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Hi Porter,
Great news that the surgery went well. I’m so happy!!! I will continue to keep you in my prayers!!!
Love, Peace & Hugs,
MaryClare,
God bless your sister and her husband. To be with someone dear to you when they leave this earth is truly an amazing experience. It is the most difficult yet beautiful time. I wish them peace and comfort in the upcoming months.
Peace & Hugs,
MaryThanks everyone,
Caroline, thanks for the info on the acupuncturist. There is one at Memorial Sloan Kettering that I can use and my insurance will pay for so I’m ok there.
Marion, that may be it. I found out out yesterday that it’s called a tenckhoff catheter and an IR does put it in.
Marion & Percy, I also found out yesterday that my oncologist met with Stacie Lindsey (sp?) last week and she is going to attend a foundation conference in Salt Lake City, Utah end of February. She was telling me about it yesterday because she knows I use the website and have found it so helpful.
Peace, Love & Hug,
MaryThanks Ahottie and Marion.
Marion. This is a different procedure I’m talking about. This is a drain for the fluid in the abdomen not a biliary drain. I have a metal stent in the bile duct in my liver but that’s completely internal. This drain I’m going to be getting is something I can drain myself when the fluid in my abdomen builds up too much. It’s under the skin but the tubing is coiled up outside and I just uncoil it and open it to release the fluid.
Mary
Thank you all for the kind words.
Percy, I think my faith has gotten me this far and am hoping it will continue to do so. It is a difficult journey we all have with this disease. I applaud you for your courage and determination to go on in the face of all the obstacles you, and all of us, encounter with this disease.
Was just hoping someone could tell me about this drain they put in for the fluid so that I can release it at home on my own. The doctor has explained it to me but I like hearing from someone who has actually had it and knows the reality of it.
God Bless everyone.
Love & Hugs,
MaryPorter,
I hope soon you can read these posts and know that we are all thinking of you. I’ve been praying for you every day. Positive vibes being sent your way!
Peace, Love & Hugs,
MaryWillow,
I wanted to thank you also for this information. Kind of you to share it with us and keep us updated on current care and treatments.
Peace,
MaryHi Percy,
Thanks for all the valuable info. I wish you luck with your upcoming evaluation at Mayo. Please let us know how it turns out.
I’ll be thinking of you and keeping you in my prayers.
Peace,
MaryPorter,
I am not a candidate for surgery and have not had any surgeries in regard to my CC so I can’t help as far as to what to expect. But I do understand your feelings and the fear of the upcoming surgery. Even though it is something you want and it p promises better results than chemo or radiation, it’s very scary to think what might happen. It sounds like you are relatively healthy, not considering the CC, and you have youth on your side so I believe those are positives for your surgery.
I think it’s normal to have anxiety before any big surgery. I’m hoping after your meeting with the surgeon on 1/17 you’ll feel better and have less anxiety. Try to think of all the positives, like your two beautiful children and all you have to live for. The day before the surgery try to relax yourself with some deep breathing and positive thinking.
I know you posted this but I forget…when is your surgery date? I want to make sure I think of you that day and keep you in my prayers.
Stay strong.
Love, Peace & Hugs,
MaryThanks Kris. I’m so looking forward to vacation – we fly out this Wednesday!!!
How are you feeling these days – did you get over the cold symptoms you were having?
Mary
Thank you everyone for your kind words and continued encouragement going forward. I wish you could all come to Key West with me and we could stand on the beach and stamp out cholangiocarcinoma for good!!! I will continue to pray for everyone, including our caregivers who endure so much for us.
Stay strong and thanks again for rooting for me!
Peace,
MaryHi Caroline,
I received good news today regarding my CT scan and will post in the good news section of this website so as not to take away from Mary (who DAT) post here.
Thank you for thinking of me.
Peace,
MaryPorter,
What great news!!! Keep us posted as to when your surgery date is. Will definitely keep you in my prayers!!!
Carry on!!!!!!!!!!!!!!
Peace & Love,
MaryDearest Milena,
I am so sorry to hear of the loss of your mom at such a young age. This disease is horrible and my prayers are that one day there will be enough funding for research to make it more of a chronic illness than the death sentence it seems to bring us.
The Board members of this website work endlessly to help us, along with the moderators, and I am so grateful for that.
I hope, in time, you can recall all the beautiful memories of your mom and find some peace in knowing that she is not far from you at all!
Take care of yourself and your brother.
Peace, Love & Hugs,
Mary
