katja

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Viewing 15 posts - 31 through 45 (of 199 total)
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  • in reply to: Dad is now at peace #48207
    katja
    Member

    Andie,

    I’m so sorry to read this but thankful that your dad went peacefully with you both by his side. I wish you and your mum strength for the coming days. You have fought this battle so gracefully and I hope you can draw on the happy memories of your dad to get you through.

    Kate xx

    in reply to: Sensitive: End stage #48077
    katja
    Member

    Hi Andie,

    I’m thinking of you all and wishing you strength. This is so unbelievably hard for you and I wish I could help. I think Alan’s mom has written some incredible words here. Thinking of you lots and hoping for peace for you all.

    Kate

    in reply to: Clean so far (sort of …) #47893
    katja
    Member

    Good to hear your story Jim although wishing you didn’t need the ‘sort of’ qualification.
    A friend who’s a doctor said to me once ‘you’d be very surprised if you saw just how steady the best surgeons can be, and they can keep at it for hours if need be’. If your man comes recommended by the president then we’re happy.
    Good luck.

    in reply to: We lost my dad last night #47663
    katja
    Member

    I’m so sorry for your loss, such a tragedy for you and your family. Wishing you strength for the coming days.

    in reply to: Wikipedia and cholangiocarcinoma – what do you think? #47795
    katja
    Member

    Thanks for welcoming my dad everyone! I can agree with what he says about wikipedia, in that it is terrifying, although I wonder about the word ‘incurable’ because I don’t think there are many ‘curable’ cancers.

    It was actually the pancreatic cancer website that gave me and my mum hope, as they say that ampullary/bile duct/head of pancreas tumours are more easily detected, and have a more positive prognosis.

    I did notice that cholangiocarcinoma.org comes up higher in the google ratings now than it did when I joined over a year ago. What we need is more research so that wikipedia can cite more positive outcomes. And that, Dad is where your trial comes in, and the money we raise for AMMF through our various ventures (has my brother thought through his Land’s End to John o Groats cycle?!). As Marion says we are looking at research at least five years old.

    Andie, don’t think anyone can wait until the day when Joseph is running around with a football/rugby ball, least of all him. He’s already a little whirlwind.

    in reply to: Dad Update #47762
    katja
    Member

    Andie,
    I’m so sorry for what you are going through now. I am thinking about you and wishing you strength and courage. You and your mum are already doing so well. I hope home hospice are good and help your dad. It’s especially heartbreaking to hear of his pride.
    Thank you for welcoming my dad.
    Kate

    in reply to: diagnosed with cholangiocarcinoma in 2007 recent ER trip #44086
    katja
    Member

    Deb,
    It’s great to hear your story, I haven’t spotted you before. I LOVE your tattoo! It’d be so funny if tattoos showed up on scans…
    Glad you responded well to the antibiotics etc and good luck for the future.
    Kate

    in reply to: Remembering John Ur #47538
    katja
    Member

    Me too Nancy a wonderful idea – I love it. It’s extra easy for me to remember as it will be my dad’s 60th birthday on 17th march, a big milestone for him. We are hoping to raise funds for AMMF over this year to celebrate.
    Kate

    katja
    Member

    Thanks for posting this Gavin.

    in reply to: Recovery #45894
    katja
    Member

    Kathy,
    Just thought I would chime in with my opinion on this. My dad had a successful resection and went on the Bilcap trial – had he not joined the trial he would not have been given any chemo. I wished at the time he was in the US and then we could request chemo – you can’t do that in the UK. We (as a family) decided that we wanted him to do everything now to try to combat it. The trial tests Xeloda (Capecitabine) against doing nothing after the resection to see a) whether and how quickly it comes back and b)what the patient’s quality of life is like.

    My dad managed fine on the full 8 cycles at the full dose. He had little ‘tired’ days each month, and felt ‘zonked’ sometimes, and had diarrhea (that might have been related to the operation too). We went on at least two holidays and had numerous family outings.

    I wish you really good luck with your decision. I’m so pleased with your news today, enjoy this precious time. I’m sure whatever you decide will be the right choice for you.

    Kate

    in reply to: if a blood relative had CC… #46990
    katja
    Member

    Both my dad and my maternal grandmother have had CC, different types, and both were the healthiest possible people beforehand – I don’t think there is anything they could have don’t to prevent it. Being otherwise healthy obviously gives you a benefit when faced with any type of cancer.
    Like the others say – bad luck on our part. I won’t change my behaviour except to value the time I do have now.
    Kate

    in reply to: ABC 03 Trial – recruiting September time #39265
    katja
    Member

    Thanks Andie,
    It seems such a shame that the trial keeps getting put back. I wonder what the reason is? My dad’s trial keeps having to be extended as I don’t think they can get enough participants.
    Kate

    in reply to: Linda Z… peace at last #46588
    katja
    Member

    So sorry to hear this. I feel devastated for little Kevin.

    I too loved her signature line. It means such a lot. My sincere condolences to all of you.
    Kate

    in reply to: Devoncat no more #46275
    katja
    Member

    Hans,
    Thank you so much for continuing to post. I’m amazed by your strength and Kris’ spirit. There are so many of us thinking of you all around the world.

    I remember it so tickled me when Kris was talking about the cloud of green CC gas that followed her around.

    Safe journey.
    Kate

    in reply to: home for the hollidays I pray #45687
    katja
    Member

    Have they ever done biopsies to determine if it is cholangiocarcinoma or a different type like colon? Really hoping for a positive doctor and a sensible plan to be put in place for you.
    Kate

Viewing 15 posts - 31 through 45 (of 199 total)