jeffg

Welcome Raye

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I just want to say amazing. The biggest show of love a daughter can give. I am extremely proud of your daughter and so happy all is going so good for you. It must have been one tough choice to go the route you did. My daughter wanted to do the same thing for me ,but with my considerable amount of mets, it would be taking to much of a risk for her my opinion. She is a little mad because I said absolutely not. I explained if it had just been a single tumor it would be a different story. So, If I’m not mistaken you basically killed off the tumor with radiation and use the good part of your liver and some of your daughters? I started ay Mayo almost ten years ago with resection. Mayo has definitely magnified their approach, which is so promising for so many. I’m glad you were one of the many. I’m sure others would love to here more of your success story; I know I would. It is so inspirational to read this post. Thank You for sharing with us. I have had radiation to the liver myself but they could not do it all without a donor, plus now with so much mets going on. All I can do is keep putting out fires sorta to speak ,until it gives up or I wear out. I truely believe in using the radiation route as much as possible, but after a while I’ll have to stop that as well. I believe in “You Never Know?” and Hope is always in the air. Your Post just proved to me once again that it’s so true.

God Bless,
Jeff

Joyce, I’m so very sorry to hear your Butch has passed on. It makes me feel so happy, that your Butch was able to pass on so peacefully. Also being able to mouth “I love you” before departing was such a moment to cherish forever.

God Bless You,
Jeff

Carol and Charlie, Glad to hear the overall stable condition. Charlie you deserve a break and getting tired easily, I understand what you mean. It’s so weird, I’ll be watching TV,Reading or sitting in front of the computer and next thing I wake up and I have

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this across the computer screen. If I’m sitting or reclined sure enough ZZZZZZ. Just got out of hospital today. Been fightining fluid in the cavity of my right lung for about 4 months, finally got painful enough and enough pressure so I could not walk. Amazing!!! 1 1/2 liter of fluid drained (parathseisi) sp. I would recommend any one having alot of pain and taking diuretics/lasix. to take a second look and consider or insist as I did ,getting it drained. I can’t believe the amount of relief. Why they wait so dog gone long beats the hecht out of me. Learn somenew every day. Getting fed pain pills on one end and then having a condition that can be causing pain on the other. I’m going to impress upon my Onco the amount of relief during my next visit.
Quanity or quality it a hard question to answer. You picked the right one Charlie. well, I’m off and running. Feel to good to be sitting at this computor any longer today.
Cherrios,
Jeff

Lissa,

I echo Ron 100%. With the exception of a particular regimen of chemo that I took, Staying busy is the name of the game or you just loose muscle tone and drop in to a depressed mood that will hamper your battle. Maybe I can’t do a full days work or I have to take a few more breaks at the many home projects on the honey do list, but I keep going and get it done. Just be cautious if having some side effects. Taking care of and having your loving Granddaughter to keep you company is great medicine in my book. Just know your limits and get some rest when she goes down for her naps. I think it’s awsome. I was doing the same thing for a while. I had to give it up when I got mets to the bones ,as I was unable to pick them up or rough house. They adapted pretty good though ,they know they can’t run on jump on PaPa anymore because of my bad ribs. When they visit , they give me gentle hugs and say you okay today Pappa and pat me on the back? Makes me laugh and a little sad at the same time.

Bless Ya!,
Jeff

Barb—- This cancer in general is slow growing, but depending on individual genes and body make up, it can become unpredictable and become very agressive. To make it simple, some times cc is slow and sometime it is fast,but more often slower. When they do a pathology report they can usually tell by the amount of keratin found. From what I’ve been told yhe higher the keratin found during biopsy the slower it’s grow. Mine was show as extremmely high amounts of keratin in my biopsy. That could be why I anm 9 1/2 going on to ten years. This is just my personal conclusion. I could be out there in left field. However the more chemo treatments I have taken , it seems to me anyway the growth rate has increased. Again thas my personal observation and conclusion.

Jeff G.
P.S. Thanks Barb -You have got me started on a new area of research: keratins and cytokeratins and the many different types that have direct and indirect relationship with the body’s chromosomes , genes, cell diffferences, growth ,no growth of different types of cancers. I need to find out what type of keratin was significant on my pathology for starters and take it from there. There is a lot of scientific mumbo jumbo involved, but it mentions the sKin ,hair, epithielium, some internal organs including the pancreas. Keratin is use to help people grow hair. I’m sorry ,Just thrilled I have a new research area to dive into. There has already been discussion on Genes and this is closely linked to it. If science can purposely cause cells to divide and grow externally, then what about stop growing internally. My adventure for this month. May be nothing but who knows. Thanks! Knowledge is power they say.

Hi Barb D,

Sorry to hear about your Dad. You would think at age 83, these disease could have just bypassed him. I hear your stress Barb, but don’t really have much in the way of advice. There really isn’t anything in between for him according to his doctors. Have you thought of getting another opinion? You might read above, a post from DR. Giles about a social worker with family and mother with CC who was stressing out. It’s so difficult to deal with a loved one with this disease. Does your Dad live with your family? I can see the dynamics if so. If he don’t, is there someone willing to spend time with him to keep him safe. The doctors didn’t mention anything about whether surgery was a possibility at his age and health? I’m so sorry Barb times like this it’s hard to decide what to do next. Hopfully his stent placement resolved his juandice problem. If you have some specific questions, feel free to jump in. Or if you just got to let off steam we’ll understand as well. Unfortunately this relentless disease doesn’t give us all that much to consider depending on each ones particular situation. I wish I had a magic wand almost every day. Just feel free to share Barb and just maybe we can suggest something that might help , even if it’s only a little bit. I pray God gives you the strenght to deal with this all. I surely hope others jump in and help a well. Also don’t hesitate to ask for help, it’s usually closer by you than you think.
God Bless You and Your Dad, and the whole Family as it effects you all.
Jeff G.

Ron —-Wow the F-111 site was remarkable. I actually was in involved with the recovery operations on the RAF Lakenheath ones. I transported the pilot and navigator to debrief in 83 crash in the North Sea. I attended the memorial service of the wives, of the one that crashed in the cullin mountains of Scotland. It was so sad, One of the pilots wife was 8 months pregnant with their first child. Thanks for the site link. I better stay on subject now. but will certainly e-mail you direct if I remember any more.
Bless Ya!
Jeff

Ron, My brother in law and wife were planning to come for a visit from England. When Trevor explained they have to purchase medical insurance to go on holiday, it blew my mind. He told me you have to. Has it always been that way? Is this something the travel agencies say is required or is it really law. The airlines don’t monitor this when you by a ticket direct do they? Sorry if a little off subject, but if someone in the United Kingdom wanted to travel to another country to get medical help for CC, just don’t sound right. Wow, the 8 years I lived in the UK, neither my wife or I had to pay insurance to get a airline ticket. What else are they going to come up with next? Sorry, I wonder if I buy the tickets and send to them, if they would be required to buy insurance. Sorry for getting off track, but it’s not fair just because you have cc, you shouldn’t have to pay such a rediculous fee for insurance. If you bought a ticket directly with an airline ,do you have to provide an Insurance number now? Wow!
God Bless Ya!
Jeff G.