pcl1029
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Hi,
In the New classification of bile duct cancer, Ampullary adenocarcinoma (AA)is not belonging to CCA.
But as recent as a couple months ago,when I read about CCA, AAis still mentioned together in the articles of treating CCA.http://www.ncbi.nlm.nih.gov/pubmed/22488652
I do not see AA will have a large population to support a separated web site on its own. The treatment plans of AA are more or less the same as CCA but your chance of survival is better than those,like me for example,for a longer period.
God bless.Hi,
Thanks for all your replies and encouragement.I hope someday in the near future ,thru the help of this foundation,we can really find the cure for all of us instead of just talking about it. That is my hope and my driving force in pursuit of the unthinkable.
God bless.Hi,
Just let all of you know I am on this Xeloda maintenance for the past 10 months(dosing and frequency of administration is not the same as the article); and will continue for at least 2 years totally if by God’s grace I am still around. I have a PET done recently and everything is clean.
For those who are more or less in the same situation as mine (ie: had surgery ,done with adjuvant chemotherapy and currently on only follow up every 3 or 6 month,you all know that the chance for the CCA to come back is high.and I believe proactive action is needed in addition to just follow up by the physician.
More exercise, eating well, seek complimentary help are a few suggestions .If you consider the above low dose maintenance chemotherapy, obviously you need to discus it with your oncology. I did consult for a 2nd opinion on this, but like many other situations,it did not come to the same agreement His reasoning–most likely the CCA will be back ,so he did not see the point of using the low dose maintenance therapy to delay the outcome in case it does not work.He prefered to treat the CCA when it comes back.He worried about the long term toxicity vs the possible benefits;and he is rightfully to provide his opinion as such. He was from a famous Midwest hospital specialized to treat the bile duct cancer.I guessed that is the difference between a doctor’s objective opinion and a patient’s subjective desire for a longer disease free period of survival.
God bless.Hi,
If you are not allergic to them.
A couple ibuprofen ( total of 400mg ) three to four times a day by mouth or Alieve ( total of 500mg) twice a day as needed may help.
God bless.Hi,
Also, if you dad wants his way of treatment, taking ginger or other supplements and at this point feels good himself, just make sure you and your siblings spend more time with him,enjoy each other to the fullest. I think in that way you will have no regret when the time has come. Chemotherapy is both a drug and a toxic substance , once you dad are on it, he will be affected by the side effects. So enjoy the good time with you dad as much as possible now. I am a patient and I have three daughters and a son, I know well enough of their emotions.
God bless.Hi,
If your dad had worked in the States and accumulated enough credits,I will go to the social security office nearest to you, ask specific for the personnel who in charge of ” disability benefits”;with the doctor ‘s diagnosis of ” cholangiocarcinoma “,apply for disability benefits. I believe in doing so, the benefit, if qualify, will come . It may be a good idea to explore whether you dad will be qualified for Medicaid programs also if he had not working for a while,but he must met a limit of income levels.
The most important benefit of being qualified for such disability benefit is that the patient only needs to wait 18 months from the date of approval to be eligible for Medicare if you are under the age of 65.( ie: if you are 57 on 12/1/2012 you will be qualify for Medicare on 7/1/2014 ).
God bless.Hi,
Just in case,some examples for CCA here.http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6811
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=49612#p49612
God bless.
Hi,Gavin,
good job to let us know about this situation; I guess no healthcare system is perfect.
Be sure to say hi to your mum for me. and I bet you can go to bed early tonight without waiting for the presidential election results until 3 am your time.God bless.
Hi,
Yes, 2nd opinions counts; and yes,there are still many chemotherapy and targeted agents that we can try until otherwise. You did a good job on not giving up.
God bless.Hi,
Have you try to contact Dr. Kato for a 2nd opinion. If I were you, I would. The reason is simple, he likes to challenge himself on difficult cases.
Surgery is the only possible cure for this disease;systemic chemotherapy and or targeted therapy are currently not.
MD Anderson is renown for systemic treatments and clinical trials, if this is what you are looking for, then go ahead; but make sure that is what you want.
God bless.Hi
It is actually a very good habit to check the stool each time when we have a BM.(color,texture,and quantity). I do that daily.
Creon,Viokase are pancrelipase (pancreatic enzymes) to aid digestion (breaking down) of the fat contents in the food and to improve the absorption of it.
But when in doubt, ask your doctor.
God bless.Hi, Lainy,
You are always welcome. As you are the guru of Gut feeling 101,how can I not to agree with the professor’s opinion.
Lainy, thanks for your contribution on this message board. Your are always among the first ones to response to a message .
God bless.
