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MemberI am so sorry for your mom’s diagnosis, but we are here for you. Keep posting and talking about what is going on – it can be such a blessing to get your thoughts and feelings out, especially with others who understand what you are going through. As Gavin always says, sorry you had to find us, but glad you are here. Blessings, Susan
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MemberGavin – I really appreciate you commenting on how your dad’s ascites progressed. Randy has some ascites, periodically, in his ankles and legs and it progresses to his abdomen. We also use diuretics, natural and medircation, to reduce the swelling. You are so right to make the best of the good days and do whatever is necessary to get through the bad days. Thanks for the encouragement. My husband has never had a stent or other invasive procedures (except for the liver biopsy in July 2010). It is so helpful to read of the journey others have traveled to get tips on traveling ours. Blessings, Susan
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MemberWelcome to our site. We will be here for you to bounce ideas off of, to vent, to ask questions. It is a roller coaster ride with many ups and downs. We pray that your journey will be as uneventful as possible and that you dad will not suffer pain and discomfort. There are many similarities in patient conditions and yet so many variances as well. Some people have back pain, some don’t. Some need stents, some don’t. Some turn yellow, others don’t. Just know that we will be here for you whatever CC brings you. Blessings, Susan
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MemberDear Marj – You must do waht you need to do for mom’s safety and comfort. Have an open discussion with your siblings and maybe your mom – talking openly about how difficult it is to see someone suffer and that you want to help by contacting the physician for meds, etc. It’s a difficult road and I’m not sure that the patient is always able to make the best decisions about their care. My husband makes most of his own decisions regarding care, but I have always had to make the appointments and take him in for pain medication increases (which happens about once a month). I don’t override his decisions, but I provide as much support as possible. Keep coming here and talking – it really helps. Blessings, Susan
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MemberDear Kim – I understand the process of bad days and you think the end is near and then good days and you think you have a lot of time. I have nothing to offer except understanding and support. We have faced the same thing at our house. He’s had a couple of really good days so I think he’ll be here for quite some time. Last week we had BAD days and I thought he might not make Christmas. My thoughts and prayers are with you. Blessings, Susan
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MemberWe have tried mint tea and green tea to help with the nausea. We also have nausea meds. Nothing seems to take away the nausea completely, but these 3 things have helped. Blessings, Susan
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MemberI wish I had a good answer for you, but I can tell you that my husband goes from being in bed every day for weeks and then has several good days – going out, shopping, so many things. I don’t understand it at all but I celebrate the good days and provide as much support as possible on the bad days. May your dad continue to do well back home in his mountains. Blessings, Susan
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MemberAs a counselor, I can tell you that in counseling you can share your feelings and thoughts in ways that are more difficult in any other setting. You can talk about your pain, your sadness, your anger to someone who is supportive and knowledgable. You have getting by the best you can right now and think about that as being “good enough”. You need to experience your grief in your own way. Keep reaching out to others, get the feelings out of your body, express your thoughts and feelings to release the build up of pressure. Know that people care about you and what you have experienced. Keep coming back here. Blessings, Susan
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MemberDear Mohit – I have nothing more to offer than what Lainy and Gavin had said except to say that we are here for you and we care very much about the struggle you are going through. We share in your struggle and will do what we can to provide you support and genuine caring. Blessings, Susan
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MemberDear Chelle – Sometimes the only thing you can do is get the anger, anxiety, pain, out of your body and into the air. You need that release so it doesn’t crush you. We really understand that feeling and the helplessness of not having enough answers or understanding why it had to happen. Han in there with us and we will listen and care about you and your family. Blessings, Susan
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MemberLainy – I have been thinking about you all day and holding you close in my heart. May special blessings be abundant in your life and may you know peace as never before. Your loving Teddy will always be yours and right now someone else can take over the caregiving and you be his love, his wife, his life. I wish I could be there with you but I know you have great support. I am here for you. Love, Susan
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MemberOh Terry – My heart goes out to you. Grief is so hard. You spent so many years caregiving that you not only lost loved ones, you lost the job you had known, too. May peace and blessings be with you as you work through this journey. There will be special rewards for you in Heaven. I know it! Blessings, Susan
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MemberIt makes me cry to see the last part of the journey because it hits so close to home. It is a journey and may the last part be fillled with love and peace.
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MemberMy husband was told that if he took chemo it “Might” extend his life 3 to 6 months, but with no expectation of better quality of life. He elected 3 cycles (6 treatments) of Gemzar and at the end of that, there was no improvement for him. He did not suffer ill effects of the chemo, but it did not appear to help either. We do not regret doing it. Blessings, Susan
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MemberMarion – Thanks for the information about Dr. Lenz at USC. I was not aware of him. I shall do some research and see if we can get in there for a second opinion. Today I heard from Loma Linda and they are referring Randy to another liver specialist there so I will call them tomorrow to see about an appointment. Thanks, again. Blessings, Susan
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