. I just want to know and I want to know everything. Regardless if it is bad or good, tell me. I understand where my brothers are coming from because they are “in it”. They have gone to doctor visits with my mom and dad so they hear the news straight from the doctor, perception is reality. I am planning a trip home this summer in August…hopefully. Good luck and to you and yours! God Bless!

    in reply to: intrahepatic and extrahepatic #62206
    formydad
    Member

    What a crazy cancer! How is your husband doing? Great they could remove the tumor.

    in reply to: intrahepatic and extrahepatic #62204
    formydad
    Member

    I know. After all the conversations and reading it seems that makes the most sense. I continue to get more information from my mom daily. I’m kinda putting all the pieces together. I appreciate your input! :-))

Viewing 15 posts - 1 through 15 (of 21 total)