mmking
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Run Complete! I got first in Tu Tu division and my friend got second! (ha ha there was no one else in tu tus
I cant figure out how to post a picture… ;-( anyone? Lainey, i am happy to email you a pic so you can laugh more of your XXX off Monday i can ask Rick to help me post pictures unless there is another way…
xox to all.I feel like a kid at Christmas! Jumping out of bed in the morning to check my website! $50.00 this morning_ whoo hooo!
Lalupes- i really love the Blooming Great Tea Party idea! My mom would have loved to attend that one
You mentioned your sister loved to garden… another idea i have had rolling around in my head was doing something like memorial seed packets…… Something like Sandy’s (my mom) Seeds for Hope- or something… Its an idea that involves more thought… but if you have any interest in collaborating across the pond ..
Have a good day.
Thank you All for your un-ending kind words and thoughts.
Does anyone know the requiremnts to Inlcude the Cholangiocarcinoma Foundation for donation in Obiturary?? I put a ? into Stacey but have not heard…Thanks again- i am at JFK on my way home to my family, but i have been carring my family (you all!) with me all along. Thank you /
Marion-thankyou for your response! i may have miss spoke,not sure if semi responsive is a good word choice, (although i am not there, just responding to my inturpretation of what my siblings have said). Hospice did come today and helped my mom to the bathroom etc etc…so despite my personal worry… would they not have directed them(siblings) correctly?? I hope so! although i dont know why i had this worry?? I will alert them further. thank you.
Hey-
well in your situation i am not sure what i would do… i feel like i might have the same question. In my situation, it’s my mom. And while i have taken A LOT of time off of work to visit with her.over the past 8 months,.. (i live in the west and she the east) My job is such that it allowed me the freedom to take the time and not get paid, but keep my job. HOWEVER, my siblings and i kept reminding each other that keeping it normal (my mom’s life) was also very very important to her state of wellbeing. I think my brother said it best ‘stop treating her like a patient’ and let her live!
it’s hard… because i also strongly believe that you should take each opportuntity you are given to be with your love. I guess finding that balance is the key. I would agree with Lainy (from experience) try to keep it as normal as possible. and IF that day comes when they say hospice- act accordingly. I also sgree that it is HIS choice as well as yours… i know it irked the hell out of my mom to be fussed about, so not having Donny’s OK if your decision could be a bad thing. Good Luck- he is lucky to have such a devoted and passionate g=friend!Thank you ladies for your support.
Lainy! I saw you went on a little adventure- i hope you had a blast. You were missed here!Hello-
I guess i am up earlier than anyone else so i will be the first to say i am very sorry for your family’s recent news with your mum. You will get tons of good advice, answers and support here, so while none of us particularely want to be on this site, i can personally say these folks are the most careing thoughtful and informative around. They speak from experience.
And to answer your question, speaking from my moms diagnosis expereince… yes it takes a long time and they use words like inconclusive. For my mom it was from End November til week before Christmas last winter…. going from a UTI, to gall stones to pancreatic cancer to finally CC. Her also is inooporable and she had 2 stents put in as well. They later replaced teh bile duct one with a metal one and took out the 2nd one all together.
It also seems like forever until she started Chemo. She didnt start until Feb. Its really hard to want to start ‘doing something’ to fight this thing and be told you have to wait. I cant speak to the need of another PTC procedure….hang in there! I found a lot of comfort in watching the Webnar on this site by Dr Ghassan- i think it was the Reveiw of CC research??? It explained to me how the diagnosis is more an elimination of what it is not…. check out the video..Well that is what i can offer you… be brave even though its really hard. i am sure everyone else will offer words to you too…
Best,
Hi LeeAnn
my mom’s Dr. recommended these 3 mushrooms specifically for CC type cancer: Shiitake (easily found in grocery and YUMMY) Maitake, and Reishi- which are more ‘medicinal and easier to take in suppliment form. One of them does lower blood pressure, so consult your Dr. as my mom was already on blood pressure meds so they didnt want her to take more lowing ‘
agents’Hi Kendra-
I have limmited experience, but we found with my mom’s chemo, it was the cumulative amount after teh 2nd round that had more side effects, but oddly not immediatly after- (that was maybe due to steriods she took for teh 3 days immediatly following) Her pattern was feeling the worst about 4-6-7 days after the 2nd round. (She is 89!) But i think everyone is different and you have to be patient to see what pattern he has (if any)
Staying active is good- even at 89 my mom was more active than most 55 year olds! Always getting up and dressed and out of bed EVERYDAY.
On the flip side, she often was scolded by her dr’s that she did need to rest a little when the chemo fatigue was bad. So her answer to that was take a 2 minute nap
Also, (and i think i need a disclaimer here: this is just info i have read, i have no idea if it is actually true or works and of course consult with your Dr first!!) We looked into a lot of different things and i read that some medicinal mushrooms (Maitake, Shitake- which you can get at grocery) and Reishi have some good effects on this type of cancer- actually my moms onc told us that the first visit. AND they have some anti chemo side effect, effects- if that makes any sense.Thinking of you and yours, and Be Brave!
Hi Formydad-
I am sorry to hear about your dad. It sucks, to be blunt. But i think being able to ‘talk’ about it here helps. I can’t really offer any great advice to you…as i am fairly new to this puzzle. (M mom was diagnosed Dec 2011) All these other folks are the ‘experts’ and we are so lucky to have them here.
I can say that i understand the frustration in living far away from your dad. i am in the west and my mom is on the east. All the info i get is filtered through someone else, whether its a sibling or my mom. I too have a bit more of a quest for knowledge of excatly what is going on, even though sometimes the Dr’s dont even know. I think everyone deals with sickness on different ways (refering to your brothers) My husband is similar to your brothers… he flat out has not wanted to see my mom (even though he loves her very much) while she is going through this. I think that it is just too hard for them to deal with and they cant get over their own fear and think beyond it. . That is just my armchair psyc. opinion. ;
I do hope that your brothers come to terms.
My main offering to you is that YOU visit with your dad and mom as much as you possibly can, spend time with him now while he is feeling OK, as well as later. I have gotten this advice from folks here as well as friends and i have made a point to try to go east about once a month.. (i understand jobs dont always allow for this, thankfully mine understands.) I dont want any regrets later about time spent. Well, good luck to you and your family. Best.Thank you for your kind words and insight…. I appreciate it! you all are amazing!
I posted in another place, but my sister sent the below out to my family, maybe it will help….Ecclesiastes 3:1–11
To every thing there is a season, and aa time to every bpurpose under the heaven:
2 A time * to be born, and a time to cdie;
A time to plant, and a time to dpluck up that which is planted;
3 A time to kill, and a time to heal;
A time to break down, and a time to build up;
4 A time to weep, and a time eto laugh;
A time to mourn, and a time to dance;
5 A time fto cast away stones, and a time to gather stones together;
A time to embrace, and a time g* to refrain from embracing;
6 A time to * get, and a time to lose;
A time to keep, and a time to cast away;
7 A time to hrend, and a time to sew;
A time ito keep silence, and a time to speak;
8 A time to love, and a time to hate;
A time of war, and a time of peace.
Or, if you prefer a more modern version:
The Byrds: http://www.youtube.com/watch?v=V6jxxagVEO4
Dear Mary-
So sorry for your loss. It’s hard. My sister just sent the below to our family… I hope it brings some comfort to all going through this…… xox
Ecclesiastes 3:1–11
To every thing there is a season, and aa time to every bpurpose under the heaven:
2 A time * to be born, and a time to cdie;
A time to plant, and a time to dpluck up that which is planted;
3 A time to kill, and a time to heal;
A time to break down, and a time to build up;
4 A time to weep, and a time eto laugh;
A time to mourn, and a time to dance;
5 A time fto cast away stones, and a time to gather stones together;
A time to embrace, and a time g* to refrain from embracing;
6 A time to * get, and a time to lose;
A time to keep, and a time to cast away;
7 A time to hrend, and a time to sew;
A time ito keep silence, and a time to speak;
8 A time to love, and a time to hate;
A time of war, and a time of peace.
Or, if you prefer a more modern version:
The Byrds: http://www.youtube.com/watch?v=V6jxxagVEO4
Thanks All for your re-assurance that the Dr’s might actually know what is going on… (bad joke, sorry)
I do appreciate being able to ask the questions that have bugging me!
You all are a Gift!
WOW!!!! MARIA!!! YOU ARE A ROCK STAR!!! Congrats! I have run many marathons and it is not easy when you are NOT fighting cancer! and you sure did show CC who is boss! Stomp out cancer one stride at a time! You Go !
Keep up the fight and run on…. You are GREAT!
(a little story that maybe you can appreciate: I had a running /marathon friend who is a cancer survivor- and after we did our 20 miler training run for our marathon, he said he would choose Chemo over running 20 miles! (he was joking of course, but point is that marathoning is not easy)
Hope you are recovering with a lot of good food and rest!
