teresa

Hya Ron It is great news for you.
I am not able to help with your prognosis.
There are other people on here doing great. I hope you continue to be healthy and happy. My oldest son has lived in scotland since 1992 and loves it there. We are also a smith family.
From our experience with cc. you must make every day as good as possible and enjoy your life. My son alan ( see in remembrance) was not so lucky and was not diagnosed until it was to late, and therefor I now tell everyone to get as much information as possible.
Also get a second and even third consultation if need be. Do not wait if you feel in need of information or help in any way. love and light

Hya Andrew I do hope god is good to you.
It Is a shocking thing this cc. and like everyone until you come into contact with this it appears to be virtually unknown.
However, there are some folks on here that are doing well and I hope and pray that you will be one of them. good luck and please keep us informed as to how you continue. love and light to you alan’s mom (remembrance)

Dear Betty
I thank you so much for your thoughts and words.
I have done some councelling work in the past and heard others talk about their grief. It is true though that until it is experienced it is impossible to understand.
The pain that I felt after Alan (my son, see in remembrance) passed away was something that I have never experienced in my life. It has got slightly easier but the tears are still flowing on a daily basis. I try to talk about some of the things that he did when he was a child and have recognised and been told by his friends what a sensible, kind, energetic hard working young man he became.
I do hope that in the fulness of time I will be able to smile and be happy for him and the life, that he told me he was enjoying and was so happy to be living. love and light to everyone. teresa

Hi Darreng I am here crying for you and myself and feeling with you your hurt,anger and the why’s. My alan also passed away so quickly. (see rememberance). I am sure everyone on this site is feeling for you. It is a monster that can grab someone so quickly that there is’nt time to think or even come to terms with what is happening.
Go with the anger, the tears, the frustration and whatever comes. Our hopes and love are with your family. Keep in touch with the site and someday we will be able to inform the world of this. For the time being I am sure we are all there for you to let rip and help in any way possible.

I have to agree that until you are going through this heartbreak it is hard for people to understand how awful it is.
I keep all of you on this site in my prayers as I have sat here many hours reading everything on this site, especially when I am not able to sleep. ( see ALAN in remembrance). I also agree about the healthy eating lifestyles. Here in england I have what is known as 3 allotments (big gardens) and have always, only done my own veg etc. Therefor this was such a shock to us . Alan first visited the doctors surgery on 16/12/05 with a pain slightly below his left shoulder in his back. He was told he had pulled a tendon. He was given pain killing tablets. During the xmas period he complained of some acid in his throat. I told him he probably had a gallstone. On the 6th Jan. 06 he revisited the docs as he had started to get pain badly around the upper right (front) gall bladder area. He was given Gaviscon. He continued to visit the doctors surgery with acid in his throat and pain that was so bad at nights he had to rock himself to ease it. He still managed to work during the day. I told him to visit our local hospital on the 12th Jan as an emergency patient at night. He was duly x-rayed and told he was constipated. He was angry as he had been to the toilet o.k. erlier that evening. In total he visited the doctors 6 times during January. This is someone who for the whole of his life had only ever had chicken pox and the mumps plus a few stitches on the odd occasion. I begged him to go and pay to see someone, his response was why should I pay to see the same people that I am visiting now. I told him to tell the doctor that his gall bladder had gone wrong and my husband who required another prescription also told her that alan was very very ill. The response was that she could not find anything seriously wrong with him.
Finally, I told him that I would call them if he did not go back to another hospital, and we, alan and I both visited the hospital as an emergency patient. That was on the 15th of February. Alan had managed to work up until the 6th of feb. After being really messed about and diagnosed with gall bladder problems and various other things we were told on the 1st of March 06 that it was almost certain that he had C.C. There were lots of tests done that I expect most of you know about and finally two attempts to put a metal stent in to drain the bile. All of this took until the 3rd week in march.Alan had been told he may have some chemotherapy for 6 weeks but if there was no change this would be stopped. It was discussed with alan that there would be a combination in the form of ECF. This was Epirubin, Cisplatin and 5FU. There would have been a Hickman line inserted and one drug seperately each week .i.e.3 weeks and one week free. It then became a bank holiday and alan wished to go to spain to see his beloved motorcycle racing with 3 of his friends. He was advised to go as it would not make any difference as the line would not be fitted that week. He was still going to the bank etc until the 14th April but losing weight so rapidly it was unbelievable. On our second visit to the oncology unit we were told that it would not be advisable for him to have the chemo. He was having difficulty eating or even keeping any food in his body. He was then offered palliative care. I felt so helpless as there really wasn’t anything that could help alan. He never once showed anger but only begged me not to let him lie at home for long. He did not wish to be messed about and at the end passed away so very peaceful in his sleep. I am now so pleased that both alan and I only knew for about 7 weeks that he was going to die. He did this with such great courage and dignity that we have now raised so far