middlesister1
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Thanks Gavin. I appreciate seeing good results from the Y-90. We’re at 6 months treatment-free since Mom’s last Y-90 and she is feeling really well. Off to Cape Cod for another vacation on Saturday. We know most likely there will be progression again in the future, but we hope that will be in the very distant future. For now, we just try to appreciate every day.
Catherine
Dear Josh,
Welcome to our group. My mother was diagnosed 20 months ago, and we have been very fortunate with her treatment thus far (she was inoperable). However, I agree that it is very important to find a major cancer center and doctors who are familiar with treating CC. And, another word of caution; although the literature and statistics can look like all is hopeless, there are more and more who are doing well, but have not been reflected yet into the statistics.
I hope in time we will hear more from you and you will be able to contribute under our “Good News” section. However, for now just sending thoughts and best wishes for your mother and your family.
Take care,
CatherineDear Dshack,
Yes it is a horrible disease, and there are way too many who when diagnosed, decline quickly. I am so sorry that not only are you and the family going through this, but that it progressed so quickly. I know when Mom was diagnosed, it took a while to even find out what Cholangiocarcinoma was.
My thoughts and prayers are with you and your family. We may not have the answers or the right thing to say, but we are here for you,
Catherine
Dear Krassi,
I’m glad you found us, but so very sorry that your sister must go through this and at such a young age. I wish you as much peace as possible as your family moves forward. And, best wishes that your sister is pain-free and comfortable.
Although it is not nearly enough, we are here for you, and we care.
Catherine
Hi,
I’m sorry I can’t add further useful information- can only say we hope your brother starts to improve and feel better. However, do want to thank you Debbie for the information and hope it can help many others too.
Catherine
Gavin,
The title on this one caught my eye (6-year survival and “simple”). Links below other article regarding S-1. From searching, I have not found any of our board members who have been treated with S-1, but it appears that Japan is ahead in testing the drug. And, the dose may have to be lowered for Caucasian patients.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3406543/
Thanks for sharing,
CatherineSusie,
We always love hearing inspiring stories. I am very happy for you and look forward to continued great updates.
Best wishes,
CatherineMatt,
Wow. I love your attitude on giving us the bright side first. I hope that after next week you have many more bright options to report. You know we are all in your corner and wishing you and your family the best.
Take care,
CatherineDear Flowerlover,
I’m hoping others above answered your question, but wanted to chime in as well and welcome you to our group. Although my father (and even my husband) push the limits of what I think they should be doing, it is very hard for them to admit limitations. I also had one 89 year old relative tell me that she hated to give up doing things because she realized she would never get that capability back.
Best wishes to you and your family,
CatherineDear Aiste,
I am so very sorry for your loss. I am always amazed by the love and strength shown by those on this board. Your story about your Dad and his shoes for springtime weather and your response touched me so deeply. I envisioned not only my father/mother, but all the caring, trusting people in our lives. I have read many posts, but yours will be one that makes me think every day how fortunate I am, and how I wish I had the power to make it better for all.I wish you and your family love and healing. I’m sure your Dad was very happy to have raised such an amazing family.
Catherine
Last July we took a trip with Mom up to Maine. At that point, we thought our time with her would be limited to a few months. I had already gained so much support and knowledge from this board ,and especially Percy, before we went. We went to Fort Popham, old fort with beautiful harbor view, and came across a seating area overlooking the harbor. Although not dedicated for our Percy, it seemed like we were supposed to be there. It was at a point in time that Percy’s health was declining. (hopefully pic shows up well enough to see his name inscribed on bench)
