gavin
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Effect of FGFR2 Alterations on Overall and Progression-Free Survival in Patients Receiving Systemic Therapy for Intrahepatic Cholangiocarcinoma
Hi John,
Glad to be of help in any way that I can be. And good to hear that you got the printing done. If I see anything else that I think is relevant I will of course post it here on the boards.
Great too that you were able to catch much of the conference online and that is a great option for so many people who are not able to attend in person. And yes, we do get a lot of experts in all of the fields relating to CC attending, chairing and presenting each year too. The conference like the Foundation has grown each year since it started and just seems to keep getting bigger with more done each year which is great.
And you are so right too that in the nearly 20 years since Stacie started the Foundation there have been a ton of people involved in it’s development, running and growing etc along the way!
Keep in touch John and let us know how things go and know as well that we are all here for you.
My best to you,
Gavin
Hi John,
Welcome to the boards. Sorry that you had to join us here but glad that you have found us all none the less and I am really glad to hear you say that your treatment has been very effective and that you are feeling good. I will keep my fingers crossed for you for further great success with this and any treatments you do of course.
I did a search on the forum for you for pieces relating to Topaz-1 and came up with this –
https://cholangiocarcinoma.org/db/search/TOPAZ-1/
There should be quite a few pieces of past research etc in there that hopefully will be of use and interest to you. Don’t know if you have already seen them or did a search but thought I’d do one anyway in case you hadn’t.
None of us can give any specific medical advice to do this or that etc as we are not doctors or onc’s. But what I would say is to read as much as you can about the studies or pieces here on the site and print any of them out if you can. Then you can take them with you to show your onc and see what they think about it and they will be best placed to discuss with you what path to follow with your treatments going forward.
That’s great that you were at the conference and I hope you were able to get a lot out of being there as well. Is great to meet you John and please let us know how things go with your treatments and what you and your onc decide to do going forward. Please know too that we are all here for you and I hope that you will keep coming back here as well.
My best to you,
Gavin
https://www.sciencedirect.com/science/article/pii/S0168827822000174
Thanks to European Association for the Study of the Liver. Published by Elsevier B.V for this piece.
Gavin
Some podcasts from the ASCO meeting that could be worth listening to.
Podcast: ASCO22: Key Posters on Advances in GI Oncology
https://dailynews.ascopubs.org/do/10.1200/ADN.22.0526.4/full/
Full list here –
https://dailynews.ascopubs.org/podcasts
Thanks,
Gavin
Hi Gap and Mary,
Thanks loads! Yes Gap the Pubmed site is an excellent resource going back many years full of research and you can just search within it for anything specific that you are wanting to look at etc.
On Pubmed on the right hand side of the screen look for where it says “Sorted by:best match”. Click on the box that says display options. That then brings up a scroll down menu that will allow you to search whatever way you want to. For instance, I look at pubmed each day for CC pieces and click on the “best Match” then click on “most recent” and that brings up the newest CC pieces as they come onto the site so I can put them on here.
You could do the above as well to see the latest pieces then just work backwards through them if you want. Or you can search by abstracts, authors etc. Reading the headline of an abstract, then the background to it then jumping to the conclusion to see what the outcome is may also save you some time.
Like Mary says, printing out some of the research that you find to take to meetings with the onc, med team etc is a great idea and should also help with saving time too as the onc etc will be able to read it instantly if they have not before. Thanks Mary for bring this idea up here! I know what you mean as well Gap with wanting to find out as much as you can in this situation and that is exactly what I felt like when my dad was diagnosed in 08 and is why I ended up here with the CCF.
My best as always to both of you,
Gavin
Hi Gap,
Glad to be of help in any way if I can and hope that the link posted helped, even if only in a small way. Thanks for letting us know about your husband and I am real glad to hear that he had great success with his Gem/Cis. I hope for further success for him with his treatments and will keep my fingers crossed.
If I see and more cHCC CC articles I will post them here but here are some links etc that may be of interest to you both.
https://pubmed.ncbi.nlm.nih.gov/?term=cholangiocarcinoma+hepatocellular+carcinoma&sort=date
This link will have further links within the page. Just scroll down and through the page.
This one too on Pubmed – https://pubmed.ncbi.nlm.nih.gov/?term=chcc+cc&sort=date
A google serach gives this result – https://www.google.com/search?q=pubmed+combined+chcc+cc&rlz=1C1ASUM_enGB770GB770&ei=f8KAYqriOJqQhbIP-vu30AQ&ved=0ahUKEwjqndK-k-H3AhUaSEEAHfr9DUoQ4dUDCA4&uact=5&oq=pubmed+combined+chcc+cc&gs_lcp=Cgdnd3Mtd2l6EANKBAhBGAFKBAhGGABQuQ9YuQ9g9hhoAXAAeACAAV6IAV6SAQExmAEAoAEBwAEB&sclient=gws-wiz
I hope some of that is useful and if I can help in any way please let me know.
My best wishes to you and your husband.
Gavin
Please see here also –
Initiative to Map the Cholangiocarcinoma (CCA) Landscape in Europe Will Help Improve Patient Outcomes
Thanks!
Gavin
Hi Hannah,
Thanks loads for posting your mums story here on the boards. And yes, there are a lot of ways for people to survive this cancer, fight it and to live their lives at the same time. Your mums story will give hope to so many people out there not only who post on the boards but also who just drop in to read without posting or joining in any way. So thanks a bunch for posting here in this section about your mum.
Much has changed since your mums diagnosis in 2018 and much will continue to change in the years to come. Of that I am sure. New treatments will come for the better with new procedures, drugs, trials etc and I do feel there is much to look forward to with everything. I am sure that new patients or their family members will indeed read your post about your mum and I know that it will inspire them and give them hope for the future.
Thank you so much for posting and I look forward to hearing further about your mum through your postings here not just on the boards but here in this section!
My best to you and your mum,
Gavin
PS – and a Happy New Year to you both and to everyone else as well!
Hi Randi,
As always it is great to see you here again each year! Always brings a smile to my face when your name pops up on the boards every time!
And for sure, you give so much hope to so many people every time that you post on the boards, especially in this section! Kicking butt big time you are!!
Thanks so much once again for dropping in on us all and as always, I look forward to seeing you post again next year! And of course any and every time that you post as well!
You take care too,
Gavin
Hi Tarheelll,
Many thanks for posting this piece, great stuff.
Thanks too to John Wiley and sons Inc for the piece also.
Thanks,
Gavin
Please have a read here as well.
https://jamanetwork.com/journals/jamaoncology/fullarticle/2784216
Thanks to the American Medical Association for this piece.
Gavin