kris00j
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Porter,
My numbers were up and down throught chemo, also. Of course, I never had surgery to remove cancer.
Bili was usually up after chemo, and RBC and platelets were down after a week or so. Never enough to cancel chemo, so I was happy about that. But my onc would tell me if I could have raw veggies or not! That would be the Princeton onc, not Dr. K. He and I would joke about whether I could have a blt or not.
Chemo is hard on the liver, so numbers jumping is to be expected.KrisV
I’m so sorry to hear about Marks problems. I don’t have much to add except they did warn me I might have reactions to the radiation as long as 6 weeks out.
I didn’t have any serious reactions, but they warned me that I might develop problems.
I hope Mark starts improving. Hopefully the walking helps.
Other than that, all I can say is I’m sending positive thoughts and prayers for healing.Welcome to the family, although I’m sorry you had to join us.
There seems to be a large number of us from the NJ area. I grew up in Summit.
When you get time please let us know how your brother is doing, what care he is receiving, etc.
I’m sure you will find many helpful and supportive people here.Crissie, I, too, am thinking of you. As I am the patient, I can’t imagine your emotions. But getting your dad comfortable with care close at hand is the best thing you can do for him. I know you must be feeling helpless, but let professionals help him.
My advice: do whatever you can to help your dad. Let him know you care for him. And be there to listen to his wants and needs.I am sorry your dad is declining , but hopefully when you meet with the new onc things will turn around. There are other options now besides typical chemo. Hopefully there will be something else to try. I’m sure MD Anderson has some trials that may be possibilities.
When I was diagnosed and the cancer was active, I lost 40 lbs. in 2 months. Of course, I also quit drinking alcohol and tried to eat better. The nausea and tiredness could also be attributed to the cancer, although I am also not a professional… Just a professional patient!
I’m glad you all got to enjoy some “cancer free” time with your dad. Here’s hoping for many more such weekends.Thank you Julie. Hearing that helps keep my spirits up.
Carl, I got to cru shortly after you left. I did hear Lynn is able to stay in the trial. I’m hoping the reduced dosage works for her (fingers crossed!), I will be waiting to hear what happens in 6 weeks! I guess it will be a couple of months before we cross paths again… 12 weeks, to be exact!I did discuss the CD45 study and the new one in Thailand with Dr. Denlinger. She said the Thailand one sounds much like one at Fox Chase. So there ARE options out there! With more options monthly!!
So… 12 cycles down. It’s been a year! Where DID the time go?
CA 19-9 is up to 40 again
But other blood work looks good. Unfortunately, we are doubling the Lasix because the left foot is SWOLLEN.
I saw Lynn and Carl today, although it was just in passing. I wanted to get to Dr. D and they were on their way back to cru. By the time I got to cru, they were gone.Have a great trip and try not to worry. I know… It’s hard but hopefully Hawaii will keep you relaxed!
Congratulations on your wonderful news!! I’m thrilled for you!
I do relay, too, but if don’t get that involved. Good luck on the speech.Leslie,
I am sorry to have to welcome you to our family. But you will never find a more caring group of people.
First off… BREATHE!! I remember my first few months were hectic, and I didn’t even start chemo. But I had a type of surgery, so I know how much goes on the first few months.
I don’t know much, but can say each facility should be able to help you with questions. I know the trial I am on you have to go to Fox Chase. They pay for blood work, treatment /meds. But travel, accommodations and scans are the patients responsibility.
I have a friend on another trial for a different cancer. She is going thru MN. For the first 6 months she was responsible for travel, accommodations. But now she can go to a local doc for her blood work. And they send it to MN.
I know it’s not much help, but i hope it helped a little.
My suggestion is to find a trial and call the facility. See how they can help. And use Hope Lodge if possible.
As far as his treatment… Blood levels are often decimated by chemo. Just remember, even though he is currently on a week or so break, the chemo he received is still working.
Good luck with the treatment and upcoming scans.
