jathy1125
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Ruali, I am sorry about your mom, but am excited to tell you I am almost 5 years cancer free and I had hilar cholangiocarcinoma. I have an amazing story to share and our Foot loose Notebook has a video I made with my Hero Dr. William Chapman. Having hilar with no mets could make your mom a candidate for a transplant if she has the right doctors. I am alive because of a transplant. (I had 2). When I was first diagnosed my doctors exact words were “I know it will come back a false negative but I know it is CC”, he was right it took 2 weeks to get a positive reading.
Please email me jrdunnagan@gmail.com and I will be happy to share more info. I know Dr. Chapman is known internationally and I am sure he would be a well of info for you.
There is HOPE!!
Lots of prayers-CathyYou might want to check past post from Tiff she was Dr. Javle’s patient at MDAnderson and had her transplant at Methodist, so she would be a good source.
Lots of prayers-CathyCarolyn, Welcome and sorry you had to find us. I am almost 5 years cancer free!! There is HOPE!! I also had a daughter in college when diagnosed and my first question to my hero, Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. was, “will I see Cates graduate and he said “YES”!! I am proud and excited to say almost 2 years after diagnose I did!!
I have an amazing story to share and was so honored to tell it and be asked to do a video for Barnes about it. I also was honored to tell it for Relay for Life. Please don’t think I like to talk about myself but I am alive because of the love of a great family, the power of prayer, 2 strangers and Dr. William Chapman. I keep all of this on my FB page Catherine Sims Dunnagan to give HOPE!!
I am proof that there are miracles and that there is HOPE!!
Please email, friend me, or call (618-567-3247)if I can help or just need to talk.
Lots of prayers-CathySurfer, Congrats and lots of prayer for an easy and successful surgery.
Keep posting and inspiring our CC family!!
CathyCarla, Welcome and sorry you had to find us. A second opinion is very important, our cancer is very rare and many doctors are just not knowldegable in treating this cancer.
I am a CC survivor and my miracle worker was Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. Thanks to our CC forum I have been able to put his name out there and at least 4 people have had there non-surgical diagnose changed. Dr. Chapman is so much more than a great doctor, he is a kind passionate man. Dr. Chapman is also phone friendly and knows time is not our friend and will get things moving quickly, he also will not have you go through the expense and time of coming to St. Louis if he couldn’t help you.
You can read my story under the loose leaf section of our forum. Please contact me (618-567-3247) or email if you would like to talk or if I can help.
Lots of prayers-CathyHi Welcome and sorry you had to find us. I am a CC survivor and know how important second and third opinions are and how they can and do change your treatment. My miracle worker is Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. and because of him I was given HOPE right from the start and never needed another opinion. I know that sounds far, my story has brought 4 people from FL. SD. CT. who with one phone call were given HOPE and came to St. Louis and had there diagnose changed for the better. Dr. Javle at MD Anderson, Dr. Fong at Cleveland Clinic, Dr. Kato in New York are all doctors who have had great success treating our cancer. Please feel free to contact me if I can help
Lots of prayers for HOPE
CathyNikki, you are an amazing daughter. I always tell everyone, that I had the easy part of this nightmare cancer, all I had to do was be sick. My husband, daughter and sisters had the hard part, they had to take care of me and then continue there life like normal. My husband had to run a business and Cates had to go back to school all while making sure I got to chemo, doctor appointments, never alone when hospitalized, never left in the house to long alone, and after the second transplant we added diaper changing, feeding tube, drains…. and yet all I did was be sick, so much easier than what you have to do as a daughter who loves her dad.
Lots of prayers and HOPE for answers and peace.
CathyJohn- BRAVO!!! I am 2 months short of saying 5 years cancer free!!! Thanks to a transplant!! I too did the Mayo Protocol at Barnes-Jewish in St. Louis MO with Dr. Chapman, my hero. I had my first transplant May24,2009 and then on July 4, 2009 I awoke vomiting blood and was basically bleeding out because radiation had caused my hepatic artery to rupture. Thanks to God and Dr. Chapman I received the gift of life again with just barely 24 hours to live. 2009 and 2010 were rough years. I also contracted CMV!! I am excited to say I take 2 pills every 12 hours to stay alive and other than that life is normal!!!
I was privileged to be asked to do a video for Barnes and you can watch it at http://www.barnesjewish.org/patientstories/cathy
John please keep posting, people need to hear success stories, you are an inspiration and HOPE to our CC family!! (Don’t wait another 6 years to post LOL!!!)
Lots of prayers for many more 6 years-CathyMeghan, I just wanted to touch base again and to say that my hero Dr. Chapman is so approachable and not intimidating. I suggest you start calling him (of course LOL!!) or Dr. Kato, or MDAnderson and start getting another opinion, time is not a friend to cholangio!! I can only speak from my own expiernce, that Dr. Chapman will act quickly and when you hang up and think “why didn’t I ask that”, he will not be annoyed. When I was diagnosed, he held my hand and told me what to google when I got home, no God like arrogance in this man!!!
Lots of prayers and HOPE for your mom and family-CathyMarion, is a percutaneous bioposy a needle bioposy?? I had my bioposy done during my first ERCP, and my doctor knew right away I needed a transplant, but he did a brushing, not a needle bioposy and he also knew it would come back a false negative, which it did. My trial was the Mayo protocol.
CathyBen, I am glad my post are public!! If my information on this journey ends up being read by some one looking for answers and HOPE, I have paid it forward and honored my donors and doctors, who gave me a story!! I am excited to say numerous people have contacted Wayne and I about our hero, Dr. Chapman, because of google showing our posts on CC site and at least 3 people have had there diagnose changed from hopeless to resections and HOPE!!
PLEASE do not change this!!
Lots of prayers for HOPE for our CC family-CathyPatty, sorry about your treatment the last year and more sorry that insurance help mandate it.
I too also stayed away form here while I was sick, just didn’t have the stamina to look past the bad news. I now post more often because having the right doctor is the key to fighting this. I post because I was so blessed to have this expierence and didn’t have to waste time finding it. Our Wayne Parson always post that if “they had found Dr. Chapman sooner, Val would still be here”.
Keep posting and inspiring others. I honestly believe in the last couple of years our site has more positive and encouraging info and stories than back in 2008 when I joined, which shows this site has made a difference.
Lots of prayers and HOPE-CathyPOST POST POST!!!! Anytime “Cholangiocarcinoma” is in sentence it needs to be out there!!! Anytime we get a marketing video it REALLY needs to out there!
I posted on my FB page and asked everyone to share because you don’t know when your friends cousin sister hisband is looking for HOPE!!
Thank you for helping me share a story that wouldn’t have happened with out God, 2 strangers and Dr. Chapman.
Thanks-CathyI just wanted to post the correct link to Barnes’s video for cholangiocarcinoma. It is very exciting to see our cancer get its own video and recognition. I HOPE this video will change some one else’s life. http://www.barnes-jewish.org/patient-stories/cathy
Thank you, God, 2 strangers and Dr. William Chapman for giving me a story to share.
Lots of prayers for HOPE-CathyI am a CC survivor due to 2 liver transplants. My hero is Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. Dr. Chapman is a very knowledgeable aggressive surgeon for CC, but he is not a risk taker giving false HOPE. I know he has changed several peoples diagnose, maybe not by a transplant but by resections. Dr. Chapman and I did a video for Barnes and you can watch it at http://www.barnes-jewish.org/patient-stories/cathy He is also very phone friendly and will act quickly as he knows time is not our friend. Dr. Chapman saved my life twice and is a doctor with so much heart and soul.
Lots of prayers for HOPE-Cathy
