katieloumatt
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Dear Debby,
I think what you are feeling is totally ‘normal’, be gentle on yourself. It is still eary days….
You nursed your husband through this awful illness and now you are in a period of limbo. Like Janet has just said you began your grieving at diagnosis.Now comes the adjustment, it will take time ….
Thinking of you and your children, give them an extra big hug and go together to the bereavement counselling. Be gentle on yourselves, it will take time to heal after all you have all been through together.
Katie
Dear Anne,
Sending you my sincere condolences on the loss of your husband.
I lost my Dad 7 weeks after he was diagnosed last May. Prior to some elevated liver function tests he had no symptoms whatsoever. This cancer is silent, progressing until when it is detected it has taken a hold.
Wishing you strength as you move forward.
Katie
Hi Matilda,
Like Lainy, Janet and Marion have said I think your Dad needs reviewing regarding his symptoms. His pain and constipation need to be addressed.
Good Luck,
Thinking of you,
Katie
Melissa,
I am so pleased that you have found this site so helpful and supportive as I know your Mum did.
Please remember we are all here for you to ‘walk alongside you’ on your journey through your grief…
Come back as often as you need to.
Sending you positive thoughts,
Katie
Hi Merilee,
I would just like to add my welcome to the site like the others have done.
I know what a complete shock it is to discover this cancer, it is insidious in its onset and progresses silently before any symptoms show.
I think looking for a second opinion is a good idea, I live in England so can’t help with recommending anywhere in USA.
Just to send you my best wishes as you and your family embark on this journey with your Dad…..
Katie
Hi,
Two drugs used in England are Cyclizine and Nozinan, not sure if they are available in USA or if they have different names.
Good Luck with finding some anti-sickness drug that works for you.
Katie
Melissa,
Sending my sympathies to you and your family on the loss of your Mum. My Dad passed away last June so I know exactly how you are feeling.
Thinking of you as your journey continues,your Mum will never be far away from you….
Katie
Hi Helen,
Glad your visit went well. Please could I have a copy of the research when you have received it.
Thanks,
Katie
Hans and Kris,
Have been thinking of you both whilst at work today, so sorry the surgery will not go ahead.
Wishing you both strength, with love
Katie
Jeff,
So sorry to hear about Marc’s chemo being postponed, fingers crossed he gets that soon.
What a shock for you all to hear of your brother’s cancer, hope his treatment goes well.
Katie
Hi Kate,
Welcome to the site where as you have already experienced you will gain a lot of support, knowledge and new friends as well….
I found this site in August ,5 weeks after my beloved Dad died. He was diagnosed in early May last year and died 7 weeks later, like your Mum with no symptoms other than altered blood results. He underwent an unsuccessful liver resection and never regained consciousness.
I am glad that you have sought help from a pschycologist who may help you through your unresolved grief. Good Luck with your sessions and come back to update us how you are doing.
Regards, Katie
Hello Mike.
Please can i join the others in welcoming you to the board. The support, advice and guidance is second to none.
Keep coming back with any questions/worries you may have, there is usually someone around to help….
Katie
Hi ThomasN,
Firstly welcome to the board and congratulations on your post Whipple success. You must be very encouraged.
Thank You for your advice regarding low platelets and a little physiology.
However, you commented about the lack of answers/solutions on forum/ support boards. I beg to differ, the people who post on here are knowledgeable, experienced, kind and sympathetic and unlike some other forums someone will always reply if they are able….
Of course reading medical journals online can give you the up to date research and trials but what they can’t give is support and advice from those who ‘have been there’ and experienced this very rare disease.
Wishing you well with your treatment and hope you pop back to see what a friendly group of people we are.
Katie
