tiapatty

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Viewing 15 posts - 76 through 90 (of 565 total)
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  • in reply to: GGOOOODDD NEWWWSS! #46349
    tiapatty
    Member

    Ashley,

    This is fantastic! I am going to do a mental cartwheel, last time I tried to do a real one it didn’t go too well! And prayers are coming your way!

    Patty

    in reply to: Dad with CC lost his battle #46339
    tiapatty
    Member

    Askthiru,

    I am sorry for your loss and for the suffering your father endured. It is strange that you mention Western medicine because lately I have been researching non-Western medicine and wondering if Western medicine is missing something in its focus. I plan to post about it so please keep coming back, our discussions are important to furthering understanding of this disease.

    Patty

    in reply to: Mom lost her battle… #46377
    tiapatty
    Member

    Sharon,

    Your mother’s last days were happy ones with family celebrating Christmas and her birthday. Your days ahead will not be easy, grief is a winding road, I hope you find your way. I believe in poetry, here is one for your mother who is at peace on the other shore.

    Boat

    I must launch out my boat.
    The languid hours pass by on the
    shore—Alas for me!
    The spring has done its flowering and taken leave.
    And now with the burden of faded futile flowers I wait and linger.
    The waves have become clamorous, and upon the bank in the shady lane
    the yellow leaves flutter and fall.
    What emptiness do you gaze upon!
    Do you not feel a thrill passing through the air
    with the notes of the far-away song
    floating from the other shore?
    ~Rabindranath Tagore

    in reply to: Devoncat no more #46227
    tiapatty
    Member

    To Hans and family,

    I am so sorry, she was yours and ours for a while, how lucky we were.

    I found a poem a few weeks ago that made me think of Kris and her cottage and her love of flowers. I hoped I would never have to post it as that would mean she was gone, here it is along with some others that make me think of her.

    Paradise –
    I see flowers
    from the cottage where I lie.
    ~Yaitsu’s death poem, 1807

    And then I think of one who in her youthful beauty died,
    The fair, meek blossom that grew up and faded by my side:
    In the cold moist earth we laid her, when the forest cast the leaf,
    And we wept that one so lovely should have a life so brief:
    Yet not unmeet it was that one, like that young friend of ours,
    So gentle and so beautiful, should perish with the flowers.
    ~ from The Death of the Flowers, William Cullen Bryant

    Dream Land
    by Christina Rossetti

    Where sunless rivers weep
    Their waves into the deep,
    She sleeps a charmed sleep:
    Awake her not.
    Led by a single star,
    She came from very far
    To seek where shadows are
    Her pleasant lot.

    She left the rosy morn,
    She left the fields of corn,
    For twilight cold and lorn
    And water springs.
    Through sleep, as through a veil,
    She sees the sky look pale,
    And hears the nightingale
    That sadly sings.

    Rest, rest, a perfect rest
    Shed over brow and breast;
    Her face is toward the west,
    The purple land.
    She cannot see the grain
    Ripening on hill and plain;
    She cannot feel the rain
    Upon her hand.

    Rest, rest, for evermore
    Upon a mossy shore;
    Rest, rest at the heart’s core
    Till time shall cease:
    Sleep that no pain shall wake;
    Night that no morn shall break
    Till joy shall overtake
    Her perfect peace.

    tiapatty
    Member

    Patti,

    Wow, so glad you got to go to France, JOYEUX ANNIVERSAIRE! Keep the good news coming.

    Patty

    in reply to: Mother recently diagnosed, stage IV intra CC #46063
    tiapatty
    Member

    Welcome to our little corner of the world. Are they offering your mom any treatment at all? Where are you located?

    Patty

    in reply to: Uncomfortable Discussion #45866
    tiapatty
    Member

    Nancy,

    John existed on this earth and made his mark while he was here and he will never be forgotten by those who knew and loved him. Others should know of his life and telling people he existed is the first step. Who knows if your conversation may have gone another way and the person may have asked what he died of and you would have been able to tell them about cholangiocarcinoma–how rare it is, how devastating it is, and how much we need to find a cure. Also, if I was at a dinner with someone who had experienced such sadness, I would want to know so as not to say something thoughtless and maybe understand why someone might seem sad.

    Patty

    in reply to: Hello from a new user #45007
    tiapatty
    Member

    Michael,

    Welcome to our little family here. A grandparent relationship is very special and you and your grandmother were lucky to be so close.

    After my mom died I also experienced more panic attacks and my general anxiety level is definitely increased. My mother’s illness and death made me realize how little control I have over my life and that is enough to make one uneasy and feel that the future really is a very uncertain concept.

    There are some things that help me–walking, playing with my nieces and nephews, even shoveling snow has helped me recently as it is a mindless activity with a satisfying result.

    I did a cursory search and this website seems pretty helpful and comprehensive and even talks about writing about your grief:

    http://www.squidoo.com/coping

    I have also recommended this book before and since you are a writer it might speak to you:

    http://www.worldcat.org/title/mourning-diary-october-26-1977-september-15-1979/oclc/526809468&referer=brief_results

    Patty

    p.s. You are a very good writer!

    in reply to: Ben’s Chemo started October 30th, 2010 Gemzar and Cisplatin #43802
    tiapatty
    Member

    Tom,

    That’s great news, keep it coming!

    Patty

    in reply to: ISO a poem, encouragement, anything! #45715
    tiapatty
    Member

    little tree
    e.e. cummings

    little tree
    little silent Christmas tree
    you are so little
    you are more like a flower

    who found you in the green forest
    and were you very sorry to come away?
    see i will comfort you
    because you smell so sweetly

    i will kiss your cool bark
    and hug you safe and tight
    just as your mother would,
    only don’t be afraid

    look the spangles
    that sleep all the year in a dark box
    dreaming of being taken out and allowed to shine,
    the balls the chains red and gold the fluffy threads,

    put up your little arms
    and i’ll give them all to you to hold
    every finger shall have its ring
    and there won’t be a single place dark or unhappy

    then when you’re quite dressed
    you’ll stand in the window for everyone to see
    and how they’ll stare!
    oh but you’ll be very proud

    and my little sister and i will take hands
    and looking up at our beautiful tree
    we’ll dance and sing
    “Noel Noel”

    Source: http://www.poetryfoundation.org/archive/poem.html?id=176724

    in reply to: home for the hollidays I pray #45667
    tiapatty
    Member

    And we pray, too, that you are home for the holidays!

    Patty

    in reply to: Off to Germany for treatment #45641
    tiapatty
    Member

    Kris,

    Here is hoping Leroy gets good and uncomfortable and finds it all too hot to handle! When you are done there you can come to Chicago and we can freeze him out just to cover all the bases! It sounds like you will have a German kind of Christmas, hope you and Hans are able to enjoy it in the midst of all this.

    Patty

    tiapatty
    Member

    Kim,

    Wow, your story reads kind of like a thriller and I am glad your good guy surgeon is winning against the bad guys. Not only did Dr. Kato give you hope, he had the skills to deliver.

    I posted about the ex vivo surgery before because I also saw a New York Times article, here is the link to my posts for those who want to read the article:

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3690

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3691

    When I read about this surgery, it sounded absolutely mind boggling to me.

    Patty

    in reply to: When it rains… #45453
    tiapatty
    Member

    Bob,

    Well, you are certainly adept at multitasking! Congratulations, grandpa!

    Patty

    in reply to: Conflicting information on CC #45391
    tiapatty
    Member

    Charlea,

    This is a guilt-free zone and we celebrate your good news as it keeps us going so please keep it coming.

    Patty

    p.s. And try not to dwell on the other shoe. I think the best way to do this is to keep busy so go ahead and make plans, you can’t really know what lies ahead but you can decide that you won’t allow the unknown to decide for you.

Viewing 15 posts - 76 through 90 (of 565 total)