jathy1125
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Hi Johanna, and like all else sorry you had to find us. I am a CC survivor, cancer free for 2 years. My miracle was a liver transplant. The Mayo Clinic is very pro-active about transplantation as a CURE. Make sure you discuss this with them, because there decision if you are or aren’t a candiadte would be non-biased.
I have so many miracles during my cancer journey please read my story at thetelegraph.com under christmas miracle. There is HOPE!!
Lots of prayers-CathyHead to St. Louis!! Dr. William Chapman at Barnes-Jewish St. Louis MO. He is one of the best (google him), he saved my life twice, I am a CC survivor because of God and him, and that is exactly how he would list it!
Lots of prayers-Cathy
Read my story at thetelegraph.com under christmas miracleHello-and AMEN to PCL’s post. I am a CC survivor, I was lucky enough to be put in the care of doctor (Dr. William Chapman at Barnes-Jewish ST. Louis, MO) who believes a transplant is and should be an option for inoperable CC. I did chemo and radiation first. I also was able to function during treatment, my chemo/radiation buddies were there for more moral support for me and them. Any nasuea was treated with meds and tiredness just required more naps and rest.
My treatment did not effect my life enough to not consider it as an option, to continue my life.
Lots of prayers and HOPE-CathyJason-Welcome, and like the rest sorry you had to find us. I am a CC survivor. My CC was inoperable because it involved portal vein and location
. I am alive today and cancer free (2years and 2 weeks) because of a clinical trial involving a liver transplant. The fact that your mom’s has not spread is one of the qualifying criteria. I was treated at Barnes-Jewish Hospital in St.Louis MO. by Dr. William Chapman. Dr. Chapman worked with the Mayo-Clinic in developing this trial. I suggest you contact Mayo or Dr. Chapman about being a candidate for transplant, most doctors are still undecided about this as option, but trust me it works!! (I had 2 transplants!!)
Please read my story at thetelegraph.com under christmas miracle. If you would like to contact me please do.
Thanks to God and Dr. Chapman, and two wonderful strangers I will visit your wonderful state this summer, for my first “motorcycle vacation” since my diagnosis on July 31,2008. There is nothing like the smells and sounds of the black hills during Sturgis to make you feel alive!!
Lots of prayers and HOPE-CathyThe XELODA nurse called me once a week for the 5 months I took it. Your oncologist should be responsable for letting them Know you are taking it.
Just a little more information for everyone fighting CC.
Lots of prayers for all-CathyMarc-Welcome and sorry you had to find us. I am a CC survivor and cancer free for 2 years and 2 weeks now!
You sound like you have really looked into your options. I was treated by Dr. William Chapman at Barnes-Jewish in St.Louis MO. My saving grace was I qualified for a liver transplant. I had to do chemo and radiation protocol first to qualify. The fact yours has metastized might make you not a candidate for this trial. Dr.Chapman is world renown in the treatment of CC and transplants so you might consider another option or opinion. The man is the kindest human you will meet and an outstanding doctor, he saved my life twice!! Please read my story at thetelegraph.com under christmas miracle. I share my story to give HOPE.
Chemo and radiation were relatively easy for chemo and radiation. There was no hair loss, all nasuea controlled pretty good with anti-nasuea meds and tiredness was treatable with rest. Missed one treatment because of low white count. The port procedure is pretty quick and easy too. It seems very strange to sound so nonchalant about these procedures but in the big picture of our cancer these are some of the little blessings.
Lots of prayers-CathySon- I am a 2 year CC survivor and I had all of the above. My chemo was IV gemcidabene, 5FU 24 hours -7days a week for 6 weeks chemo pump while doing 6 weeks of 5 days a week of radiation and then about 5 months of XELODA (about 16 pills a day) while waiting for transplant.
I have been told Sloan-Kettering is starting to refer patients to my doctor, Dr. William Chapman at Barnes-Jewish in St. Louis MO.
This cancer wreaked havoc in my life but didn’t win!! All my chemo and radiation treatments were all doable, no major problems and all problems were fixed with medications and lots of rest.
You can read my story at thetelegraph.com under christmas miracle.
Lots of prayers-CathyThanks-Gavin, this is so good because tomorrow is the 2nd anniversary of my first transplant, another way to honor my donors and help my fellow CC family with hope for a tomorrow. We just need to keep paying it forward!!!
Lots of prayer for us all-CathyGavin-Hello and thanks. My link I think is thetelegraph.com under christmas miracle. I am very computer iliterate!
Thanks-CathyDebora-I would definetly get a second. I did not qualify for a partial liver because it involved my hepatic artery, that was why I need a transplant. The reason I would not have qualified if it had spread, something that could have happenned even while I did treatment. I would definetly get another opinion from a hospital with a cc program (usually a teaching hospital). The worst thing that can happen is it will validate the first. I would of course recommend Dr. Chapman, but as you read through these post a couple of names keep appearing like Jim Wildes doctor, Dr. Kato.
There is HOPE so keep looking until you know you are at the right place.
Lots of prayers-CathyWOW- thats my man!!!!I am convinced Dr. Chapman walks on water, he is not only medically an outstanding doctor he is a man with the kindest heart.
Gavin I am not sure how to do it but if you could list my story’s link with your above post we can real give HOPE!! I am only alive because of God and him. The amazing part is he would list the credits in the same order!!
Thanks-CathyDeb- Inoperable is one of the reasons for a transplant. My cc was inoperable. Please read Gavins new post and read my story at thetelegraph.com under christmas miracle. My cc was right in the fingers of the bile duct involving my vein. Please feel free to have your grandma contact me if she wants to talk to someone who had CC and will be 2 years cancer free on May 24
Lots of prayers-CathyHi Tim, and like everyone else I am sorry you had to find us. I am a CC survivor, and found it so dejavu when you said “12 hours ago”, I too can tell you the moment my life changed forever, 3:00 July 31, 2008. I am alive because of a liver transplant and have told my story at organ donation events and always say “I was just like you on July 30, 2008”.
I am alive because of Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. I never needed another opinion because I was immediately given hope. Dr. Chapman even told me what to google!!! Just an amazing “human being”. He saved my life twice, I had two liver transpants. I will be 2 years cancer free next week, thanks to his trial. Please read my story at thetelegraph.com under christmas miracle, it is so full of hope. I was only 52 when diagnosed with inoperable CC. I am not the only fan of Dr. Chapman on this site, even those with less positive outcomes say only good things about him, he is a very rare man and doctor.
Lots of prayers-CathyHi-Paul, Welcome and sorry you had to find us. I am a CC survivor I will be 2 years cancer free this month due to a liver transplant trial. My miracle happenned at Barnes-Jewish Hospital in St. Louis MO. (It is considered a cholnagiocarcinoma center). My doctor was Dr. William Chapman. I suggest you call the liver transplant department.
My local paper did my story (thetelegraph.com under christmas miracle) I suggest you read it for a bit of hope.
Lots 0f prayers-CathyBazel-So sorry about your friend. I am little worried that they did a needle biopsy and not a brushing. I was always told that could be not a good thing, that is something they should question.
I would love to share my story with your friends. I worry that some people think by always telling them to read my story I am self absord. I remember when I was first diagnosed and found this site, even though it was full of information and love, it wasn’t very positive, we all know there are few long term survivors on here. I always hope my story would give hope.
Lots of prayers-Cathy
