tiapatty
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tiapattyMember
Ashley,
This is fantastic! I am going to do a mental cartwheel, last time I tried to do a real one it didn’t go too well! And prayers are coming your way!
Patty
tiapattyMemberAskthiru,
I am sorry for your loss and for the suffering your father endured. It is strange that you mention Western medicine because lately I have been researching non-Western medicine and wondering if Western medicine is missing something in its focus. I plan to post about it so please keep coming back, our discussions are important to furthering understanding of this disease.
Patty
tiapattyMemberSharon,
Your mother’s last days were happy ones with family celebrating Christmas and her birthday. Your days ahead will not be easy, grief is a winding road, I hope you find your way. I believe in poetry, here is one for your mother who is at peace on the other shore.
Boat
I must launch out my boat.
The languid hours pass by on the
shore—Alas for me!
The spring has done its flowering and taken leave.
And now with the burden of faded futile flowers I wait and linger.
The waves have become clamorous, and upon the bank in the shady lane
the yellow leaves flutter and fall.
What emptiness do you gaze upon!
Do you not feel a thrill passing through the air
with the notes of the far-away song
floating from the other shore?
~Rabindranath TagoretiapattyMemberTo Hans and family,
I am so sorry, she was yours and ours for a while, how lucky we were.
I found a poem a few weeks ago that made me think of Kris and her cottage and her love of flowers. I hoped I would never have to post it as that would mean she was gone, here it is along with some others that make me think of her.
Paradise –
I see flowers
from the cottage where I lie.
~Yaitsu’s death poem, 1807And then I think of one who in her youthful beauty died,
The fair, meek blossom that grew up and faded by my side:
In the cold moist earth we laid her, when the forest cast the leaf,
And we wept that one so lovely should have a life so brief:
Yet not unmeet it was that one, like that young friend of ours,
So gentle and so beautiful, should perish with the flowers.
~ from The Death of the Flowers, William Cullen BryantDream Land
by Christina RossettiWhere sunless rivers weep
Their waves into the deep,
She sleeps a charmed sleep:
Awake her not.
Led by a single star,
She came from very far
To seek where shadows are
Her pleasant lot.She left the rosy morn,
She left the fields of corn,
For twilight cold and lorn
And water springs.
Through sleep, as through a veil,
She sees the sky look pale,
And hears the nightingale
That sadly sings.Rest, rest, a perfect rest
Shed over brow and breast;
Her face is toward the west,
The purple land.
She cannot see the grain
Ripening on hill and plain;
She cannot feel the rain
Upon her hand.Rest, rest, for evermore
Upon a mossy shore;
Rest, rest at the heart’s core
Till time shall cease:
Sleep that no pain shall wake;
Night that no morn shall break
Till joy shall overtake
Her perfect peace.January 3, 2011 at 2:34 am in reply to: Just had the big “6-0” Birthday – 3.5yrs and going strong! #45615tiapattyMemberPatti,
Wow, so glad you got to go to France, JOYEUX ANNIVERSAIRE! Keep the good news coming.
Patty
tiapattyMemberWelcome to our little corner of the world. Are they offering your mom any treatment at all? Where are you located?
Patty
tiapattyMemberNancy,
John existed on this earth and made his mark while he was here and he will never be forgotten by those who knew and loved him. Others should know of his life and telling people he existed is the first step. Who knows if your conversation may have gone another way and the person may have asked what he died of and you would have been able to tell them about cholangiocarcinoma–how rare it is, how devastating it is, and how much we need to find a cure. Also, if I was at a dinner with someone who had experienced such sadness, I would want to know so as not to say something thoughtless and maybe understand why someone might seem sad.
Patty
tiapattyMemberMichael,
Welcome to our little family here. A grandparent relationship is very special and you and your grandmother were lucky to be so close.
After my mom died I also experienced more panic attacks and my general anxiety level is definitely increased. My mother’s illness and death made me realize how little control I have over my life and that is enough to make one uneasy and feel that the future really is a very uncertain concept.
There are some things that help me–walking, playing with my nieces and nephews, even shoveling snow has helped me recently as it is a mindless activity with a satisfying result.
I did a cursory search and this website seems pretty helpful and comprehensive and even talks about writing about your grief:
I have also recommended this book before and since you are a writer it might speak to you:
Patty
p.s. You are a very good writer!
December 18, 2010 at 6:24 pm in reply to: Ben’s Chemo started October 30th, 2010 Gemzar and Cisplatin #43802tiapattyMemberTom,
That’s great news, keep it coming!
Patty
tiapattyMemberlittle tree
e.e. cummingslittle tree
little silent Christmas tree
you are so little
you are more like a flowerwho found you in the green forest
and were you very sorry to come away?
see i will comfort you
because you smell so sweetlyi will kiss your cool bark
and hug you safe and tight
just as your mother would,
only don’t be afraidlook the spangles
that sleep all the year in a dark box
dreaming of being taken out and allowed to shine,
the balls the chains red and gold the fluffy threads,put up your little arms
and i’ll give them all to you to hold
every finger shall have its ring
and there won’t be a single place dark or unhappythen when you’re quite dressed
you’ll stand in the window for everyone to see
and how they’ll stare!
oh but you’ll be very proudand my little sister and i will take hands
and looking up at our beautiful tree
we’ll dance and sing
“Noel Noel”Source: http://www.poetryfoundation.org/archive/poem.html?id=176724
tiapattyMemberAnd we pray, too, that you are home for the holidays!
Patty
tiapattyMemberKris,
Here is hoping Leroy gets good and uncomfortable and finds it all too hot to handle! When you are done there you can come to Chicago and we can freeze him out just to cover all the bases! It sounds like you will have a German kind of Christmas, hope you and Hans are able to enjoy it in the midst of all this.
Patty
December 14, 2010 at 5:45 am in reply to: My inspirational story – please read ( a little lengthy, but worth it) #45516tiapattyMemberKim,
Wow, your story reads kind of like a thriller and I am glad your good guy surgeon is winning against the bad guys. Not only did Dr. Kato give you hope, he had the skills to deliver.
I posted about the ex vivo surgery before because I also saw a New York Times article, here is the link to my posts for those who want to read the article:
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3690
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3691
When I read about this surgery, it sounded absolutely mind boggling to me.
Patty
tiapattyMemberBob,
Well, you are certainly adept at multitasking! Congratulations, grandpa!
Patty
tiapattyMemberCharlea,
This is a guilt-free zone and we celebrate your good news as it keeps us going so please keep it coming.
Patty
p.s. And try not to dwell on the other shoe. I think the best way to do this is to keep busy so go ahead and make plans, you can’t really know what lies ahead but you can decide that you won’t allow the unknown to decide for you.
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