thecdr

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  • in reply to: SIR-Spheres: Selective Internal Radiation Therapy (SIRT) #15535
    thecdr
    Member

    I am wondering if you had had lymph node involvement? I was told I am not a candidate because the cancer has already spread to the lymph nodes and that I have so many small tumors that they wouldn’t be able to pinpoint them without damaging what healthy liver I have left. So will go through Gemcitabine and Tarceva for 3 months and then a repeat scan. IF there is shrinkage from the lymph nodes I MIGHT, and they stressed MIGHT, be a candidate.

    in reply to: Anyone with the disease have small kids (under 12?) #16761
    thecdr
    Member
    LaineyA wrote:
    I have a 7 year old girl going on 14… She blames everything bad on chemotherapy! ; )

    she’s right! 😆

    in reply to: Anyone with the disease have small kids (under 12?) #16759
    thecdr
    Member

    Thank you Sue, I have gotten so much from this board and the people on it. We are all members of each other’s “Cancer Posse”!

    in reply to: Anyone with the disease have small kids (under 12?) #16762
    thecdr
    Member
    Kate G wrote:
    What a nightmare.
    Not trying to be defeatist or anything, but have you made cunning plans for the boy, in the event that the unspeakable should happen?
    Oh man, makes me so sad to read what people have to go through.
    Lots of love to you CDR.

    you know, I never considered myself religious or spiritual or whatever, but I am really starting to believe in signs and reasons for doing what we do. I was living in San Francisco when I adopted Luis and one day while visiting my folks here in Ohio I just knew that I had to move back to be closer to family. We moved back and I live literally around the corner from the house I grew up in and where my parents still are. Our whole family are within 30 minutes of each other.

    When I did adopt I had to name a guardian for him as part of the process. My sister graciously accepted. She and her family had always planned on moving closer (they were an hour away) and 2 years ago they did, right down the street from me! There was a reason for this.

    so, when/if the unthinkable happens his entire life won’t be completely disappear. Same school, same neighborhood, same friends, surrounded by all the same people who love him. How blessed am I?

    He asked me if I was going to die and I couldn’t lie to him, he’s too smart. But he knows that I will always be his mom and he will always be my son, and that we will always be in each other’s hearts forever. We pray every night and know that every day is a blessing. Meanwhile we are doing as much as possible to “transition him” with my sister’s family so he’s not pulled from one and dropped into another. In fact, through the graciousness of his godfather we are all (Luis, me, his godfather and my sister and her family) are going on a cruise in December! We’ll have 4 days to just have fun, relax and bond. It will be very tough as time goes on, but I am secure in knowing that financially he is taken care of, and emotionally he will be loved and well cared for. He doesn’t want another mother, he just wants Aunt Peggy and Uncle Ray, because “you’re my mom”.

    So, when he gets his contract and pitches in his first major league game I will be in the great BIG “Skybox” instead of the one at the stadium.

    Of course that doesn’t mean that between now and then he won’t continue to suck the very consciousness out of me, after all, he is 10 and it is his duty as a child to drive his mother crazy! :-)

    thecdr
    Member

    oh Lisa, I pray that everything goes ok for you and your dad. Yes, I know exactly what you mean about feeling helpless, and the physical changes as well. I just got some pictures from my sister in law and what struck me was that I had that “sick” look, can’t really explain it, but I bet you know. Do whatever you can for your dad’s pain, Hospice is a good place to start.

    Lisa Ann wrote:
    Hi All,

    Well I finally got some more information on Dad’s condition. He has a 5.5cm tumor in his liver along with numerous others. He also has 5 lymph nodes surrounding his stomach that are 3cm (way to large). He continues to be in pain, some days worse than others, and still will not hardly eat anything.
    His biopsy is scheduled for tomorrow morning to confirm it is CC. After we get the results, they want to recheck his lungs and also his brain for any mets. None of this sounds very promising to me, and I am very worried. We will also talk tomorrow about trying something else to control his pain and discomfort, and we were told to possibly contact Hospice and get that started.
    I am seeing changes in his physical appearance almost daily now, and it is breaking my heart. I feel so helpless………………

    I will let everyone no the outcome of tomorrows biopsy, as they hope to at least give us some answers.

    You are All in My thoughts as I continue to read and re-read all the posts….
    Lisa

    in reply to: Anyone with the disease have small kids (under 12?) #16755
    thecdr
    Member

    thanks to all, and yes I have wonderful support. It’s the every day stuff, like, GETTING HIM UP IN THE MORNING!!!! :-O Yes, he does know what is going on, at least as much as a 10 year old can I guess. He is one of the reasons I am having such a hard time dealing with the disease, not for the way he acts but for all the terrible things that have been done to him. You see, I adopted him at age 5 from Guatemala after a pretty horrendous existence. As a result of abuse, genetics, whatever he is bipolar, severe abandonment issues, ptsd, you name it, but despite it all he is one of the sweetest little boys you could ever meet. So now I am grappling with God and why he would do something like this to a little boy?
    What we are trying to do is keep as normal as possible, I need it, he needs it. He needs his mom to yell at him when he doesn’t behave, I need to yell at him when he doesn’t behave, we need life to be normal as long as we can.
    One of the really “aggravating” things about this disease is that I feel like Damacles’ sword is dangling over my head, I want desperately to beat this thing but sometimes I wonder if I have the strength! Of course, I used to say that even before I had cancer!

    in reply to: Chronic stomach ache – sign of worst things to come? #16855
    thecdr
    Member
    Amilcar wrote:
    Hello everyone –

    My dad has been getting weaker and losing weight over the last month. We are not sure if this is a sign of the chemo, the tumor or both (most likely). He says he is very weak and tired and complains about chronic stomach pain. He describes it as a colic type pain and is sometimes more acute after he eats. As far as I know he has not had any vomit and treats the pain with over the counter medicine so it’s probably no to a critical point.

    He is not jaundiced or feels any other major pain points so I;m wondering if it might be more a chemo driven problem together with all the additional medication he’s taking or if it might be the tumor taking it’s course.

    If anyone has any experiences with this type of problem please let me know. I would love to know if there is anything I can do to help dad.

    Best of luck to everyone.

    Amilcar

    sounds like the pain I have. I actually describe it as “the baby is kicking and he’s got really long sharp toenails”. Is the pain more acute after he eats something with a higher fat content? Remember that his bile system is compromised so he will not be able to process some foods as before. It’s a trial and error, and sometimes I choose to go with the discomfort depending on the food! ;-)

    Best of luck to your dad and you. I think all of us who have it or experiencing in some way go through the “is this how cancer feels?”

    in reply to: CA19-9 , what does it all mean? #16839
    thecdr
    Member
    Peter wrote:
    Confused yet?
    -Peter

    yes, but that’s a genetic condition with me, or maybe it’s the marinol P-)

    in reply to: Experiences with Marinol for nausea and appetite? #14045
    thecdr
    Member

    I was just put on Marinol, and I remember now that the 70’s weren’t my favorite decade! Not sure how it is working for you now, but everyone I have talked to says it does take a few days to get over the dopeyness and get on to what it is supposed to do.

    in reply to: my dad #16800
    thecdr
    Member
    jules wrote:
    he asks after my daughter (she has just started a new school) it seems to bring him great comfort to know that she is happy. He is comfortable and does not appear to be suffering any pain.

    Where there is life there is hope,
    Jules

    Dear Jules

    please know that I keep you and your family in my prayers. Comfort, happy, not suffering, hope, pretty great words, don’t you think?

    Barb

    in reply to: 15 month check-up.. everything still looks good. #16709
    thecdr
    Member

    hope springs eternal!! I love good news!

    in reply to: 44YO single mom recently diagnosed #16774
    thecdr
    Member

    Dear Lisa,

    welcome from a single mom, I literally feel your pain……. Being the practical person i am I won’t go into the medical, there are people who know more about this disease than I do, but, regarding work, get the ADA (American with Disabilities Act) on your side. I am still working and will do so until I can’t physically, I am fortunate that I am able to telecommute, which is a godsend. If your job is such that this is a possibility, try it out. I wish you the best of luck. How are your kids taking it?

    Barb

    in reply to: My heart is healing one day at a time #16702
    thecdr
    Member
    marions wrote:
    Dear thecdr,

    I hope. my writing did not upset you.. I have been reading your postings, as they appear on this site, with dismay.

    Peter once greeted a new member with: Welcome to the club no one wants to belong to. What a poignant statement on his part.

    We are all members with the common bound of hope, fear, anguish and pain.

    My heart goes out to you.

    Hugs
    Marion

    Marion,

    thank you for your thoughts, this site has been a godsend for me. No, no one wants to belong, but then again, no one else understands the way we do either.

    I saw a dear friend yesterday who remarked “you seem to be at peace” At first I was surprised, but when I thought about it, she was right. I am at peace. doesn’t mean I don’t get angry, sad, etc etc, but I am more and more comfortable in my own skin and with my own feelings and decisions. Am I right to feel the way I do, no matter how I feel? yes. Am I right doing what I do, no matter what decision I make or if I change my mind later? yes!

    Thank you all for being here for each of us

    in reply to: My husband has BDC and is going to die #16328
    thecdr
    Member

    Charlene

    your feelings are absolutely normal, I can pretty much bet that all of us have, are or will go through the same things. doesn’t make them better though. I know you are on meds, but are you talking to any one? therapist? support group? Please seek this out, don’t let this disease destroy you too…

    in reply to: Genetic testing/strong family history #16723
    thecdr
    Member

    unfortunately there is no such testing, we just have to keep praying that someday….

    http://www.cdc.gov/genomics/gtesting/ACCE/FBR/HH/HHDisSet.htm

Viewing 15 posts - 91 through 105 (of 117 total)