holly22a
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Hi! My surgeon was Dr. Kato and I have not heard anyone having a bad outcome with him on these boards, but maybe I’m not reading the right things. He did a non-curative resection for me in January 2013 followed immediately by y-90 of the remaining lobe (He took the whole left lobe with main tumor but left the right with some small tumors. the y-90 radiation killed them). All quiet since then. He is definitely outside the box.
thanks, Percy. Seems a good reason to “debulk” tumors even if the resection is not curative…… fewer metastases?
I know nothing about this except I know you are beloved and all of us here are behind you. Love, Love, Love. xoxoxx!
Willow, I am happy to hear of your sister’s news. She and I seem similar and I am right now trying to decide to use xeloda or not. One of my oncs says xeloda alone not much help with cc, the other onc says it is a good option. So many variations on a theme, this cancer. btw I am having a good summer on nothing – counts too low for chemo, scans show nothing there (at least nothing as big as a cm that could show up) so I have been just coasting. It has felt great. A little honeymoon, I guess. My interventional radiologist was thrilled with the y90 results, said he’d do it again when the tumors come back…did your sister’s y90 help last winter? xox, Holly
Pam, I have been off these boards for a couple of months for a variety of reasons so I just came back and found this news, this sad, sad – almost unbearable – news. I am heartbroken. Weeping, actually. Much love to you and your family now and in the coming weeks and months. You are such a special person, I will miss your gentle voice and your obvious loving relationship with Lauren on these boards and your always such kind comments for everybody. Lauren was such a trooper! Please come back when you are ready. xoxoxox Holly
y-90 was always in the mix, although in retrospect I may be the rare person who has a bad bone marrow reaction which has been difficult. Every case is completely different, but yes, resection without intent to “cure” is out there. Definitley lowers the tumor burden. I’m back to little guys in the right lobe, little tumors I wouldn’t have even thought about before.
omg. I just read all this and all I can say is to add to the chorus. Stay strong, Lauren! Feel all the love, Pam! Behind you 1000% with prayers and hopes and love and thoughts of healing. Holly
ok, my experience is somewhat similar. had 12 doses (high) of gem/cis in the fall ending january 10. had surgery and y-90 radiation in february. tried to go back to chemo: no luck. spent all of april and may unable to take any chemo (tumor markers all went up and very frustrated) because of fevers, extreme lethargy/exhaustion, and because platelets and wbc so very low. I have had no rash but the thinking now is that I got bone marrow toxicity from the y-90 even though most IR folks will tell you that beta-emmitters cannot do that, it does actually happen, according to my onc in nyc. I’m starting tarceva/avastin just to do something because I feel like a sitting goose not doing any treatment at all. Hope this helps. Good luck, it’s misery, I know. Holly
I am late but I found only two trials I could participate it, the paperwork requirements are steep and nyp hospital is terrible about getting out your medical records (almost impossible) and third, my oncologists are against the trials. That’s a lot to go up against.
Greetings to you and so sorry you had to find us but, wow, this is the place to be! My case is almost exactly like your wife’s only I’m 55 with a 15 year old daughter. One main tumor, many small tumors. I did four rounds of gem/cis and had surgery to remove the big tumor and the whole left lobe, knowing that the surgery could not be curative because the right lobe had small tumors too. My surgeon was Dr. Kato. The key is that the cancer may have spread through the liver, but had not spread anywhere else or to any lymph nodes. After surgery I had y-90 and have not yet gone back to chemo, which will be next. Keep us posted on your wife, and ask any questions. Best to you all. ~Holly
