gavin
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Hi Genevieve,
This is such great news, thanks loads for sharing that with us all! Cycling and going to the gym, love it and long may that continue!!
My best to you and your husband,
Gavin
Hi Daisy,
Have you had a look using the search forum function at the top of the page? Pretty certain that there will be some posts about experiences there from the members and hope that will be of help to you. Good idea with getting the 2nd opinion on option of radiation and I will keep my fingers crossed for some good news for you and your mum. Please let us know how things go.
My best to you and your mum,
Gavin
Hi Julie,
I did a quick search on google for you and came up with these. Not too much info but they do mention Gem/Cis and muscle cramps.
https://patienteducation.osumc.edu/Documents/GemcitabineCisplatin.pdf
To be honest Julie I couldn’t really find too much about cramping and Gem/Cis. Maybe the cramping could be related to something other than the chemo? How are you feeling today?
Could be down to lack of fluids as you say. Here are some other links from the UK’s 2 main cancer organisations –
http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/cancer-drugs/gemcarbo
http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/cancer-drugs/gemcitabine
Did you speak with your doc or Onc about this today?
Hugs,Gavin
Hi Steph,
Welcome to the site. Sorry that you had to find us but glad that you have joined and yes, you sure can spill your guts out here so please feel free to go ahead and do so as much as you want to. Sorry to hear everything that is going on with you and your daughter right now.
There is really not too much that I can add to what the others have said to you already, but I just wanted to stop by here and say hi to you. Do keep on coming back here as you are so around people here who know what you are going through and will help if they can. We are all here for you.
My best to you,
Gavin
Hi Karen,
Welcome to the site. Sorry to hear what you and your husband are going through right now but so glad that you have joined in with us here as you will both get loads of help from everyone. We do have some Australian members here on the site and I know that they will be happy to speak with you. Thank you Genevieve!
I so hope that the chemo works very well for your husband and that it works as it should. Do you mind me asking what type it is etc? And when is your husbands next scans?
Please keep on coming back here as you both are not alone in this now. We are all here for you and we care.
My best wishes to you and your husband,
Gavin
Hi Allan,
Welcome to the site and thanks for posting after joining a while ago. Sorry that you had to find us all but glad that you have joined as you are so in the best place for support and help and will get loads of both from us all.
Thanks for sharing everything that is happening for you and you say you are feeling pretty good right now. Well feeling pretty good sounds good to me and I have to say, what a great attitude you have. I hear what you say re no second opinion in NZ and it being a very small country. I a few family members that moved to just north of Auckland decades ago from Scotland and I get what you are saying here.
Yes you most certainly do have much living to do, so you go for it! You guys down there are on your winter right now are you not? Hope it is not too much of a bad one! Please do keep on coming back here and know that we are here for you. I look forward to hearing from you more.
My best to you,
Gavin
Hi Diego and Carmen,
Welcome to the site. So sorry that you had to find us all here and I am sorry as well to hear what you both are going through right now. Although I am glad that you have joined in with us now as you have come to the best place for support and help and will get loads of each from everyone. If we can help we will.
Thanks as well for sharing everything with us and I know how frightening all of this is to you. I know that it can be hard not to sometimes but please try to not think of the worst outcomes to all of this. You are both not alone in this now, we are here for you and we care.
The more that you learn about all of this the better you will be when it comes to helping Carmen with everything to do with treatments etc. Knowledge is most definitely power when it comes to everything to do with CC. Please keep on coming back here and keep us updated on everything.
My best to you and Carmen,
Gavin
Hi Daisy,
Can’t help with that myself, but have you used the search forum function at the top of the page to see if anything comes up? Also, have a look through this thread as you may find something as well –
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126
Please let us know how things go for your mum and what is recommended by Dr Wo. Will keep my fingers crossed for some good news for your mum!
My best to you and your mum,
Gavin
No wonder the biotech and healthcare market in the US has gone berserk lately with takeovers, mergers, acquisitions and all of that. Crazy money involved with all of this and as you say, enormous costs involved for patients.
Hugs,
Gavin
So hope that they have some success here with this Marion as the cost of drugs and especially the newer ones and therapies is extortionate. We have the same problem with the NHS and funding drugs and some health authorities will pay for some and others not. Not a good situation at all.
Hugs,
Gavin
Hi Hope,
Welcome to the site. Sorry that you had to find us all here and sorry also to hear about your dad. But I am glad that you have joined us here as both you and your dad will get loads of support and help from everyone on the site. Thanks as well for sharing everything that is happening with your dad. My dad also had CC so I so know what you are going through right now.
I am very glad to hear that you are seeking further opinions and options for your dad with regards to treatment options and I so wish both you and your dad every success with this. I will leave recommendations to treatment facilities etc to those from the USA.
Please do not give up hope here about everything. Can I ask you as well if possible, could you please copy and paste your post here on this part of the site as well?
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126
The reason that I ask is that we are trying to create as much information regarding treatment facilities around the world from where our members or their loved ones have or are being treated as this information is of great use to so many people worldwide.
And please keep on coming back here and keep us updated on everything. We are here for you.
My best wishes to you and your dad,
Gavin
