seasheller
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Hi Kris — You sure sound like a “miracle case” with your early diagnoses and surgery. Your prognosis sounds so positive. Has the jaundice cleared up? My thoughts and prayers are with you for all your future decisions. I’m sure everyone that follows this site will be interested in keeping posted — God Bless!!!!
Hi Kris — I’m curious. Is your pea-sized tumor in the bile duct and what has been done to shrink the size? What symptoms did you first have and how was it discovered? It sounds like you have a very good chance to beat this disease, being that it was discovered in early stages. Are you to have it monitored for a while ? It is so difficult to predict what course to take in planning to have children. Pregnancy, of course, can become complicated with all the changes that take place throughout your whole system with the nutrients needed to nourish both the baby and you. It sounds wise to wait a little longer to be sure. That’s just my opinion. In the long run, maybe God will guide you if you turn to Him in prayer. God Bless.
~~ JeanHi Jeff — Wonderful news! You are definitely an inspiration to all on this site. What a fighter you are with a positive attitude. That’s what it takes. Hugs and prayers are always with you. Keep up the good fight!!! Cheers! Jean (“seasheller”)
Dear Rae — Your story about your Dad brings back the painful experience of seeing one we love so dear going through all this. My husband did not have pain until the very last week of his illness. One night his pain came on suddenly (out of the blue). A doctor friend theorized that he had sudden hemorrhaging in the liver and bile duct.
Morphine shots did not touch the pain. An angel of a nurse then administered a shot of DILAUDID which finally relieved the pain. It was such a blessed relief. (it might be wise to keep that name in mind — I had never heard of it!)My heart goes out to you and your family. My husband passed away May 18 of this year and I am continually comforting myself with the thoughts that he is in a better place, free of the pain that could have lingered for a long time — it’s a blessing to know he is at peace. My heartfelt thoughts and prayers and with you.
Love & Hugs, JeanDear “cdr” — It’s so difficult to even imagine you battling CC being alone and with the care of a 10 yr. old. besides. Is there any kind of a support group in your area that could help you by doing outside activities with your child to give you a break once in a while? A church group or something! Do you have family that can help? Maybe your family doctor can guide you. You are in my thoughts and prayers!!! ~~ Jean
Dear Jeff — You truly have been an inspiration with your courage and determination in battling CC along with the rest of our loved ones. I’m holding you and “Babe” in my heart and my prayers that you will gain hope and strength to fight on with the faith that you have had all this time. Sounds like a smart move on your part to take a rest from the chemo — time out to wrap your arms around one another and share lots of hugs and kisses — the best medicine that money can’t buy!!! God bless you!!! Love & hugs, Jean
Dear Rae — I’m sorry I didn’t answer another question you had. We did see an oncologist who monitored my husband, sending him for Cat Scans and then MRI’s to check for changes in the size of my husband’s tumor. It remained about the same for awhile, and he didn’t have any significant weight loss, so an alarm didn’t sound, calling for chemo.
My husband elected not to have it if the subject was brought up. I know his quality of life was better without it. ~~ JeanDear Rae — My heart aches for you and your family. It is a tough decision for your Dad to decline getting chemo, but from my husband’s experience, it was a wise one for him. He had a large tumor in the right lobe of his liver (inoperable) He felt well and enjoyed life for at least six months without having to suffer the ill effects of having chemo. He lived life to the fullest, so to speak. Soon he lost his appetite and some foods (especially meat) did not taste good to him anymore. He was still able to enjoy foods that did appeal to him otherwise. His system obviously started weakening (he developed blood pressure problems) but he still did not feel horribly bad. He entered the hospital to be rehydrated and suddenly did have one evening of intense pain, which was alleviated with drugs. Sad to say, within a week he passed away, but when I look back, he was blessed at least with many good days that he might not have had if he suffered through the effects of chemo during that precious time.
Blessings to your Dad and you, his family!!!
Love & hugs, JeanBob’s Dear Wife — My heart, thoughts and prayers are with you and your son at this time. I lost my husband, Marv, on May 18, ’07. It’s awfully lonely without him, but I feel the peace, knowing that he did not linger or suffer very long. May precious memories of his love for you be of great comfort in your sorrow. My love and hugs, Jean
No suggestions, but I can offer my prayers and thoughts for the Lord to guide you in making decisions. I can understand the importance of quality of life versus going through such an operation. God bless both of you!!! ~~ Jean
Dear Rhonda — My heart aches for you and all others who are going through these painful times. My husband passed away in May and I was blessed that he didn’t linger long — 8 days in the hospital and he rested peacefully except for one night of horrible pain. Morphine did not touch his pain. A dear nurse knew about Dilaudid and got permission to use it. It took the pain away and he rested comfortably. Again, my heart aches for those who are going through all this. My thoughts and prayers are will everyone of you.
Love, Jean (Seasheller)Dear Friends — I have not checked this website since Marv, my husband, passed away. I can’t believe how busy I have been. I am now planning his Memorial Service which will be June 26. I can’t believe that he is no longer here and searching this site for several months now seems like a dream. (a very bad one!!) I know that he is in a better place, no longer worrying about what is down the road. He only had one night of pain and that was alleviated with the injections of Dilaudid — a wonder drug as I see it. I will be checking this site every so often, and, praying for each and every one of you. God bless!!!!
Love and hugs, JeanYou are all so kind with your loving words of comfort. I can’t believe how strong I have been through all this. There is one thing to be said about cancer. You rejoice in all the good days and live life to the fullest one day at a time. Another blessing was that my daughter and I each slept in a lounge chair on each side of the bed the night before Marv passed away. We each held a hand all night long. So many people never even get to say good-bye when death is sudden.
I must tell another special story. At the hospital here in Stuart, Fl., when a baby is born, there is a chimed melody of Rock-a-bye baby that is played throughout the hospital. The minute after Marv passed away, Rock-a-bye Baby played. A soul was taken and a new one was born. The nurse was at the foot of Marv’s bed and said, this is awesome. I had been holding a teddy bear for emotional support. It was a gift given to Marv by our son. I immediately thought how nice it would be to give the teddy bear to the new parents of the child.With permission, my daughter, the nurse and I went to maternity and presented the teddy to them. What a thrill it was – it completely overshadowed my extreme sadness for the moment. I had a God-given strength. God bless all of you. I will continue to pray for all of you on this site.
Keep the faith — there are many who have been cured of this horrible disease. I do forget at times — I am a breast cancer survivor. It’s been 15 years. Love, JeanWith great sadness, I have to report that my husband passed away last Friday night, May 18.
He was only in the hospital a week and just had that one bout of pain. He was kept sedated most of the week. He did not suffer and was very peaceful. He went into a coma the last two days. He never had any treatment — chemo, radiation, etc. It ran its course. I’m thankful that he had reasonably good health while in Florida over the winter. He enjoyed good times. My best to all!!! ~~ JeanDear Ted — Have been wondering where you get all the supplements that your wife, Patty, is taking.
Are they at a health food store? (IP-6, fresh carrot juice, etc.) So glad Patty is doing so well. After reading the many different cases of CC., the uncertainty of how each patient has to deal with it is so frustrating — it seems no two cases are alike. My husband is showing signs of weakness and very poor appetite after having several fairly good months following diagnoses.
He had no sumptoms. In fact, despite how bad he feels lately, he has never been jaundiced, which seems like such a mystery. Since his appetite is so poor, a gastroenterologist subscribed the medication called Marinol yesterday. It has marijuana in it. It has improved his appetite, but makes him feel spaced out, as marijauna naturally would. Does anyone have info. on this drug? It bothers me to think about this. God bless each and every one reading these posts. We all need His help!!! ~~ Jean
