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Caroline, such a sad and inspiring post all in one. I’m sorry you have to go through this, but am happy your mom is happy in LA and spending time with family.
I am sure this is not easy by any means… But I want to add that I hope I have as much strength and grace as your mom when my time comes.Oh, my! I need to respond to so much… (Deep breath)!
First off, I’m happy to hear you are home! And, judging by the length of your post, you are feeling better?? I hope, anyway.
Kudos for the new onc! You need to like your onc! This is most important! And she should be able to consult with mayo or somewhere else if you just want a “real” cc hospital involved. I need to say YAY! again that you like an onc!
As for the port: I guess it depends on how hard you pulled on the IV. I used my power port in 3 days, so that hopefully isn’t a problem. But I never pulled at it, so I hope nothing happened. It’s the best thing I did, even if I STILL feel it when I lay on my side. A small price to pay.
As for the numbing cream… I got it, but after the 2nd time, I didn’t bother. It’s got to be put on 30 min prior (or something) and it’s messy. And after the initial stick, accessing my port doesn’t usually bother me. After 3 years, I think I’ve had problems accessing it 2x, and maybe 4-5 times it bothered me the whole time the needle was in there.
My hosp has new adhesive covers for the ports. And they use a swab on the skin first to keep it from sticking as badly. Of course, that makes my skin red and itchy, but they don’t have the old stuff anymore.
Blood clots will labor your breathing. I’m just glad to hear they caught and are treating them. And, yes, the chemo is discouraging, but it works for a while, so even though you only had one treatment, hopefully it’s working. Try not to dwell on that right now: get yourself better so you can start again.
All in all, your last post sounds promising, for the fight when you restart. I hope it’s soon! Keep your chin up, and enjoy being home! I went through hospital stays and delays when I first started, too. Unfortunately, it seems to happen quite often.Oh, and you can bet my onc will hear about this on the 19th!
This is so exciting! I am so happy for you!I hope everyone got to read the article on Melinda! Wonderful!!
please use this link for the article:
http://www.nytimes.com/2014/05/09/health/doctors-use-patients-immune-cells-to-shrink-cancer-tumors.html?hp&_r=1Jack, welcome to our growing family. You will find all kinds of support and information here.
Your friends story sounds similar to mine. I ate fairly well, drank a little, exercised, and went to doc for abdominal pain. But I was already stage 4 and inoperable.
There have been so many advances in the 3 years I have been on this board. I wish your friend all the best with chemo, with nothing but wonderful results!
Please keep us posted.Oh, Stephanie, I am so sorry. My thoughts are with you. I know it’s not much, but at least he is now cancer free. And he will be with you always.
Wow. What a journey Lori has had. You’ve come to the right place for support, and information.
Yes, deferring chemo can be a risk. But if the 2nd opinion doc is correct, it is slow growing. And even if it is fast growing, delaying chemo for a few weeks will hopefully not make too much difference.
We had to delay chemo for me initially because of a blood infection. So even though I was also inoperable, I had to wait about 4 extra weeks before starting chemo. Did it hurt in the long run? I don’t know. That was June 2011 so it couldn’t have hurt TOO much!
My main suggestion is to make sure her care team understands cc, as it can become very aggressive, and it is very sneaky.
Good luck and please keep us informed.Olga,
I’m glad to hear Norbert has found a little help. The Medical marijuana will also help if he does get nauseous during treatment.
I know this is difficult. Having been in and still am in, his shoes, having someone to talk to really helps. I’m glad he opted for chemo, as it seems to be his best option. Hopefully it works enough to shrink this monster down so he can have a better quality of life. And hopefully, a newer treatment option is out there soon.Porter, Please try to not stress about it. Stress is BAD. Try to relax and listen to the docs.
One thing that might help… Try to eat a bit better this month: less meats and sugars, more veggies and fruits. Less alcohol, especially right before your blood draw. It usually works for me!
