mbachini
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Nancy,
I am sorry to hear the news of your husband. I am glad you will be contacting his surgeon, hoping that it is contained and resectable again if needed! Please keep us informed of the results and plans for treatment…..praying it is just an infection!
MelindaCongratulations to your father!!! That is great news. I am happy for the both of you. Thanks for sharing the positive results, please keep us posted and I will be thinking and praying for you both!!
MelindaDear Samssons81….I don’t know much about this treatment but I do know a husband and wife who just returned to the States from Germany today and did some form of hyperthermia treatment at a cancer research center. She did six weeks of treatment at the Hufeland Klinic. The wife is my age mid 40’s and just diagnosed this past May with ICC. I know she had a resection but I don’t have a lot of details. I encouraged them to be a part of this discussion board and will ask if they can post some more details for us all to learn!
MelindaCongratulations Julie on the great results! I hope your chemo break will give your kidneys a chance to recoup….definitely no fried kidneys allowed! Good luck with the toenail…those are ouchy little buggers!!
Melindajtaylor,
NIH is still recruiting. I encourage you to contact them and seek more information at the numbers and link Marion provided above. I hope his levels mellow out and he will be able to continue with success….praying the pain and nausea diminish and go away!!!!
MelindaWow…that was so sad….I couldn’t imagine not telling my family. I need their support and I know they treasure our moments together more now because of our journey, I sure do! Thanks for sharing!
Dear Amanda,
I couldn’t help but see my daughter’s faces in your letter…..I could so see them writing these kind of words for me, they are 12, 16,16, and 22. Thanks for sharing your experience and I am so sorry for your loss. I am going to share your post with them and I know they will pray for you, as they have felt the fear of losing me and would want to bring peace and comfort to you.You are a brave and strong young woman. I am proud of the care you gave your mother when she needed it the most. Please stay in contact…I will be thinking and praying for you.
Melinda
Daisy,
I am so happy for you and your mother!! That is such awesome news! Prayers for continued clear scans…..Melinda
Olga,
I hope you two have a blast! I love spontaneous adventures, they create such great memories! Safe travels and can’t wait to hear about it.
MelindaJan,
I agree with Marion…it ultimately comes down to chemo benefits vs. quality of life. We all handle it differently. After two years of chemo treatment, I chose quality of life and by the grace of God, I found the NIH trial and have had such great success with it. For me, Cisplatin side effects are still haunting me and I have been off it for over 3 years. I still have severe neuropathy in my feet and tinnitus in my ears. I enjoyed my chemo holidays and I hope your husband will regain strength to enjoy his as well….prayers to you and your husband.
MelindaDear Kathy,
Congratulations on the great news! Always so good to hear such wonderful stories of success! Gives such HOPE to so many others! Thank you!
MelindaGreat news! Tell your wife to keep up the good work! I am so glad her cough has eased up, that was one of my worst symptoms…..take care and keep us posted!
MelindaDuke,
I did Gem/Cis for the first 6 months with only stable results….due to toxicity of the cisplatnin, they left me on Gem only in which my tumors started to grow again. I then went to Avastin with stable results again…..until toxicity took effect again. That is when I found the clinical trial at NIH. I know that everyone responds differently to each chemotherapy regimen so it is hard to say what results to expect.I also wanted to state that STABLE is not a bad thing, as long as they are not growing that gives you some time to research other options. Hang in there and keep being proactive! God Bless.
Melinda
