joolz822
Forum Replies Created
-
Posts
-
If I get into the trial, I’ll be starting SIRTS in April. The chemo is capecitabine. Is that what your wife took? How did she handle it?
@Pam – I keep a notebook too. It’s a great idea an really keeps things organized. (Something I can always use help with.)
Lainy wrote:Joolz, best of luck on your big rehearsal the beginning of April. April means Spring and Spring means new beginnings and that is what I am hoping for you!Yep. Spring is for all new things.
marions wrote:Joolz….good luck and regarding Xeloda it is a drug commonly used for this cancer. You know how to find previous postings? Go to top, google function, type in Xeloda….and voila, tons of postings will appear.
All my best wishes,
MarionI looked it up on the Net and found a lot of information already. I keep forgetting this board has a search function!
Nancy – Thanks for the best wishes! I’m hoping it brings me positive results too instead of just side effects.
@Marions – Thanks for finding the study!
Lainy wrote:Joolz, I find this news very exciting and wish you all the luck in the world. I have one problem though. Do ya think maybe they don’t have to put a Gender on it by calling it SIR? Just kidding, this is great and I love your attitudes!Yeah, Sir-Spheres bothers me. To Whom It May Concern Spheres is much better!
Full of Hope –
I just went through 3 rounds of an 8 course treatment with gem/cis, had a MRI and discovered it wasn’t working so chemo was discontinued. The tumors has grown and a bunch of new ones were discovered. In Feb 2009 I had surgery where they took a good part of my liver so additional surgery is not an option.
My Onc said there was nothing else she could do for me and referred me to Fox Chase Cancer Center. I have an appointment with them this coming Thursday.
Gem/cis seems to be the basic route everyone takes.
I was diagnosed with colon/rectal/vaginal cancer in May of 2009 and had the tumor removed in August of 2009. I had a permanent colostomy installed. In November of 2009 I was operated on due to a complication from surgery and or radiation. (They never could decide.) In Feb 2010 I had half my liver removed. This was in addition to chemo and radiation. I was found to have Stage IV CC two days before Xmas 2010. My Onc said many people who have colon cancer get CC although they aren’t sure why.
I started on chemo of gem/cis but after three treatments it was found not to be working. I’m off it now but am going to Fox Chase Cancer Center next Thursday to see if they have anything available for me.
chezWright@aol.com wrote:As others have said, everyone is different in the way they deal with the diagnosis. I’m the type that likes to talk and likes to be asked about it although not dwell on it. A friend, though, does not want to mention the C word or have people ask her or talk about it. She thinks that will define her. I have noticed that people seem to look at me trying to assess my current status as though I have a big scarlet C stamped on my forehead, but that’s okay because I really know they care. I’m sure your friend will lead the way in letting you know how to deal with him.Kathy
But her CC does define her at this point. It sounds as if she’s terribly afraid and so denying what is happening to her. On the other hand, I get the best chair in the house when I’m at friends houses. *g*
I had half my li_er (the key between C&B doesn’t work) taken out in Feb 2010 but not for CC. I had run of the mill li_er cancer. It took me a long time to feel human again. I had chemo/radiation after the surgery. It was tough… at least for me. Then I was diagnosed with CC in Dec 2010. My remaining li_er is riddled with tumors. Gem/Cis has not worked.
My Onc says there’s nothing else she can do for me. I ha_e an appt at Fox Chase (all they do is cancer) here in Philly on March 10. Looking for options.
Good luck with your treatment!
