gracefulmeadow86

nur1954, I can’t believe they wouldn’t cover things because CC is rare!!!! That’s absurd! But i’m glad that you have the right to appeal. Seems we’ll be doing that a lot!

marions – yes, the insurance company pays for CTs and MRIs post diagnosis…or at least they did last year. Hopeuflly that hasn’t changed but now we can’t be assured of anything with these jerky companies.

Thanks Lainy. It makes me so mad that they would deny this certain type of scan. Clearly the $4000 out of pocket is absurd and nobody can afford that on top of all the regular insurance payments! If his ONC can’t get it approved, we’ll have to ask him about other centers around here that may offer it at a discounted rate like they have in your area. But still…$1600 is a lot of money for something that the insurance SHOULD cover.

Thanks ziggydog and Gavin for your answers.

ziggydog – i dont this my dads fluid buildup happens so often that he needs a drain “installed” yet, but it may be something we have to look into in the future. good to know its another idea to through out there. I’ll definitely have them ask the drs about if there’s cancer in the fluid. I didn’t even think of that!

Gavin – i only get bits and pieces from my mom about what the drs say at his appointments because i work during the day about 1.5 hours from where he goes – so i rarely get to tag along and ask the questions. I’m going to pass on those questions to my mother and hopefully they’ve already answered them and it just wasn’t passed onto me.
And yes, i believe my dad is still on diuretics from the beginning of his diagnosis in the spring, but i’ll have to confirm with him.

Thanks again to you both for the responses