thebompie4
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Lady Lindon
i know that every person is diff, but my husband has been on 8 rounds now (2 weeks on and 1 off) since March of this year.
He has literally had NO side effects from it other than tiredness for a day or two or three afterwards. In fact he feels 1000X better than PRE chemo.
No hair loss, no mouth sores, no numbness and no cold sensitivity.
(perhaps he is really lucky?)He is 44 (not sure your age) and has Stage 4 as well with one main liver
tumor, a few lymphs involved and a few marks in lungs.Hope that helps. I know each persons reactions are diff–but know
that there are some folks to react QUITE well to this regimen of chemo.Dorien
I think dealing with people is harder than dealing with cancer sometimes.
Truer words were never spoken Susie. ^^^^
I had our social worker tell us at the cancer center here that
we would be SHOCKED at who “stays” and who “goes” with a cancer
diagnosis.SO true and shocking.
It hurts a lot, I am sorry that YOU are hurting and that you
feel “forgotten” (is that the right word?)I say be patient with yourself and agree with others to speak w/Drs
if/when you need to!Dorien
Thanks SO MUCH Cathy!!
yes–this is what I’m looking for!some “real life” stories/experiences.
i realize that everyone is different…but would like to just
get some idea of what to expect in the treatment options.Thanks again!!
DorienThanks Jason–
so our Dr is talking about doing this to my husband (radioemb.) AFTER he
completes one more cycle of gem/cis as another alternate treatment.either that or chemoemb.
if i am understanding this correctly (which it’s possible i am NOT) my husband
would have a higher chance of devoloping REILD because of chemo previous
to radioemb.is that correct? or possibly a higher chance?
he has been responding so well to this chemo with (so far) ZERO side effects
other than “tired”. We are not so keen on moving on to something else
that we know nothing about.when it’s working, it is hard to think about trying something else that
we are unsure HOW IT WILL work.
i’m so sorry heather.
i cannot even imagine how devastated you must be.
hopefully you get all the answers you need when you meet with
the drs. Smart of you to bring others in …i always seem to freeze
up and forget what i wanted to ask when i go.Dorien
Thanks Danna for the info– My husband is here in SLC, Utah at
the Huntsman Cancer Institute.Not many CC patients here though.
He’s responded well so far, but I feel like everyone always tells us
“we’re just buying you time Kyle” (which they’ve said 1000X)Which they may be.
But i’d rather have someone who’s FIGHTING for us, with us.
If someone can buy Kyle 5 yrs as opposed to 12 months–obviously
that’s FABULOUS.He also has FOUR kids that need a dad (and me!)–time is
a really really really great thing right now.
We will see what we can do to at least maybe have a phone
consult with this dr.whoa! that’s amazing news.
First like it i’ve heard (transplant possibility) with mets outside the liver.
maybe we need to call Dr J at MD Anderson as my husband
is stage 4 with 2-3 lymph nodes involved and 2 small spots in the lungs.I LIKE LIKE to hear good things with Stage 4 of this cancer!
It fills me with hope!He’s been responding well to chemo so far as well.
(However a trip to Houston is not possible…but maybe a phone consult?!)My husband was diagnosed in March of this year.
Main liver tumor, a few local lymph nodes involved and a few small
tumors in the lungs.He has been on Gem/Cis chemo ever since and feels (actually)
great. (shockingly, i guess).Has she had any chemo? Is she still doing chemo?
I don’t know this cancer any other way than Stage 4 with
distant mets.Before Kyle started chemo he felt rotten ….
His cancer has had considerable “shrinkage” in main liver tumor
(75% or something like that) and the other places have
remained stable….He still works full time, and at the moment is living a very normal
life.Not sure if that helped answer your question or not.
It seems to me that this *(#& cancer reacts VERY differently
in every.single.person that has it.Dorien
