ron-smith
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This has been a strange day. I have slept a lot, 2 hours or so after every attempt at eating. Get up again and shine for about an hour, then need to go back to bed. OK, my body clock is way out of kilter, but it is disconcerting. Anyway, went to bed for “normal sleep” and thought I could do without sleeping pill and codeine . Big mistake as I suddenly became wide awake. Chest became quite tight so hardly had any oxygen and was convinced that this was to be the last episode in my life! Got up around midnight and immediately felt better and then took my meds. Must have fallen asleep sitting upright and when I woke chest and breathing pretty good and slacker. So trying the same again. Anything to get through another night.
I can see that this is not helped by the lung mets, although Beatson do not think it is too bad. My thought is that I need to get oxygen from NHS. Speak to GP about it next week.
Hope this does not cause fear and dread. All I can say is that when I did wake up I felt really refreshed, relaxed and a bit more positive again.
Take care
Ron
PS. I never realised how refreshing Baby Wipes are. Personal views and preferences change dramatically.
Wendy
That is excellent news for you. I am so pleased. Take all and any positives when they come your way. Why give any part of this sucker the feeling it is winning?
Be assured, those of us who have been on the road for a while do gain from hearing good news, although, to be totally honest, there can be a wee bit of jealously, which lasts no time. After all, we are not the sucker, but we are just human.
Take care
RonMichelle
So sorry to be reading what appears to be all round negative news about your dad. But nobody knows how he will react when he gets home. It may be that some of the intense pressure he must be under is lifted and this helps him, even a little.
The docs, particularly the GPs also have a hard time in the treatment of cc. The introduction of one medication can suddenly start a problem with another area or organ. For example, I have bad water retention and it is proving difficult to remove that. At the same time I have a poor appetite so am being given appetite enhancers that create more fluids! It becomes a balance.
I do hope that dad is able to pick himself up since that is one knock-on effect everyone would enjoy.
All the best
Ron
Great – cheers when I left LOL!
Well Marion we managed an enjoyable chat. The big test will be if it works next time.
Marion and all.
My probems with the chat room are:I’m shy, so would worry that the only person there would be someone I don’t really know well. so “chat” would be a bit stilted.
I can’t determine when I am going to be in the room, so arranged chats are a bit dodgy.
I am not a good typist, so, how good do I have to be?
How does time difference affect this? The UK is 5 hours ahead of the Eastern US seaboard but 89 hours ahead of the West.
Ron
Marion
Just imagine a big, squarish, box, that is larger than the volume of it’s contents. Ignore thoughts of eye-candy. Honest
I’ll let Gavin guide you through the food area, but a Swede is a small white turnip.
Kris
I assume you will stick to the west coast when you return to Scotland. There is nothing much wrong with the Ferry if you want to be near Dundee!
Take care
Ron
Curiously, I have started to take cinnamon breakfast cereal. I think in the States it was called Grahams, then Curiously Grahams but here now, it is just Curiously Cinnamon. Not having it for breakfast but as a very early morning snack. I know that in Florida everything is served with cinnamon, so perhaps I am trying to re-live enjoyable times, but, hey, who cares if it works? And I have decided, no matter what happens, I am not destined to re-capture my fat-free, muscle-bound physique again so live with it and enjoy these little treats. What a load of havers! I was never muscle-bound!!
Take care y’all.
Ron
Kris
I find that pains and discomfort come and go. Pain meds seem to work, nothing too heavy yet. What do your docs say?
Gavin
Just the thought of a fish supper, with vinegar and brown sauce is so appealing, then I manage a tiny bit and the rest is wasted. Breaks my heart.
It’s to be cold next week but dry. That’s important for us just now because we are having our roof re-tiled. It seems to take forever and of course, we are surrounded by scaffolding. I can’t even get out of the house. What is really annoying is that the roof was completely renewed less than 12 years ago.
How’s your dad these days? Is he still as tired?
Take care
Ron
Valjee
At risk of denting all the wood, the Fluconazole does seem to be working, and pretty quickly. One benefit is that the suspension actually tastes nice.
4:00 am – I was awake but had enjoyed a much better sleep beforehand and I can now eat and DRINK! Hooray!
Went back to bed and slept some more. Body clock must be changing.
All the best.
Ron
Theresa..
Welcome to our familiy of friends, each of whom shares a common and strong bond. Rest assured this is a close familiy and you will receive support, answers learned from experience, hugs, if you need them and some realism if you may need that!
You are facing one of the hardest question that carers or family have to face, especially where it concerns older parents. Of course you do not want them to go and there are very succesful examples if you care to spend time lookink at our families stories. It is natural that you wish your MIL to live as long and as well as possible. It is one of our mantras to ensure that we receive as many opinions as possible. Think less about the doctor and more about the patient. Why did the surgeon not advocate surgery? Lack of experience or better knowledge?
Anyway, the one thing to be careful of is “what do you want?” It is too easy to assume that you will know best. Everyone must listen to the advice and ONLY THEN can the patient make the final choice.
Good luck to you all and try to keep in touch with us.
Ron
Thanks for all your kind thoughts. To be fair, the GP surgery is very attentive to my needs and I have been prescribed Diflucan Suspension (Fluconazole). I take 5ml per day and it seems to be having an effect (Touch wood, any wood will do!).
Kris there is no way I am going to intentionally do ANYTHING to make you cross. I am just happy to wind you up a bit.
Had a short sleep this afternoon and will try to stay awake now until night time.
Keep positive everyone.
Ron
Adam
If it is any help then I can say that my surgeries went very well and I recovered quickly. There again, I am a lot younger than your father and my other health problems did not surface until after the surgery. After the 2nd one I was more reticent about the possibility of a 3rd, but ended up almost begging the surgeon, but to no avail.
Remember, everyone else can offer advice, but it is only your father who can decide what he should do. Listen to him. I have certainly found the chemo to be the harder option.
Good luck with whatever road is chosen.
Ron
kctasty2004
Nobody has all the answers. We can never even be sure if we have made the correct decision. It feels as if you are beating yourself up because you gave your opinion on treatment at the time it was required. Nobody can do better, not even the experts. You can only be guided by the best information you have available.
I have had 2 episodes of surgery to try to cure this cancer but both “failed”. Or, put it another way, they were not complete successes. Were my decisions wrong? I don’t think so because without the surgeries I may not be here.
Your mother has had a shorter, possibly harder, time. Was the surgery wrong? Nobody knows what the alternative would have been like.
Best wishes
Ron
