jathy1125
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Hi-I am so excited that you are in contact with Dr. Chapman, he is my hero. I hope you scroll up the page and read Wayne’s post dated August 15, 2011, it is very true. I am alive because of God, 2 strangers and Dr. Chapman! The amazing part is that is how he would list it!!
I just sent you an email, look forward to hearing more from you. Also the cost of liver transplant is about $750,00!! My CC battle has cost almost 3 million dollars!!! I have stopped complaining about my premiums!!
Lots of prayers and HOPE!-CathyBompie-I loved my port, I have no viens and it is so painful for something as simple as blood draws. I do blood draws every month and I can’t remember the last time I left with just one stick!! I had to have my port removed after my second transplant because I was going septic and all foreign objects in my body had to be removed, I cried about it. I had no problems with mine.
Lots of prayers and HOPE-CathyTiffany-I know we have talked about Dr. Chapman and I was wondering if Barnes is an option. I know when I made it to the transplant list my MELD score started at mid 20’s and when I was finally transplanted it was mid 30’s. Dr. Chapman was very aggressive in getting my score raised constantly. I was on list 5 months and had 3 calls, third times a charm!!
Lots of prayers and HOPE-CathyJason, Welcome and sorry you had go find us. I am a CC survivor! I will be cancer free for 4 years on May 24, 2013. I too was stage 4 and inoperable and my only hope was a liver transplant. (I had 2 !!). I have the most amazing story to share and you can read it at http://www.catherinedunnagan.com There is HOPE. I am alive because of God, 2 strangers and Dr. William Chapman. (The amazing part that is exactly how Dr. Chapman would list it)
My miracle worker was Dr. William Chapman at Barnes-Jewish Hospital in St. Louis, MO. I could fill a book about the heart and soul of this man. Dr. Chapman, Dr. Kato and Dr. Javle are some of the main miracle workers for our CC family. They all have been known to change peoples diagnose to give HOPE!
Please feel free to contact me if I can help.
Lots ofprayers and HOPE-CathyRoseGrace-Welcome and sorry you had to find us. I am a CC survivor due to a liver transplant. I have the most amazing story to share, please read it at http://www.catherinedunnagan.com under ther telegraph link. I am alive because of God, 2 strangers and Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO . Dr. Chapman is the most genuine caring doctor and very successful in his work, he help develop the Mayo’s trial. There are 3 of us that HAD CC that doctor has transplanted, and Barnes is only 31/2 hours away for you. Barnes is also list as a Cholangiocarcinoma center! There was one other gentleman who lived in Iowa/South Dakato area and contacted Dr. Chapman for his mom for a second opinion after contacting Mayo and was able to see him and schedule her surgery (resection) and treatment plan before his appointment date at Mayo. Dr. Chapman is a real hero!!
Your mother-in-law’s case sounds a lot like mine
Please call if you would like to talk (618-567-3247) or if if you would like Dr. Chapman’s number, he is very phone friendly!! There is HOPE!!
Lots of prayers-CathyWelcome and like all have said sorry you had to find us. I am a CC survivor thanks to a liver transplant. I like most of us, was not sick just itchy and the diagnose was the most thre ridiculous thing I heard. I was very fortunate that by a series of “miracles” (or mistakes!) I was diagnosed by one of the top doctors in this field and was immediately put in the care of another top doctor, Dr. William Chapman at Barnes-Jewish Hospital, St. Louis MO. I have the most amazing story to share please read it at http://www.catherinedunnagan.com there is HOPE. I will be 4 years cancer free May 24, 2013.
I was diagnosed July 31, 2008 and didn’t start my chemo till the first week of September. I had to have a staging surgery, a port put in, be marked for radiation and several other appointments and procedures before chemo could start.
Please feel free to contact me if you would like to talk or if there is anything I can do (618-567-3247).
Lots of prayers and HOPE-CathyDear Dorien, Welcome and sorry you had to find us. I am a CC survivor with an amazing story to share. I am almost 4 years cancer free due to 2 liver transplants. I am alive because of God, 2 strangers and Dr. William Chapman. Please read my story at http://www.catherinedunnagan.com it is full of HOPE. I realize not everyone can quailfy for a transplant but I share my story because I can honor my donors and hopefully show there is HOPE when the odds are against you. Miracles due happen!
Lots of prayers and HOPE-CathyPam, Glad you made it home and nothing like a happy pup to make you feel so loved!! When I had my second transplant my legs were bigger than giagantic!! They said it was lypmadema (not sure about spelling) and they were wrapped daily by two types of industrial ace bandages, it took the nurse about and hour and a half to wrap them everyday. This went on for a couple weeks. I was told when I was discharged if this occured again to go to a clinic that did this. I know breast cancer usually have this problem in there arm and wear a special bandage. You might check with your daughter or Dr. Sonneday if this could be the cause.
Lots of prayers and HOPE-CathyAlan and Chris, Welcome and sorry you had to find us. I am a CC survivor thanks to a liver transplant, there is HOPE!!! I have an amazing story to share and I keep it posted at http://www.catherinedunnagan.com under the telegraph link.
I am curious if they have discussed transplant with you since your tumor is relatively small (the same as mine). My miracle worker is Dr. William Chapman at Barnes-Jewish Hospital, St. Louis MO. Liver transplants for CC patients is still new and many doctors don’t discuss it, so my advice is to make sure it is ruled out as an option by a doctor who believes it is an option. I was diagnosed StageIV, inoperable and 6-8 months to live on July 31, 2008 and am in my 5th year of”6-8 months” to live. Dr. Chapman is an amazing man and doctor, he has changed a few of our CC family lives, saying yes when otheres said no!!!
I am alive because of God, 2 strangers and Dr. William Chapman. There is HOPE!!
Please contact me if I can help or you want to talk.
Lots of prayers and HOPE-CathySuzanne, sorry about your family news, I wish it was better for you and your family. I never physically met your dad, but he shared his life so easily he seems like and old family friend. He gave and still does give people inspiration and HOPE. Just have to ask does he have have his chemo/pray pants on!!!??
Lots of prayers for peace, comfort, and laughter during this time-CathyKris-EAT DRINK AND BE MERRY!!!! Like all have said be angry, I don’t know anyone who deserves it more right now!!
I love Lainy’s idea, for some Lainy time. I would love to suggest for all my fellow CC family we start a “SEND KRIS TO LAINY FUND”!! I think if we all send just a few dollars we can get your ticket to Lainy!!
Kris post and address and we can all pay it forward, not only helping you, but I know for me doing something that does make a difference!!
We love you Kris and you are an inspiration to all of us!!
Lots of prayers, HOPE, and hugs-CathyMary, Welcome and like we say hear sorry you had to find us. I am sorry you had to go so long with out the right diagnose.
I am a CC survivor, almost 4 years cancer free. I have an amazing story to share, I keep it posted at http://www.catherinedunnagan.com under the telegraph link. I hope by sharing it gives HOPE to all my CC family.
Lots of prayers-Cathy
