marions
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There has been some discussion about ammino acids in the past in re: to prorphial neuropathy.
It was mentioned amongst others in the interview with Dr. Gorter:Xeloda does have minor side effects such as loose stool but the significant side effect is proriphial neuropathy which can practically be prevented by the increased intake of alpha-lipoic acid. You can counter this side effect by taking 600mg of alpha-lipoic acid which essentially, is a fatty acid. However, you cannot take alpha-lipoic acid during the period of the intake of Xeloda since the effect would be inhibited, but in many instances neuropathy can be prevented by taking alpha-lipoic acid during the two-week break.
MarionsKaren,
we tried many different ones. I remember Kytril and Prilosec. Others on the board may be able to advise other products. Hoping for mom to get some rest.
Marions.Carol,
I will be thinking of you and am wishing the best of luck and a speedy recovery for Charlie.
MarionsLana,
hoping so much for you Dad to be finding some relief and hopefully a cure but, what struck me is your comment: “and he knows that he will die very soon anyway.” Is his intention to take “any ‘ risk, or would he possibly like to consult with other surgeons in order to have a comparison in re: to risk vs. outcome.
MarionsI agree. Although, both of these studies are considered “observational non- randomized controlled studies” nevertheless, they are addressing this cancer, raising awareness and hopefully bringing us closer to a cure of this disease.
Marionslaurahw,
my best wishes to Tommy and to a successfull surgery.
I was wondering, has Dr. Canady given you any information in re: to the risk factor? Also, I would be interested in knowing as to how many surgeries of this type he has performed and how people have fared with it.
Hoping and wishing for the absolute best
MarionsLinda,
you might want to read the Stoufer blog as Caroline also lives in Colorado. It could possibly save you some trips out of state.
Also, in many instances copies of her medical records, Ct scans, physicians report etc.,
will be sufficient for second, third or more opinions.
Wishing for the best
MarionsKaren – Sorry to hear about your Mom being back at the hospital. I suppose she now is on IV for hydration and the administration of medication. This will eliminate the use of suppositories during her stay.
Thinking of you, sending good wishes and hoping for the symptoms to diminish.
MarionsHello Anita,
Welcome. We are happy for you to have found us although, we are sorry for the circumstances leading you to this site.
Your question is one that has been addressed by others in the past. In order to receive more responses, I believe it to be best to repeat your post in theDear Jliu168,… My heart goes out to you as you had to join us, the ones left behind by those we loved so much.
Those cherished memories you have mentioned will sustain us forever as they truly become our treasures.
What a wonderful tribute to a wonderful Dad.
Hoping for your heart to begin to heal …one day at a time…..
MarionsDear Marja,
So sorry about your Dad, but so happy for you to have found us.
You can be sure of others reading your posts even though, at times, the reply may lag a bit. In the meantime you might want to read as much as possible on this site as it may answer many of the questions you might have.
I believe strongly in second, third and fourth opinions as physicians may vary in their respective approaches to this disease.
Don’t shy away from asking question may it be pertaining to this cancer, or in regards to navigating this site.
More then anything, don’t give up hope.
My best wishes to your Dad, you and your family.
Marions
