jeffg

Richard… I would have CBC done to see if her WBCs are elavated for possible infection from inflamation. The Lady who use to live next door had recurring bouts of cholangitis and told me when she had a bout it felt like she was all blocked up and had pain like she was passing a stone she also mention she had itchy feeling of chest and neck area with a fever and eventually would be put on antibiotic cypro(sp) due to inflamation and backed up bacteria became infected. That’s the only experience other than my own post liver resection, I use a stool softner for irritable bowel syndrome I gues they called it. Hope she feels better soon.
Jeff G.

Mary. main article on Cancer Compass today was the use of Ip-6 with inostol and spinach listing all the cancer fighting minerales and vitamins: vit C,A,K,E, B-6,Manganese,magnesium iorn,caliciam,potassium,copper,phosphous,zinc and folate asn high fiber, as well as beta- carateen. the use of Ip-6 was a controversal thing about taking during chemo treatments. But thet say it ‘s a myth and could even assist in killing the cancer cells. I used to take IP-6 with inostol and eat alot of spinach. I thing I will start it back up again just for the hecht of it. Of cause will need to add an iron supplement if taken long term Ip-6. Check it out if your hubby likes spinach. The title is” do what the sailor does” Just thought I would past along. You have a nice day. My wife returns from England today so I know I’m happy. Just going crazy waiting to go pick her up at the airport. Only 15 minutes away.
God Bless You,
Jeff G.

Mary, From what I understand is that althought cholangiocarcinoma and adenocarcinomon is of the same family of the carcinomas, cholangio is when the disease begins from within the organs and adeno is when is mets from other location and usually begins on the outside of an organ, which I think can explain why some may do better than others as far as survivabulity. It takes a real good pathologist to determine the difference and then they can make a mistake and have to double check as under micropscope the cell differiation is so much alike. I understand the treatment is basically the same if advanced but eventually adeno works it way enternally. I actually researched and found that out on a site yesterday. I just typed cholangiocarcinoma vs adenocarcinoma and got a few hits explaining the difference. Either can be intraheptic or extraheptic and lower grade vs higher of either can be determined by a good pathology report. The site I hit actually show CT Scans and MRIs of the difference with views of cells showing the different makeup. I will try and find it again and bookmark it to share. If anyone has seen or knows of this please jump in.
From what I also understand is if it is found earlier enough and is more on the adeno side and is resected your long term surviability is more likely. I only understand to a point as it is all considered systemic. I’ll try and find site again and share it with all. I wish you and your husband the best.
Jeff G.
P.S. Thanks for the wish and the same for your Husband and you of course. Beautiful day out today; got to plant some more flowers. Looking primarily for colorful perenials that return every year.
P.S. #2 Baylor College University of Texas is were I got a lot of the inormation http://www.baylor.edu article of the month.

Hi Serena, This is the first I have heard about Neem. I Have been doing a lot of searching and reading the last couple of days and it has got my attention. I will keep researching this apparently potent product. Don’t ever think your pulling at straws but think of it as as added knowledge for us all to evaluate. Thanks a bunch. If you hit on some ineresting sites I would love to read more about neem leaves and powders / oils.
Bless Ya !
Jeff G.
P.S. We must all remember 100% verification is needed as unfortunately some web sites are 100% product pushers with alot of untrue information and testimonials and false products. Must be careful. Internet scammers are world wide and they love the U.S. dollar. Just my safety tip for the day.

Dear Teresa, My deepest sympathy and prayers are coming your way. It saddens me greatly to hear of your Son’s passing so early in life. It sounds like he was a real ambitous, responsible and fun-loving Son who will be missed dearly I’m sure. God Bless you my Dear. I’m sure the light is shinning it’s brightest.
Jeff G.

Hi Jliu168, My name is Jeff. I’m sorry to hear about your Dad. Your right this disease of CC doesn’t discriminate what -so-ever. It sounds like your right on top of treatments and procedures. Welcome to the site and if you read or see any thing of interest or would like further explanations don’t hesitate to ask. This site has been a God Send to many of us simple by sharing and answering helpful questions. Many of us have blogs and have also included our e-mails to converse directly. It is difficult to really advise on the type of treatment but we can certainly suggest some things from our individual experiences. A couple of things from me is steer the course and maintain a positive attitude to the best of your ability. “Attitude” is so Important! Stay away from the qaukery sites that claim miracle cures, Love and laugh, and review and watch for the new treatment releases and maybe consider trials down the road. I personally have made it pass the 8 year mark. I feel so arkward everytime I say that but people need to know you can live with this CC for years in a lot of cases. You said you have read a lot of posts, so you know this is not always the case and CC can be cruel and aggressive. There is a lot of little tid bits shared on this site that can be helpful when it comes to side effects also. Again, I’m sorry Your Dad was dragged on to this unfortunate roller coaster and one last thing is to be a strong advocate and don’t hesitate to speak your opinions with the Doctors. Just do your best and there is no room for guilt, CC is not our fault. Hope! … a Cure is around the corner…..
Jeff G.

Father’s Duaghter, I’m a Dad with the same disease with a Duaghter 28 years old and a Son of 26. I can’t forget my two grandchildren Brookie and PJ; age 2 and 5. I don’t really know what advice to offer you. I can say all the thoughts you have expressed in your post are feelings My children and I have lived with and continue to do so. I have CC on my entire liver, both of my lungs, and now a good possibility it has moved to my ribs and hip bones. I was first diagnosised March, 1999 and still continue one day at a time. I have had a couple operations, procedures, radiation, and currently on my 4th different regimen of chemotheraphy. You know I’ve been through the complete cycle of hope, anger, mad at the world, tears, no hope, and being scared. Not scared of dying but scared to leave all my loved ones as I feel I can still help and want to help them just a little more. I wasn’t prepared and I guess still not as far as leaving my loved ones. I have made peace with myself and with God now and know it is God’s will for me to leave this earth maybe sooner or maybe later. So far I have been given 8 years; Iv’e been able to relocate so my family is all together, I’ve been able to see both births of my grandchildren, I have just made another wedding aniversary (31 Years)….I at what time didn’t think I was going to see our 25th. You appear to have done some homework about this manipulating and cruel disease and know that it effects everyone differently as far as progression and treatments as well. I remembered when I told my family I did not want to go through this anymore and I also told them I was just a burden to them all. But it turns out I have been able to assist and help them all as well as them helping me through some tough times. You know I realized after a while this is “love” so surreal ! As far as respect goes ; I still expect respect from my children in the Dad way but I also respect there thoughts and suggestion as well or my Daddy tutoring would be all for not. In saying that, wisdom comes from experience and age. When it comes to end of life issues Daddy’s are on an even playing field and some times have difficulty dealing with their loved ones as they can’t rely on their wisdom; that gets a little scary. I can honestly say I haven’t worked through everything myself and don’t know if I ever will completely. My duaghter still cries and doesn’t understand she can’t just give me a lung or part of her liver. It just don’t work that way. My wife expresses trying something new and different but I refuse to put my family in a position where they would not have a roof over their heads. Again if I can’t do something or at least this one last thing, then my life may have ended sooner, who knows? My life Insurance may not be much but I can leave this world comfortably knowing it wasn’t sucked up by medical and hospital bills as I will pay ahead or as I go. One thing I can say is that love will conquer the power of fear and sadness. And You surely should not feel guilty about spending time with your Dad. I have issuses with the hovering over me. But we all came to an agreement that I want them to press on with their daily lives and if I need my space or when I need a little help I promised to let them know as I don’t want this CC keeping the family hostage. I could go tomorrow from a clot to the lungs or 3 months from now due to kidney failure, or maybe not until my 32nd Wedding Anniversary if this chemo keeps things moving slow. Just let your Dad make his choices, as time progresses (the Issue Time) Dad may say oh I’ll give it a whirl or maybe not. Although it will be extremely hard you don’t have to accept the no go, but respect and dignity comes in to play during these trying times. Some call it stubbornest but others understand and know Dads live the reality of life til the end. There is hope all over the world!!! Some of us fair better than others, We are all individuals with different results. Praying to God for guidance and talking with Family and friends and even professionals will help. But it is hard so hard no matter what. Giving hugs and letting someone know how much you love them is hard for some hardliner Dads, usually because they were never showed how.
God Bless Your Dad and your Family and You!!!

Jeff G.
P.S. There are new treatments being worked on everyday. Hope is in the Air!