jeffg

Hi Hollie, Your Aunt Sophie’s tiredness certainly can be related to the chemo and pill she is taking. I can’t remember the pill she is taking but either xeloda or tarceva. After taking these pills which is part of her chemo regimen and the infusion itself for a period of time, the strenght of the regimen accumulates. In-turn affecting her blood counts. She should be having her blood checked weekly to prevent from having to much chemo treatments to fast and to ensure her red and white blood cells don’t fall to low and cause anemia. The doctor I’m sure will check for this tomorrow. There are medications that can be given if counts are to low,but normally rest and taking a break from chemo will allow them to build back up on their own. Sometimes the doctor may even cut back on the dosage of her treatments to lesson the tiredness effects. Another thing could be dehydration, by not drinking enough fluids. They can rehydrate her intraveinously if that is the case. Hollie ,please let Sophie know we are all looking forward to a positive report from her visit with the doctor tomorrow and will be thinking of her.

God Bless,
Jeff G.

Wabals, It appears you have had a bumpy but so far successful journey. God has certainly been with you. God is always with us.

Bless You Guys!
Jeff G.

Hi Charlene and John, Hope all is going as well as can be expected? I am doing fine. Went to my Onco this morning and got my morphine dosage increased as the dose I was on for over a year now has kinda worn off. We discussed some more radiation treatments, but I’m holding off until October 25th. We also discussed trying some Tarceva. Again, I want my own immune system to get some type of recovery from all the chemo I’ve done in the last three or so years. It’s been about 2 months now and my appetite has been really good, but for some reason occasional difficulty with digesting, not to bad though. My weight has basically maintained. I do have one soft tissue tumor that gives me trouble by compressing my spinal roots and my rib pain flares now and then. My wife says at night time, I will once in a while have a big body jerk, so I have to try my hardest to stay in a certain position while sleeping. Other wise it doesn’t bother me. When I have my followup scan in October, we will devise a plan of attack. Maybe chemo, radiation, or telescopic surgery. Maybe I’ll feel good enough to hold off for that novel treatment, that seems to keep evading us. I will not go through major surgeries anymore. I’m still staying fairly active, actually started on another house project this pass week. Although my pace is slower and I need help with heavy stuff, I’m still getting the job done. I went sea-dooing 2 weeks ago. It wasn’t planned. I just took stuff out of my pockets and went for it! Had my wife sitting behind me and she was squeezing my ribs so bad and screaming, my adrenaline just poured. Upon returning from the middle of the lake, I decided to end the ride in a thrill, a “loop de doo” and dumped us both. Ha! Loved it! I didn’t hear any more screaming Ha!Ha! Man did I pay for doing it though, pain for three days straight. By golly it was worth every moment! I continue to do my EFT on a daily basis and attitude wise, it really is helping me. Yes, I get down in the blues but when I apply EFT, I get that surge of energy to motivate. Well, that’s How I’m doing at the moment.
You know, it is amazing how people on this website become your extended family and share each others trials and tribulations. More so than some of your immediate family in my case. It’s sad but true. But I understand their lives are happy and flourishing and busy with go , go, go,. I can’t begrudge them of living life to the fullest. I ‘ve tried keeping up a few times, but the stamina just isn’t always there. Each day is new and different and I have to adapt to the challenge and live it, or go crazy. Beings I’m already crazy, I adapt easily.
Charlene, “DITO” with your thoughts and feelings. It’s so awsome to have such great cyber relations, especially when there is no doubt the thoughts and feelings are truly flowing from the heart. It defines a new meaning of the saying,”common bond”. Charlene, When or if you feel you need, my offer stands with talking with John.

Bless You Both!
Jeff G.
P.S. Thanks! You both will continue to be in my prayers along with to many to list, they all know who they are.

Whom it may cooncern: It appears that the Zometa treatment did not really do much of anthing for me, not saying it wouldn’t help you. It just created to much fluid build up for me because of all the mets I have. So I had to back off from that Treatment. Someone with less mets maybe could benefit from Zometa. You never know until you try.

God’s Speed,
Jeff G.

Hi Jenn… I think I already posted about your trial and look forward to seeing a positive results for you. I know you can think of more funfilled organizations to be a member of, but I welcome you as well and want you to know there is so much experience and support among members of this site, it’s great.

Wishing and Praying Only the Best,
Jeff G.

Jenn, certainly wish you the best and will look forward to your updates of this trial, as will other members of cholangiocarcinoma Organization.

Power and God’s Strenght,
Jeff G.

Hi Lilly… I have tried 5-fu and leucovarin. It was the last combination I tried , I personally had no results other than harshness and side effects. I actually stopped the treatment as I felt it was causing me more pain and dicomfort than it was doing me any good. Maybe I was to quick to respond that way ,but my own body disagreed with it and that was it. Different chemos work differently on different people , I still believe that and still remain hopeful that someone will benefit from these chemo regimens. If fact some people do ,but not tward this particular disease. I’m sorry that your Dad and family have to endure this relentless disease and wish only the best for you all.
God Bless,
Jeff G.