scraggles
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Hi there, we found out that my mom had CC because of the blood clot in her spleen. It caused her alot of pain, and that’s what prompted her to go the ER. Further testing revealed she had CC and the blood clot. It is very common to form blood clots when you have cancer. They just put her on blood thinners to help break it up, and then she had to stay on them to prevent future blood clots.
I’m very sorry to hear about your father. I also just lost my 56yr old mother on April the 5th. She only fought for 4 months. I know how you feel, and I’m so sorry for your loss. E-mail me if you ever want to chat.
AlieDamamma I am also from Toronto, and I am wondering if you have seen anyone at PMH? My mom was treated there. She also didn’t have any measurable tumors, they said that her particular type of CC was what’s known as cellular, therefore cyberknife was not an option for her. Maybe you should get a second opinion at PMH, there are one of the top 5 cancer research centers in the world. Good luck with everything.
Thank you everyone. My mom is not in hospice but she is in a palliative care floor at Princess Margaret Hospital in Toronto, Ontario. It is supposed to be a temp facility, but they won’t kick her out. The care there is phenomenal. Thank you everyone for all of your kind words.
Thank you everyone for all your well wishes. The meeting yesterday did not go good. Mom’s prognosis is weeks, I asked if that means less then a months and doctor said yes, she also added that it can also be days, however, she thinks it is closer to weeks. Mom doesn’t know the prognosis because she asked not to know, so we are all trying to stay positive in front of her. She is feeling very weak and dizzy right now. Her BP is 90/60, but we are unsure if that is related to the disease taking over. The doc said it may be so low because they just removed 5L of fluid from her ascites. It is hard to write this all out, but I wanted to keep you all updated. Thanks for listening.
AlieHi there, I’m sorry to hear about dad. Your dad sounds similar to what my mom’s going through. She was also very constipated, which caused ALOT of pain for her. She is now taking a prescription laxidive daily, and she is able to have a bowel movement now once a day. I’m sorry but I don’t know the name of the drug, but maybe you could ask your doctor about it.
Dianne,
A blood clot is what led to mom’s diagnosis. This also happened with my grandmother when she was diagnosed with cancer. Apparently blood clots are common when someone has cancer.
My mom’s blood clot was in her spleen, and was very painful. She was and still is on blood thinner injections (I’m not sure what the name of the drug is) she has to give herself one needle daily. The blood clot is now broken up but she is still on the injections as a preventive measure.
Dianne,
A break is the best thing for my mom. She is so weak right now. She has lost 25lbs, and you must also consider that somehow she is losing weight but gaining alot of fluid. She had 3L drained today. Draining the fluid doesn’t seem to do much for her in terms of increasing her appetite.
She will have a CT scan done tomorrow at PMH where she is staying. Hopefully it won’t take too long to get the results back. We are hoping that the few chemo treatments will be enough to see a difference but the doc pretty much told us that you’ll know the chemo is working if the fluid buildup gets better – and in her case it’s getting worse. Once we know if the docs will want to continue with chemo i will mention homeopathic medicine to her. If it ends up being our only hope, it’s better then nothing.
My mom also has no appetite. There are many pills that can help with this. My mom has tried many that don’t work for her, but she is on something new now for the past couple of days, and she seems to be eating a bit more. I can get the name of it if you want.
I sincerely wish you and your dad all the best.
Is your dad on chemo? my mom has really bad swelling too, and we were told that it is a side effect of chemo. However, when she skipped chemo treatments the swelling still continued to worsen, so I’m not sure exactly what the cause is. The doctors don’t seem concerned though, they just recommended that she keeps her feet elevated.
Dianne,
Hi there, I doubt we will cross paths as I don’t attend my mom’s doctor appointments, I have 2 small kids at home, so my dad takes her to all of her appointments.
The doctors will have a better idea about your dad once he is staged. My mom is only 56 and she has stage 4 CC. The chemo combo for this type of cancer is very aggressive. They tried it for my mom because of her age. It looks like chemo may not be much of an option for her anymore as it is making her very weak. She is currently staying at PMH on the 16th floor, palliative care. She is so weak she can’t even sit up on her own. She has not been able to complete more then 2 cycles of chemo in a row because her proteins, or WBC’s, keep dropping. The docs said that 1 more chemo tx would probably mean the end for her. She currently weighs 98lbs, and has pretty much given up eating. Does your dad have ascites? (fluid buildup in the abdomen) my mom has it really bad, today they are inserting a perm cathator so that she can be drained more often. Feel free to e-mail me if you have any questions apreisig@rogers.com
AlieHi there, I’m sorry to hear about your dad. My mom is also being at Princess Margaret. Her Oncologist is Dr. Knox. She was diagnosed with stage 4 in Dec/09 She is only having chemo treatments (not radiation) She is on gemcitabine and Cisplatin. She will have a CT scan at the end of week, and we will know if the Chemo helped. I wish you guys all the best.
