jathy1125
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Susie-Congrats!! Don’t be so hard on your self, you are surviving cancer and that is REAL hard job. I have found myself annoyed with me for being annoyed over small things and think I should be beyond on this, I had cancer, well that is the good thing about cancer it can’t stop you from being human!! (It tries awfully hard though!!) Don’t be so hard on yourself!! I have scans every 6 months, doctor visit every 3 months and blood work every month, I am always in state of scanxiety!!!
Susie-Erin Huff and her dad Tim Hargiss (he is battling CC)will also be in Disney World next week. She just posted about how generous the community has been to send them there, you can find her on my FB page (Catherine Sims Dunnagan) if you want to meet a memeber of our CC family!! Tell Mickey hi!!
Lots of prayers and FUN-CathyBruce-Welcome and like everyone else, so sorry you had to find us. I am a CC survivor. I have an amazing story to share, please read it at http://www.catherine
dunnagan.com under the telegraph link. There is HOPE.
I was “cured” by Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. My tumor was also inoprable and my only HOPE was a liver transplant. I was told 6-8 months with out one and like your wife and many others in our CC family the diagnose came out of left field, I was fine on July 30,2008 and dying on July 31, 2008!! Several of our CC family have contacted Dr. Chapman for second opinions and I know of at least one that life was saved because he said yes to surgery when another said no. Dr. Chapman is an amazing doctor and person, he has a heart and soul.
Please contact me if you have questions or just want to talk.
Lots of prayers and HOPE-CathyBob and Nancy-I also took XELODA for 5 months while wating for my transplant, I don’t exactly remember the miligrams but I do remember 8 pills twice daily. I had no major side effects, I was tired but not “stay in your bed tired”. I also had finished IV chemo, radiation, and 5FU pump chemo, so there were a lot of reasons to be tired!! I am sure Kris will speak up soon, because she has managed to get every side effects possible!!.
I was so blessed to not have needed a second opinion, but being a caretaker for my mom for 14 years, I know how a second opinion saved her life twice!! I have always felt a second opinion only validates your first opinion or opens new doors, it is a win-win situation.
Lots of prayers-CathyNancy and Ron-GREAT GREAT NEWS!!! Well your timing could not have been better, since last nite we had several “introductions” postings!!! Your story brings the HOPE, they all need!!
Can’t wait to “walk in your shoes” (I am at 3 years 4 months cancer free) LOL!!
Lots of prayers-CathyBob, Nancy and Jeff- I too would like to say “Welcome and sorry you had to find us”. I am also a CC survivor, 3 years and 4 months cancer free. I have an amazing story to share, please read it at http://www.catherinedunnagan.com under the telegraph column, there is HOPE!
I look forward to hearing and sharing Jeff’s story.
Lots of prayers and HOPE-CathyDarla, Welcome and sorry you had to find us, I am Cathy (LOL)!! I am a CC survivor, 3 years and 4 months cancer free, thanks to God, 2 strangers and Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. I have an amazing story to share, please read it at http://www.catherinedunnagan.com under the telegraph link. There is HOPE!!
I have posted on here so many times about how different my story would be if I wasn’t immediately put in Dr. Chapman’s care. I can never say enough about his doctor skills, but it is his heart that puts him in that special place. Darla, you are so blessed and lucky to have been sent to Barnes and Dr. Chapman.
I would love to talk to, you so please call (618-567-3247) or email jrdunnagan@gmail.com. I had so many miracles happen in my story, and one of the first was Barnes was only 25 mins away!!! I would love to meet if you come to town, and if you need any help navigating Barnes or St. Louis please call!!
Lots of prayers and HOPE!!!!-CathyTina-Welcome and sorry you had to find us. I am a CC survivor, I am 3 years cancer free. I was diagnosed Stage 4 and in operable, my only HOPE was a liver transplant. I am alive because of God, 2 strangers and Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. Please read my story at http://www.catherinedunnagan.com under the telegraph link.
I was 52 when I was diagnosed and thanks to my great family , I will celebrate my 58th birthday in a month, pretty good considering I was told 6-8 months on July 31, 2008!!! There is HOPE!!
Lots of prayers-CathyLynn, “Nothing ventured nothing gained”. I would contact her, especially since you have a found and contacted her friend and she might be waiting and waiting and wondering why you haven’t reached out to her. Lainy is so right you always need your parent.
Lot of prayers, luck and HOPE-CathyDear greynosa, Welcome and sorry you had to find us. I am a CC survivor, 3 years cancer free!! I have an amazing story to share and you can read it at http://www.catherinedunnagan.com under the telegraph link. There is HOPE, I was 52 when diagnosed. Like every one with this cancer I was STUNNED, other cancers you are always looking for, not that the words “you have cancer” would be any less painful, but who knew we had a bile duct and it could be cancerous!
The most important advice is make sure you have a great CC doctor, our cancer is so rare that you need a doctor and cancer center who is aware of all the treatments and trials. I am alive because of God, 2 strangers and Dr. William Chapman at Barnes-Jewish Hopsital, St. Louis MO. I would not be here if Dr. Chapman didn’t believe in transplants and help develop there protocol!!
I look forward to hearing more of your story, and please ask any question, you will get so much info and life expierences here.
Lots of prayers and HOPE-CathyChrissy and like all others have said, welcome and sorry you had to find us. I am a CC survivor, 3 years and 4 months cancer free. Please read my story at http://www.catherinedunnagan.com under the telegraph link. I have an amazing story to share and proof there is HOPE. My miracle worker was Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. Dr. Susan Logan was one of the doctors on his staff and has relocated to Fresno, CA. My doctors were the kindest most caring doctors, besides being in the top 100 docs!!
I remember getting the diagnose and my first thoughts were about my child who was 21 then, so my heart feels for you.
Please keep posting, asking questions and venting because you are surrounded by love here.
Lots of prayers-CathyRandyswife-I have had 10 ERCP’s and had nasuea until they did the procedure while getting an IV of zofran, made a difference. I could not do ensure or boost caused a lot of vomitting. I had a feeding tube for months and that made a difference. I also always had a bowl of dry cheeerios by my side.
Lots of prayers and HOPE-CathyWelcome and sorry you had to find us, which will be repeated many many more times. I am a CC survivor, 3 years cancer free! Please read my story at http://www.catherinedunnagan.com under the telegraph link, there is HOPE!!
It is very exciting to hear all the new options and chemo mixes that are being used in the last year. Since you have been following this site for a while you know MDACC is one of the top spots for CC and Dr. Javle is at the top of the list.
I had the VAT surgery in Febuary, but all was OK. My recovery was so bad though, I am still numb on my right side.
Lots of prayers and HOPE-CathyHello-When Dr. Chapman told me all that was wrong and told me about my chemo /radiation plan, he started with “You probably won’t lose your hair”, I didn’t have to ask!!! I think that is every womens #1 anxiety issue!! MY chemo/ radiation was “not bad”, chemo days usually meant lunch and shopping!! I would be very tired about 48-72 hours later and sleep for a long day. All my nasuea was controlled with 3 anti-nasuea meds (I always had something in my system), tiredness just meant more naps. I missed chemo once because of bad blood work. Chemo an.d radiation is accumalative so probably more towards the end up she will have more side effects.
Good luck and lots of prayers-CathyDaughterinlaw-Welcome and sorry you had to find us. Lainy was right you sound like an amazing DIL and you need another opinion. I am a CC survivor 3 years and 4 months cnacer free. You can read my story at http://www.catherinedunnagan.com under the telegraph section. Your onc is very interesting, may be a little to casual. Oncologist was right about chemo treatments our chemo side effects are not as severe (hate to say mild) as some chemo. I expected the “Life time movie” expierence, but it involved no hair loss, nasuea, all managed with 3 different anti-nasuea meds and tiredness all managed with extra rest. Everybody is diiferent so it could be harder on some. My chemo drugs were gemcidabeane, 5FU and XELODA, I also did radiation.I also was Stage IV and inoperable, but my HOPE was a transplant.
Lots of prayers and HOPE -Cathy
