tess
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Hi Kay, we too couldn’t quite figure out the fatigue patterns for my Dad. I simply remember that he was always tired, but had a bit more strength on his weeks off. He was on Gemzar. Wishing your Dad the best….
Tess
Hello Rick and I’m sorry for what you’re going through. I’ve heard great things about Gores and Mayo. While I can’t address your question, I just wanted to welcome you to the site and send wishes of strength right back at you. I’m sure you’ll get more feedback to this thread in the near future.
Tess
What a heart breaking story…. it is so difficult to find the justice in this disease. Ryan and his family are in our thoughts and prayers.
Tess
It is so hard to be strong, and to find words of encouragement- when your heart is breaking. Just keep loving your Mom and being there for her when she needs you, that is likely more encouragement for her than you’ll ever know.
Tess
Hi Heather, unlike Jolene’s story (which has me in tears yet again this morning), my Dad refused to hear any news of prognosis, timeframes, stages or stats. His spirit and positive attitude were unparallel with anything that I’ve ever witnessed. At the time, I thought it was denial, but now- I see it as survival. My own approach to Dad’s journey was to plan for the stats and pray for a miracle… a philosophy that forced me to be present in the moment, with my Dad, for every opportunity I had.
Wishing your sister all the best.
Tess
Hi Michelle, it’s good that the docs are watching that number- it’s one of many diagnostic tools that can provide insight into changes within your system. At certain points during my Dad’s cc, his CA-19 numbers were upwards of 30,000….
Wishing you the best.
Tess
I think you are a gem Raye… thanks for sharing, as you have with me and so many others. Many wishes coming your way for continued good health and strong spirit!
-Tess
I was so sorry to read your post Suzanne…. I can imagine that I would feel the same emotions as you are going through, asking the same questions.
All my best to you as you continue to search out options.
Tess
Hello Elicia, the chemo can be tough on the system, no two ways about it. My Dad had the same experiences. Per those experiences, I’d say encourage your Mom rest when she’s tired, it is ok to surrender to your body slowing down with the treatments, as you continue to look for energy boosting alternatives. Ice tea and lemon-aid/orange juice mixtures were Dad’s drinks of choice when all else failed. As suggested by Lisa, the lemon (drink/candy/fruit) prior to meals also helped balance the tastebud changes brought on by the chemo, and helped Dad better tolerate foods.
I hope your Mom can find more comfort and a CA specialist.
Tess
Hi Michelle, the waiting can leave a big knot right in the middle of your belly. Keep us posted. This site offers many sound resources, from a wonderful group of people. I hope that the stent provides your Dad with some comfort. You’re in our thoughts.
Tess
Dear Nancy, I am sorry for your loss and appreciative of your words of wisdom- to live, laugh and love, every minute you get. To take that journey with our loved ones is one of the most difficult ever, but definitely a gift to be cherished. Moms provide us with teaching moments at virtually every corner, some of which we only recognize in hindsight… your Mom gave you a special one, the reminder to slow down for the things in life that count- as life is too short.
Thanks for sharing Nancy.
Tess
Dear Deb, I am so sorry for your loss. Dads hold a very special place in our heart & your Dad will always be with you. you’re in our thoughts and prayers.
Tess
Dear Carol, my thoughts are with you in this difficult time. How wonderful that you could be there with Dennie in his final hours, holding him tight. He is certainly with you in spirit.
Tess
Dear Ashlea, your Dad was certainly loved and he clearly loved you right back! He’s still watching over you, and I hope that you can feel his presence. I”m so sorry for the fact that you had to take the journey, but how wonderful that you could walk that path with your Dad. You’re a wonderful daughter and you’re in my thoughts.
Tess
