Randi
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Caroline,
I agree with Kris, so sad and inspiring at the same time. Your mother sounds incredible as do you. My thoughts and prayers are with you and your mom. I can see you are using the time left to really connect and that is such a blessing.
Hugs,
-Randi-Hi Mike,
I would like to add my welcome to the others here. I am sorry you had a reason to find this board, but you will get great information and support from the people here.
I don’t know anything about immunotherapy, but I imagine someone will come along who does.
Take care,
-Randi-I filled out the initial form today. Unfortunately (for a lot of reasons) I am not under 50, but the Mayo does have my tissue sample and blood work on record there.
I will pass along the information.
-Randi-
Just want to add my welcome to the others. Losing a parent is never easy and I am sure you have some great wisdom and insight to share.
-Randi-
Stephanie,
I was so sorry to read your post about Matt, but thank you for updating us. Sounds like Matt fought a good fight. My sincere condolences.
Please come back here when you need support. Many here on this site have unfortunately been in your shoes.
My thoughts are with you and your family.
Hugs,
-Randi-Hi Vince,
I was diagnosed with Extrahepatic CC in November of 2009. I had a Whipple in December 2009. I too was faced with the chemo or no chemo decision. I sought two second opinions who all said it was up to me since I had no lymph node involvement and clear margins. I spoke to my doctor extensively with my concerns both pro and con. Still the ultimate decision was mine. I decided to do it since it was “well tolerated” chemo (Gemzar) and would be 6 months long. I wanted to do everything I could to prevent a relapse. I decided against radiation therapy because I had actually found some research on that and it did not support radiation for those in my situation since the limited statistics didn’t seem to support doing it.
So…what does that mean for you? Really nothing, each person must make this decision themselves. There are no ‘standards’ for this disease, each person is different.
My best advice is to make a decision, the best decision for you and own it. No second guessing, no regrets. Your decision is going to be the best one for you whatever it is.
Please feel free to contact me (randi.barrell@gmail.com) if you have any questions. I can only speak from my own experience, but I will be honest with you for sure.
Wishing the best for you!
-Randi-Hi Olga,
Just wanted to add my welcome to all the others. I am sorry you have a reason to be here, but you will get all the support you need by the wonderful people on this site where many have been in your shoes and others have been in your husbands shoes.
You and your hubby will be in my thoughts.
Hugs,
-Randi-I am at a loss for words here. Percy, My thoughts and prayers are with you, for quality of life, for freedom from pain, for renewed motivation and hope.
Hugs,
-Randi-Percy. So glad to hear from you. This may be the time that YOU need this site and you should not worry about impacting other peoples’ hope. You are an inspiration. The way you approach your illness is so admirable no one would ever deny you the right to post your journey or feelings.
My thoughts are with you Percy…hoping for relief from pain and hope.
Hugs,
-Randi-My thoughts are with you as you wait for your father’s scan results. Hopefully I will see you post in the good news section.
So sorry to hear about your Mom. Sounds like you have many lovely memories to hang on to.
Hugs,
-Randi-
