janecw
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Hi Kris,
I am so happy that you are still fighting and being positive I will make a point of checking on you.
We have all moved away from England and are living in sunny Dubai. We had the chance to do it last year but didn’t go due to the circumstances. My children are enjoying it and have settled in to their new school very well. My sisters children are coming out for Christmas so I can’t wait to see them. We will have a completely different Christmas this year so to try and ease the pain of not having my sister with us. Perhaps some camel rides for the kids can be organised.
Please keep me posted on how you are doing you were inspiration to me so I keep my fingers very firmly crossed for you.
With Love
Janexx
Hi Kristi,
I lost my sister this year she was only 43, she left two children 6 and 12. The pain is unbearable I think you feel much worse when they are no longer there. At least when they are with you although very ill you can still talk and love them. When they go the pain of them not there is just so like I never knew. Sometimes I cry to a song in the car or anything which reminds me of this unfair situation. I was cross at first when she died. I wanted something from her a letter or anything I could hang on to.
make the most of every moment I have so much guilt I wish I’d done more. Try and share a joke and laugh no matter how hard i hope this helps good luck to you all
Jane
Hi Gavin,
I am so sorry to hear about your Dad’s illness. We too live in the UK and I have a connection with Scotland as all my family are Scottish. My sister was diagnosed with cc back in 2007. Unfortunately we lost her on the 5th April this year.
I did used to think that she accepted everything that was put to her from her oncologist and we all wanted her to get a second opinion. She always felt that she was being a nuisance. So please don’t ever feel like that, your Dad has a right to treatment and you can request a 2nd opinion.
My sister and her husband’s experience with MacMillian nurses was not great so I am please you find your nurse helpful.
It sounds to me like you are doing are great job and I’m sure they both appreciate you. We too had fall outs and at times it could be very difficult in all ways.
take care and remember to look after yourself too!
Jane
Teresa,
I feel that nobody truely understand what I feel and I cry as I write this to you. I feel so many emotions mainly anger because it has taken my sister away and I have nobody to turn to for advice or help anymore. She was sensible and I was not bit silly really but I was so proud of her she was clever and achieved so much in her life.
She knew I was there in her last moments and even when she was so weak she tried to wipe my tears even then she wanted to make me feel better. I miss her so much and don’t know if I will ever stop feeling like this thank you for speaking with me it does help and I hope you can feel better as I hope I will one day but I know my life will never be the samex
Kris,
I read your thoughts and it breaks my heart, I wish I could take this disease from you and throw it where it where it will never come back. My 6 year old girl has associated death with being old and can’t understand why her Auntie died when she was just a Mummy, she asks why God would do that and I say I don’t know.
Caroline never visited this website I don’t know why, she knew I did and always said if it helps you then that’s ok with me. I think she knew what her fate was. I wish she had pushed her oncologist more but she excepted everything he said. He was nice but she was young like you and you deserve to live. Please Kris keep fighting you are a wonderful person because one thing this horrible disease has taught me is that nobody bad ever suffers from this.
I won’t pray because i did that and it didn’t work so I hope and dream that you get your chance to have a great life please please get well. that is my wish x
Thank you to you all for your kind replies, I do take comfort from your messages and know that you all understand the devastation that this disease causes.
I will continue to visit this site in the hope that I can be of some help to others, I know that I have always valued the responses that I used to get.
thank you all again
with love
Jane
Jeff, you are a complete inspiration to me, you are so thoughful for everyone else, so glad that you are having some positive results, keep on going your great!!
Nothing from anyboy yet I have spent the weekend with my sister she is so thin and frail I hate this disease. She needs to gain weight will the shunt help? The oncologist thinks this is better than draining but the procedure obviously is surgical and hence her reluctance at this time. The shunt would involve a drain with a mechanical pump, which when activated by her manually would pump the fluid back into her body. Somebody must have some knowlege on this please hekp if you can
thanks Jane
Thanks to eveyone for your suggestions. Her pain however is still not improving she has been back to her consultant who continues to try her on different drugs. The problem all seems to be associated with eating, she is hungry and wants to eat but the pain she suffers a few hours later makes her so sore. Her tummy seems to bloat up so much and you can physically see this. She is not gaining any weight either which means she has very little energy also. Has anybody suffered from this any suggestions would be appreciated,
thanks again
Thanks Jeff
that is really helpful she is having a CT but say this is better to look at what is going on in the body and MRI better for assessing the liver, she confident they know what they are doing. But the pain she is describing sounds very similar to yours her stomach, side and back. Hopefully they will find something that they can do something about.
thank you again
Jane UK
Hi Sue,
I live in North Yorkshire so not too far away from you. My sister was diagnosed with cc last November she is 42 and lives in Cheshire and is receiving treatment at Christies in Manchester. She is now 2/3rds of the way through her chemo regime and results so far have been promising. Unlike your husband she was suffering pain which lead to the diagnosis and the cancer had spread outside the liver. We are all “her family” hoping the chemo stops the spread and contains the cancer.
What hospital is your husband under?
Good luck to you both it really is a very hard struggle, keep positive and don’t loose your sense of humor somebody told me that so that’s what I try to do.
Jane UK
Kris,
I follow you with complete admiration. You are a truely fantastic person I love the way you care and I love your sense of humour you so deserve this geat news enjoy it and continue to be the naughty sis just like me
Jane xxx
Kris,
What fantastic news I am so happy for you enjoy every moment you deserve it. You are a truely warm and loving person keep going you are beating this don’t stop xx
Hi Kris, Caroline me and some close friends are doing the race for life in Tatton Park Cheshire on the 22 June. Caroline has bought a running machine and has started training she is still on chemo but determined as ever. I can’t believe my sponsors so far, down to my husband really he works abroad and nearly all are from his contacts. I can’t believe how many caring people there are it certainly restores faith.
Link is: http://www.raceforlifesponsorme.org/janewebster1
I hope all money raised helps us all in some way xx
