pamela

Hi Jennifer,

My daughter, Lauren was on Oxaliplatin and the only thing she noticed was sensitivity to cold drinks for only about a week each time. She also had sensitivity in her hands and feet for about the same length of time. She drank room temperature drinks and was fine. Sadly, she had an allergic reaction to Oxaliplatin on her 6th dose which is the time most people will have a reaction if they are going to. She turned beet red, her ears and throat got tight, she started itching really bad, and broke out in hives. If your mom starts to feel any of these symptoms, please alert the nurse immediately. I wish your mom all the best. God bless you both.

Love,
-Pam

Best wishes to you, dear friend.

Dear lovedad,

I am so sorry to hear of your Dad’s passing. I’m sure your being there for him made all the difference to him. May your pain and sorrow become less each day and be replaced by fond memories of your dear Dad. Sending love and hugs to you.

-Pam

Hi lbutiong,

I am sorry to hear about your Mom. My daughter, Lauren had Y-90 as well. It did not help her either. She developed a new 3 cm. tumor in about a month after the treatment. We were so hopeful for that treatment and so disappointed it didn’t work. My daughter also had Gem/Cis as her first chemo.
She was recently on Oxaliplatin and Xeloda, but had an allergic reaction to the Oxaliplatin and can no longer receive it. She is now on Gemzar and Xeloda and still has tumor shrinkage. My point is that she will never give up trying whatever will or might help. I think it is up to each patient and their family to decide what is the right option for them. In our case, it is anything and everything there is to try until if and when the time comes and she says no more. I will add Linda to my prayers and I wish both of you all the best.

Love,
-Pam

Hi Suz,

I am glad you decided to take the plunge and join in the conversations! We are always happy to have new people, but so terribly sorry they are affected by this cancer in one way or another. Your sister sounds like a real fighter. My daughter has this cancer and she is as well. She continues to live her life to the fullest and not let things get her down. She just got engaged on Christmas Day and is going on a trip to Mexico next week! She rests on the bad days and lives it up on the good days!! Shrinkage has become one of our very favorite words!! I wish you and your sister all the best. Take care and hope to hear from you again real soon.

Love,
-Pam

Hi Jen,

I am very sorry to hear of your Dad’s passing. It happened so quickly and I am sure it was so difficult to wrap your head around it. My daughter, Lauren was only 25 when diagnosed with this cancer. There are both caregivers and people with cc on this site. We all come together to share, vent, support, and comfort each other. Please visit as often as you like. We are all here to help each other.

Love and hugs,
-Pam

Ilias,

I am so sorry to hear about your Mum. I think a 2nd opinion would be a great idea and maybe even more to find someone willing and able to care for your Mum. I don’t blame you for being angry. We want doctors to care for our loved ones as if they were their own family members. When they fall short, we feel angry and upset. I hope you find someone to help. Bless you and your Mum.

Love, -Pam

Thanks lulu and Lainy. Sorry, Kris. Didn’t mean to hijack your post. Lainy- I mentioned the towel to Lauren and she is going to ask for one. Her doctor told her to take two Ativan right before she goes in the tube, so hopefully that will help too. They have two different size MRI’s at Michigan and she got the small one once and it totally made her freak out. She is not a small person so it made her feel like she was wedged in a small pipe. We always request the larger model now. Just thought I would mention this so that others are made aware there is more than one size MRI.